• Mashup Score: 3
    Community Meets Clinic - Drs. Kelsey Poisson and Camille Wilson - 7 month(s) ago

    Rebecca Whitney was joined for a Community Meets Clinic podcast by Drs. Kelsey Poisson and Camille Wilson of Nationwide Children’s Hospital.

    Source: SRNA
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Rebecca Whitney of @wearesrna was joined by Dr. Kelsey Poisson and Dr. Camille Wilson for a "Community Meets Clinic" podcast about their work at @nationwidekids, a NORD #RareDisease Center of Excellence. View the podcast here: https://t.co/uPRrCm7cQj #StrongerTogether

  • Mashup Score: 4
    2023 RNDS - 8 month(s) ago

    The one-day regional in-person educational and advocacy conference for those affected by rare neuroimmune disorders.

    Source: SRNA
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Registration is now open for the 2023 Regional Rare Neuroimmune Disorders Symposium in Dallas, TX on October 7. Hosted by @wearesrna and @utsw, this is a one-day regional educational and advocacy event. Learn more here: https://t.co/AUEGcRbpgl #StrongerTogether #NMOSD #MOGAD

  • Mashup Score: 0
    Health Disparities and Rare Neuroimmune Disorders - 2 year(s) ago

    Krissy Dilger was joined by Dr. Mitzi Joi Williams for an “Ask the Expert” podcast on “Health Disparities and Rare Neuroimmune Disorders.”

    Source: SRNA
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Krissy Dilger of @Wearesrna was recently joined by Dr. Mitzi Joi Williams for an “Ask the Expert” podcast on "Health Disparities and Rare #Neuroimmune Disorders.” Find the podcast and transcript here: https://t.co/U38x0w7c76

  • Mashup Score: 1
    2022 RNDS - 2 year(s) ago

    October 7 – 9 2022, Hybrid Conference A three-day hybrid (in-person and online) educational event for those with acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum disorder (NMOSD), optic neuritis (ON), and transverse myelitis (TM), as well as their families, care partners, and medical professionals. Hosted…

    Source: SRNA
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Registration for the @WeAreSRNA Annual Rare #Neuroimmune Disorders Symposium (RNDS) on 10/7-10/9 is now open! An online pre-RNDS will be hosted on 9/9 to dive deeper into rare #neuroimmune disorder topics and to meet other attendees. More: https://t.co/bbgDt2g3Ie #2022RNDS

  • Mashup Score: 0
    Immunology of Rare Neuroimmune Disorders: Part 2 - 2 year(s) ago

    Krissy Dilger was joined by Dr. Simpson and Dr. Barreras for an Ask the Expert podcast on “Immunology of Rare Neuroimmune Disorders: Part 2.”

    Source: SRNA
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Krissy Dilger of @WeAreSRNA recently hosted an Ask the Expert podcast on “Immunology of Rare Neuroimmune Disorders: Part 2” with Drs. Alex Simpson and Paula Barreras. Listen to the podcast and learn more here: https://t.co/DevWZamsnf #StrongerTogether

  • Mashup Score: 0
    ABCs of NMOSD – Long-Term Therapies in NMOSD - 2 year(s) ago

    For this “ABCs of NMOSD” podcast titled “Long-Term Therapies in NMOSD,” SRNA’s Dr. GG deFiebre was joined by Dr. Dean M. Wingerchuk.

    Source: SRNA
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Dr. GG deFiebre of @Wearesrna was recently joined by Dr. Dean M. Wingerchuk for an “ABCs of NMOSD” podcast titled, “Long-Term Therapies in NMOSD." Listen now: https://t.co/0855pkzhpN #NMOSD #NMO

  • Mashup Score: 15
    AFM Physician Support Portal - 2 year(s) ago

    The goal of the AFM Physician Support Portal is to connect medical professionals from the UTSW TM Center and JHU TM Center and offer 24/7 consultation.

    Source: SRNA
    Categories: General Medicine News, Latest Headlines
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      CDCgov

      #HCPs: Have a patient with acute flaccid myelitis (#AFM)? @wearesrna’s AFM Physician Consult and Support Portal can connect you with AFM experts from the @UTSWNews Transverse Myelitis Center or @HopkinsMedicine Myelopathy and Myelitis Center: https://t.co/D55OikonpP. https://t.co/ghJ6y3WOH8

  • Mashup Score: 0
    Europe Support Group Meeting - 2 year(s) ago

    Join us for an online support group meeting hosted by Pilar Schnadenberger, one of our Europe Support Group Leaders, who is based in Germany!

    Source: SRNA
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Join @WeAreSRNA for a virtual support group meeting on 7/24 hosted by Pilar Schnadenberger, for those based in Europe. If you are a patient or a caregiver for someone with #ADEM, #AFM, #MOGAD, #NMOSD, #ON, or #TM, we invite you to join us! Register here: https://t.co/E28oP6XsyH

  • Mashup Score: 0
    AFM Awareness Virtual Event - 2 year(s) ago

    Join us for a special virtual event in recognition of Acute Flaccid Myelitis Awareness Month, along with our friends at the Acute Flaccid Myelitis Association.

    Source: SRNA
    Categories: Latest Headlines, Rare Disease
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    • Profile photo of RareDiseases
      RareDiseases

      Join @WeAreSRNA for #AcuteFlaccidMyelitis (AFM) Awareness Month! Tune in on Friday 7/15 for the AFM Awareness Virtual Event. Connect with others and hear from experts about the latest in #AFM research, treatments, & more! Register here: https://t.co/p9zeEPTKBh #StrongerTogether

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