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Mashup Score: 4Mary Michael Kelley, MED, MPA - 25 day(s) ago
Birmingham, Alabama Director of Patient Engagement, Arthritis FoundationRepresenting: Patients, Caregivers, and Patient AdvocatesTerm Ends: September 2027 Mary Michael Kelley, MED, MPA, is the national director of patient engagement for the Arthritis Foundation. She manages the portfolio of patient engagement projects, connecting patients with opportunities to share their voices and experiences through research, design and advocacy. She lost her youngest son to complications of systemic juvenile idiopathic arthritis after an uncontrolled battle with the disease, fueling her passion for organizations like PCORI. Kelley’s history with health advocacy work began with 10 years focused on hunger relief as a health intervention, during which time she was promoted to executive director of the Community Food Bank of Central Alabama. In this period she founded the Mothers’ Milk Bank of Alabama as an affiliate of the food bank. The Alabama bank, its own nonprofit organization, is accredited by
Source: www.pcori.orgCategories: General Medicine News, RheumatologyTweet
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Mashup Score: 3Comparative Effectiveness of ICD Versus Non-ICD Therapy in Contemporary Heart Failure Patients With a Low Risk for Arrhythmic Death (CONTEMP-ICD) - 1 month(s) ago
The project title and summary on this page were provided by and reflect the opinions and work of the awardee and do not necessarily represent the views of PCORI. The implantable cardioverter defibrillator (ICD) is placed inside the heart of patients with risk of sudden death and can terminate a life-threatening heart rhythm disturbance by delivery of therapy or shock to the patient. Currently, there is a recommendation to place an ICD for the prevention of sudden cardiac death inside the heart chambers
Source: www.pcori.orgCategories: General Medicine News, CardiologistsTweet-
@DrDave01 @drjohnm Trial (CONTEMP ICD) has been funded by PCORI... https://t.co/m6jk1FlPVT
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Mashup Score: 6Reimagining Caregiving Together: Engagement to Address Caregiver Requirement Barriers - 5 month(s) ago
The project title and summary on this page were provided by and reflect the opinions and work of the awardee and do not necessarily represent the views of PCORI. Background: There is a significant barrier to allogeneic hematopoietic cell transplantation (alloHCT) – the requirement for a 24/7 caregiver for an extended time post-alloHCT. This requirement poses challenges for many patients who lack social support or the financial means to secure a caregiver, potentially denying them access to alloHCT. The
Source: www.pcori.orgCategories: General Medicine News, Onc News and JournalsTweet-
ASTCT is pleased to share that @PCORI has funded the @nmdp_org Caregiver Engagement Award, which is part of our collaborative efforts to reduce caregiver barriers to stem cell transplant through the #ACCESSInitiative. Read the announcement: https://t.co/0T11INeTm8 @CIBMTR
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Mashup Score: 52024 PCORI Annual Meeting: Scholarships for Patients, Caregivers and PCORI Ambassadors - 5 month(s) ago
The application deadline is June 17, at 5 pm (ET).
Source: www.pcori.orgCategories: General Medicine News, Rare DiseaseTweet-
📅 Deadline approaching! Patients or caregivers can apply for a #PCORI24 scholarship to join the conversation at the @PCORI Annual Meeting, Oct 22-23 in DC. If you're attending the #NORDSummit, Oct 20-22, you can go here directly after! Apply by June 17: https://t.co/J8HGVVwcqY https://t.co/QzsvDMk5Da
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Mashup Score: 8
The project title and summary on this page were provided by and reflect the opinions and work of the awardee and do not necessarily represent the views of PCORI. Asthma exacerbations – attacks – can require visits to urgent care and emergency rooms, hospitalizations and even death. Recent treatment guidelines recommend combining inhaled corticosteroids (ICS) with long-acting beta-agonist (LABA) inhaled medications for quick reliever use. The strategy is known as SMART (single maintenance and reliever
Source: www.pcori.orgCategories: General Medicine News, Allergy-ImmunologyTweet-
Improving #asthma patient care quality for those at risk of #exacerbations is the focus of i-CARE project. Enhancing patient outcomes is key. #AsthmaCare #PatientOutcomes https://t.co/CiWzb0T24Y https://t.co/hL9QVkygqO
