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Mashup Score: 0‘Nobody else to see’: Families trek hundreds of miles for pediatric rheumatology visits - 11 month(s) ago
“Your foot is very swollen. Like, there’s definitely something really wrong with your foot.”That is what 17-year-old Estelle LeBoeuf remembers her teammates saying years ago, when, at just 9 years of age and deeply involved in gymnastics, she began to demonstrate symptoms. By the time she finally received a diagnosis — juvenile rheumatoid arthritis — doctors had put
Source: www.healio.comCategories: General Medicine News, RheumatologyTweet
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Mashup Score: 0TRAQ score predicts readiness to transition from pediatric to adult rheumatology care - 11 month(s) ago
Pediatric rheumatology patients could be considered ready to transfer to adult care if they score greater than 4 on the Transition Readiness Assessment Questionnaire, according to data published in Rheumatology. “The most appropriate age for starting [transitional care] remains undetermined,” Ezgi Deniz Batu, MD, MSc, of Hacettepe University, in Ankara, Turkey, and colleagues wrote.
Source: www.healio.comCategories: General Medicine News, RheumatologyTweet-
🧒 When is a #pediatric rheumatology patient ready for adult care? A score of 4 or more on the TRAQ questionnaire could be a good sign, according to a study from @EzgiDenizBatu1 and colleagues Check Healio for more on the data ⬇️ https://t.co/isDYIOd6l6
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Mashup Score: 44Pediatric Femur Fractures: JBJS Clinical Summary - 1 year(s) ago
JBJS Clinical Summaries are synopses of the current “State of the Science” for common orthopaedic conditions in nine subspecialty areas.
Source: www.jbjs.orgCategories: General Medicine News, RheumatologyTweet-
JBJS Clinical Summaries: Pediatric Femur Fractures #pediatric https://t.co/qqWQQyCc0O https://t.co/UcG7lh7uaH
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Mashup Score: 0
SAN FRANCISCO — Surgery may be the best treatment for moderate to severe contractures in pediatric patients who are idiopathic toe-walkers, according to results presented here.“Resolution was highest with surgery. Range of motion also improved the most with surgery,” Emily Dodwell, MD, FAAOS, pediatric orthopedic surgeon at Hospital for Special Surgery, said in her presentation
Source: www.healio.comCategories: General Medicine News, OrthopedicsTweet-
Surgery may be the best treatment for #pediatric patients who are idiopathic toe-walkers. Read more: https://t.co/hJ4tKUV9D1
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Mashup Score: 15Consensus Definitions and Diagnostic Criteria Are Proposed for Pediatric Blepharokeratoconjunctivitis - 1 year(s) ago
A panel of international pediatric ophthalmologists and cornea specialists has developed a consensus definition of and diagnostic criteria for pediatric blepharokeratoconjunctivitis.
Source: www.aao.orgCategories: General Medicine News, OphthalmologyTweet-
While #pediatric blepharokeratoconjunctivitis is a rare condition, consensus definitions and diagnostic criteria are needed to provide optimal patient care. https://t.co/MwS3DadOf1
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Mashup Score: 0
Objective Prospective comparative effectiveness research (CER) in chronic nonbacterial osteomyelitis (CNO) is lacking. Our objectives were to (1) determine the use and safety of each consensus treatment plan (CTP) regimen for CNO, (2) assess the feasibility of using the Chronic Nonbacterial Osteomyelitis International Registry (CHOIR) data for CER, and (3) develop and validate a CNO clinical disease activity score (CDAS) using CHOIR. Methods Consenting children or young adults with CNO were enrolled into CHOIR. Demographic, clinical, and imaging data were prospectively collected. The CNO CDAS was developed through a Delphi survey and nominal group technique. External validation surveys were administered to CHOIR participants. Results One hundred forty (78.2%) CHOIR participants enrolled between August 2018 and September 2020 received at least 1 CTP regimen. Baseline characteristics from different CTP groups were well matched. Patient pain, patient global assessment, and clinical CNO le
Source: www.jrheum.orgCategories: Latest Headlines, RheumatologyTweet-
Research Article Feasibility of Conducting Comparative Effectiveness Research and Validation of a Clinical Disease Activity Score for Chronic Nonbacterial Osteomyelitis 📰 https://t.co/3MODb9V37X #chronicnonbacterialosteomyelitis #pediatric https://t.co/XGyjyOEGCk
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Mashup Score: 0Natural History of Pediatric Hand and Wrist Ganglion Cysts: Longitudinal Follow-Up of a Prospective, Dual-Center Cohort - 2 year(s) ago
This investigation describes the outcomes of pediatric ganglion cysts in a prospective cohort that elected not to undergo cyst aspiration or surgical treatment. Our primary aim was to investigate the rate of spontaneous resolution over time among the subset of patients who did not undergo specific treatments.
