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    Clinical Advances in Rare Diseases Learning Center

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    • 🦓 Today is #RareDiseaseDay! Healthcare providers around the world recognize today and the importance of continuing medical education to improve the quality of life for patients who have been diagnosed with a #RareDisease. #LightUpForRare 📍 To learn more: https://t.co/9sC3zfMTfJ https://t.co/smZOk4Cjxq

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    Oct 7, 2019, marks the 80th anniversary of the death of Harvey Cushing, the father of modern neurosurgery. Here we give a historical perspective from Cushing’s original description of the clinical syndrome that now bears his name through to the modern day. We highlight some of the key milestones that allowed improved understanding and management of this extraordinarily challenging condition, and…

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    • #Cushing's disease—from Minnie G to key issues in the early 21st century https://t.co/ykGYOcKGE7 #neuroendocrine #pituitary #FREE to read with registration (also FREE) #RareDiseaseDay #ShareYourColours #RareDiseases #LightUpForRare

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    Clinical Advances in Rare Diseases Learning Center

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    • 🦓 Did you know that #RareDiseaseDay is today? Listen to a mother explain her daughter's journey with a long-chain fatty acid oxidation disorder. #raredisease #MedEd #LightUpForRare 📍 Learn & earn credit here: https://t.co/3ewb9dJaHQ https://t.co/1U2TLS1Q7F

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    Cushing’s disease requires accurate diagnosis, careful treatment selection, and long-term management to optimise patient outcomes. The Pituitary Society convened a consensus workshop comprising more than 50 academic researchers and clinical experts to discuss the application of recent evidence to clinical practice. In advance of the virtual meeting, data from 2015 to present about screening and…

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    • Consensus on diagnosis and management of #Cushing's disease: a guideline update https://t.co/E777qkmu4T #neuroendocrine #pituitary #FREE to read with registration (also FREE) #RareDiseaseDay #ShareYourColours #RareDiseases #LightUpForRare

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    Rare Disease Day is celebrated on Feb 28 each year (or Feb 29 in leap years—the rarest day). It serves as a focal point to raise awareness about rare diseases, the challenges faced by people living with a rare disease, their families, and caregivers, and to advocate for equity in access to diagnosis and treatment, and in social opportunities such as education. Although rare at the individual…

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    • Today is #RareDiseaseDay 2023. Read our latest Editorial: Rare diseases: individually rare, collectively common https://t.co/sr7UM2HhP6 #FREE to read #RareDiseases #RareDiseaseAwareness #ShareYourColours #LightUpForRare

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    FDA will host Rare Disease Day, a virtual public meeting, on February 27, 2023, 9:00 am – 4:45 pm ET, in global observance of Rare Disease Week.

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    • FDA recognizes #RareDiseaseWeek by being part of #LightUpForRare. Join us today for #FDARareDiseaseDay to explore ways to engage and collaborate with patients and their advocates to support medical product development and regulation. https://t.co/X1LE4ZLpNF https://t.co/EINFvbVhSu

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    Dr McKay highlights key tips and strategies that aid diagnosis and management of rare disease in the clinic.

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    • ❗ You don't need to know the ~7000 rare diseases... listen to Dr. McKay's top tips for when to suspect a rare disease. #RareDiseaseDay #LightUpForRare #MedEd #CME #pediatrician 🖥️ https://t.co/8g0zGgiAvT https://t.co/vG6Pli3hhD

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    Clinical Advances in Rare Diseases Learning Center

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    • 📍 #RareDiseaseDay is on February 28. Watch this video to understand a patient's journey with pustular psoriasis. #raredisease #MedEd #LightUpForRare 🖥️ Earn credit by learning more about rare diseases: https://t.co/whjyAWOyIq https://t.co/hxTCfgonR1

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    Do you know the common features of rare bone disorders and the consequences of ineffective care?

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    • ➡️ Do you know the common features of rare bone disorders and the consequences of ineffective care? #LightUpForRare #RareDiseaseDay #RareDisease #MedEd #Surgery 📍 Take the #CME: https://t.co/2vbwlRo2iL https://t.co/AZItm0QKtf

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    Do you know the common features of rare bone disorders and the consequences of ineffective care?

    Tweet Tweets with this article
    • ➡️ Do you know the common features of rare bone disorders and the consequences of ineffective care? #LightUpForRare #RareDiseaseDay #RareDisease #MedEd #pediatrician 📍 Take the #CME: https://t.co/MvsWMCT7qN https://t.co/end4trEChQ