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Mashup Score: 19Cycle 2 2024 -- Addressing Rare Diseases Topical PCORI Funding Announcement Applicant Town Hall - 6 month(s) ago
Tuesday, May 14, 2024; 12:00 – 1:00 pm ET PFA Opens May 7, 2024 Letter of Intent (LOI) Deadline June 4, 2024; 5 pm (ET) LOI Status Notification July 2, 2024 Application Deadline Sept. 4, 2024; 5 pm (ET) During this 60-minute webinar, PCORI will walk you through: PCORI overview, including what CER and CER-related projects we fund Details of this funding announcement, including both programmatic and administrative requirements Unique requirements for patient and stakeholder engagement PCORI’s Merit Review
Source: www.pcori.orgCategories: General Medicine News, Rare DiseaseTweet-
RESEARCH GRANT: @PCORI is offering funding up to $12 million for #RareDisease research studies! Want to know if you qualify? Attend their Q&A webinar on May 14 for all the info on how to submit a strong LOI: https://t.co/qMtIaYYIVv https://t.co/a93nTD5Gwd
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Mashup Score: 11
PFA Opens May 7, 2024 Applicant Town Hall May 14, 2024; 12 pm (ET) Letter of Intent (LOI) Deadline June 4, 2024; 5 pm (ET) LOI Status Notification July 2, 2024 Application Deadline Sept. 4, 2024; 5 pm (ET) The Patient-Centered Outcomes Research Institute (PCORI) intends to issue a Topical PCORI Funding Announcement (PFA) on May 7, 2024, seeking to fund high-quality, patient-centered comparative clinical effectiveness research (CER) projects that focus on rare diseases. This preannouncement provides
Source: www.pcori.orgCategories: General Medicine News, Rare DiseaseTweet-
📢 New Research Grant Announcement! @PCORI's new Addressing Rare Diseases PFA offers up to $100M in available funding for patient-centered #CER projects on symptoms management, timely diagnosis, or improving care delivery for #RareDiseases. Learn more: https://t.co/z7aJco2BZq https://t.co/bgrTtTTsx9
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Mashup Score: 16A TriaL ComparIng the EffectiVEness and ToleraBility of MEdicaTions in Older Adults with STablE Angina and Multiple ChRonic Conditions: LIVE BETTER - 12 month(s) ago
Coronary artery disease (CAD) leading to stable symptoms (i.e., stable angina) is a leading contributor to death and disability among older adults with multiple chronic conditions. Treatment options for stable angina include both medications and invasive procedures, without any difference in rates of death or heart attacks across the different treatment approaches. Current guideline recommendations suggest that doctors should first treat patients with medications to improve symptoms from stable angina,
Source: www.pcori.orgCategories: General Medicine News, CardiologistsTweet-
First patient was randomized in the Live Better Trial From Inova: @ISHVnews @InovaHealth Amazing team effort by the Inova esearch team: Bravo 👏👏👏 @behnam_tehrani @mw_sherwood @_WayneBatchelor @MichaelGNanna @jennifer_rymer @Ajar_Kochar 👇👇 https://t.co/Chc8jxacxE
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Mashup Score: 0
Monday, September 11, 2023; 12:00 – 1:00 pm ET PFA Opens: September 6, 2023 Letter of Intent Deadline: October 3, 2023; 5:00 p.m. ET Letter of Intent Status Notification: October 31, 2023 Application Deadline: January 9, 2024; 5:00 p.m.
Source: www.pcori.orgCategories: Cardiology News and Journals, Latest HeadlinesTweet-
Interested in learning more? Join a Town Hall today at 12 p.m. EST https://t.co/nz4moJbbqi https://t.co/YXIYOq1km8
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Mashup Score: 1Homepage | PCORI - 2 year(s) ago
The PCORI Strategic Plan A Bold Vision for Addressing Healthcare Challenges Generating Evidence to Achieve More Efficient, Effective, and Equitable Health Care and Improve Health for All Learn More Our Impact and Evidence You Can Use …
Source: www.pcori.orgCategories: Hem/Oncs, Latest HeadlinesTweet-
Not to be missed 👉 Patient-Centered Outcomes Research Institute (PCORI) #VBHC #PROM #HRQoL https://t.co/ZBwjRPZfnf
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We're excited to share that Mary Michael Kelley has been selected to be a @PCORI Advisory Panelist where she'll play a role in changing the health care landscape and helping people make better, informed decisions about their care. https://t.co/xDhGFOJBRz https://t.co/VfcNi16CC0