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Mashup Score: 0End-of-Life Discussions With Patients and Caregivers Affected By Neurogenetic Diseases - 6 month(s) ago
Background and Objectives No effective cure is available for neurogenetic diseases such as Huntington disease, spinocerebellar ataxias, and Friedreich ataxia, all of which cause progressive motor, cognitive, and psychiatric symptoms leading, in the long term, to severe communication (among other) impairments. In end-of-life situations, advanced directives (indications formulated by the patient about end-of-life choices) are one decision-making resource for relatives, caregivers, and health care professionals. Given the slowly progressive nature of these diseases, the related disabilities, and their hereditary component, patients, caregivers, and neurologists are often at a loss concerning the right course of action to take. Our study’s aim was to explore patients’ and caregivers’ perceptions, needs, and expectations around anticipated end-of-life discussions and advanced directives. Methods DIRAGENE is an observational, cross-sectional, mixed-methods study with a patient-centered compo
Source: cp.neurology.orgCategories: Latest Headlines, NeurologyTweet
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Mashup Score: 2Standardized Criteria for Palliative Care Consultation on a Solid Tumor Oncology Service Reduces Downstream Health Care Use - 7 month(s) ago
Purpose: Hospitalized patients with advanced cancer have a high symptom burden and need for support. Integration of palliative care (PC) improves symptom control and decreases unwanted health care use, yet many patients are never offered these services. In 2016, ASCO called for incorporation of PC into oncologic care for all patients with metastatic cancer. To improve the quality of cancer care, we developed standardized criteria, or triggers, for PC consultation on the inpatient solid tumor service. Methods: Patients were eligible for this prospective cohort study if they met at least one of the following eligibility criteria: had an advanced solid tumor; prior hospitalization within 30 days; hospitalization > 7 days; and active symptoms. During the intervention, patients who met the criteria received automatic PC consultation. Results: When we compared patients in the intervention group with control subjects, there were increases in PC consultations (19 of 48 [39%] to 52 of 65 [80%];
Source: ascopubs.orgCategories: Hem/Oncs, Latest HeadlinesTweet
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Mashup Score: 6
Longitudinal results from the eQuiPe study show that the mean health-related quality of life begins to decline 9 months before death in patients with advanced cancer. Higher perceived continuity with…
Categories: Hem/Oncs, Latest HeadlinesTweet
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Mashup Score: 0What is palliative care?: MedlinePlus Medical Encyclopedia - 7 month(s) ago
Palliative care helps people with serious illnesses feel better by preventing or treating symptoms and side effects of disease and treatment.
Source: medlineplus.govCategories: General Medicine News, Latest HeadlinesTweet
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Mashup Score: 0
New research suggests that, in the United States, the use of palliative care for metastatic breast cancer varies by race.
Source: www.oncologynurseadvisor.comCategories: Hem/Onc News and Journals, Latest HeadlinesTweet
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Mashup Score: 0
New research suggests that, in the United States, the use of palliative care for metastatic breast cancer varies by race.
Source: www.cancertherapyadvisor.comCategories: Hem/Onc News and Journals, Latest HeadlinesTweet
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Mashup Score: 3Racial/Ethnic Minority Patients May Be Less Likely Than White Patients to Receive Palliative Care During Breast Cancer Treatment - 7 month(s) ago
Racial/Ethnic Minority Patients May Be Less Likely Than White Patients to Receive Palliative Care During Breast Cancer Treatment
Source: www.aacr.orgCategories: Hem/Onc News and Journals, Latest HeadlinesTweet
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Mashup Score: 2
Deaths in hospital represent a vital learning opportunity for both individual clinicians and the wider healthcare system. Many deaths are reviewed and discussed in morbidity and mortality meetings, with the Royal College of Physicians promoting Structured Judgement Review (SJR) methodology to support this discussion. An analysis of 1 year of SJRs in one hospital was undertaken, generating a toolkit to support junior doctors in evaluating in-hospital deaths. Here, the opportunities and limitations of this analysis are discussed, with consideration of ways to improve the uptake of SJR across the hospital team. These reviews exemplify one way of maximising learning from in-hospital deaths.
Source: www.rcpjournals.orgCategories: Latest Headlines, Oncologists2Tweet
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Mashup Score: 0Communication Surrounding Palliative Care with Mettle Health - 7 month(s) ago
September 21, 2023 47 min listen Source/Disclosures Published by: Disclosures: Jain reports no relevant financial disclosures. Rios is…
Source: www.healio.comCategories: Hem/Onc News and Journals, Latest HeadlinesTweet
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Mashup Score: 0Communication Surrounding Palliative Care with Mettle Health - 7 month(s) ago
September 21, 2023 47 min listen Source/Disclosures Published by: Disclosures: Jain reports no relevant financial disclosures. Rios is…
Source: www.healio.comCategories: Hem/Onc News and Journals, Latest HeadlinesTweet
Via @GreenJournal: Including conversations about end-of-life-planning into their health care will benefit patients whose neurologic diseases have unfavorable long-term prognoses: https://t.co/agQ5LPUEdl #NeuroTwitter @AANMember #PalliativeCare #hospice #EndOfLifeCare https://t.co/o1wLUxx6F1