Source: www.jhandsurg.orgCategories: Latest Headlines, RheumatologyTweet-
Natural History of #Pediatric #HandandWrist #GanglionCysts: Longitudinal Follow-Up of a Prospective, Dual-Center Cohort @WRNMMC_DHA @ChildrensPhila @Nemours #HandSurgery #Retinacular https://t.co/KEI7GH8lTP
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Mashup Score: 0
Objectives This longitudinal cohort study aimed to identify trajectories of parent well-being over the first two years after their child’s evaluation for candidacy for epilepsy surgery, and to ident…
Source: onlinelibrary.wiley.comCategories: Latest Headlines, NeurologyTweet-
Key point: Multigroup latent class growth models identified three trajectories of parent well-being https://t.co/1YrmcusRpA #anxietysymptoms, #depressivesymptoms #familyresources #pediatric #epilepsysurgery #DrugResistant #Epilepsy @IlaeWeb @epilepsiajourn @WileyNeuro https://t.co/y5ebJFmjd5
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Mashup Score: 0NORD Breakthrough Summit | Rare Disease Conference - 2 year(s) ago
NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.
Source: nordsummit.orgCategories: Latest Headlines, Rare DiseaseTweet-
More #NORDSummit sessions happening next week - on #pediatric treatment development and promising new technologies for #RareDiseases. It's not too late to join us in Washington, DC or virtually on October 16-17! Register now: https://t.co/atVC9JhurQ https://t.co/8FyTbtynlM
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Mashup Score: 5Equity and Inclusion in Pediatric Gastroenterology... : Journal of Pediatric Gastroenterology and Nutrition - 2 year(s) ago
Characteristics of 26,565 patient encounters from January 2019 to December 2020 were analyzed. U.S. Census Bureau geographic identifiers were assigned to each participant and aligned with the American Community Survey (2015–2019) socioeconomic and digital outcomes. Reported odds ratios (OR) are telehealth encounter/in-person encounter. Results: GI telehealth usage increased 145-fold in 2020 compared to 2019 for NCH-DV. Comparing telehealth to in-person usage in 2020 revealed that GI patients who required a language translator were 2.2-fold less likely to choose telehealth [individual level adjusted OR (I-ORa) [95% confidence interval, CI], 0.45 [0.30–0.66], P < 0.001]. Individuals of Hispanic ethnicity or non-Hispanic Black or African American race are 1.3–1.4-fold less likely to utilize telehealth than non-Hispanic Whites (I-ORa [95% CI], 0.73 [0.59–0.89], P = 0.002 and 0.76 [0.60–0.95], P = 0.02, respectively). Households in census block groups (BG) that are more likely to utilize te
Source: journals.lww.comCategories: Latest Headlines, PediatricsTweet-
Mougey et al examined telehealth and ambulatory visits in #pediatric GI care to identify demographic, socioeconomic and digital disparities finding multiple sources of inequity. #CME #openaccess @dr_rdvenkatesh @johnmrosen @JenniferLeeLee1 https://t.co/PM0AotehNT https://t.co/i0qMRAgXh0
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⚠️A shortage of #pediatric rheumatologists is leading families to travel hundreds of miles for care their children need In this feature, hear from a 17-year-old who sees a doctor 4 hours away & providers filling these gaps @slusom @loganhealth__ ⬇️ https://t.co/f0tnysMWAG