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Mashup Score: 0Community Spotlight - Ben Harris - 2 year(s) ago
For this episode of the Community Spotlight edition of the “Ask the Expert” podcast series, Ben Harris joined Dr. GG deFiebre of SRNA.
Source: SRNACategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 3Community Spotlight - Paul Garrett - 2 year(s) ago
Paul Garrett, an SRNA Peer Connect Leader, joined Lydia Dubose of SRNA for an Ask the Expert Podcast: Community Spotlight Edition.
Source: SRNACategories: Latest Headlines, Rare DiseaseTweet-
The Community Spotlight edition of the @WeAreSRNA Ask the Expert podcast series featured a Peer Connect volunteer, Paul Garrett, who joined Lydia Dubose of SRNA to talk about his experience living with #TransverseMyelitis. Learn more: https://t.co/m4wb2uhCeT #StrongerTogether
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Mashup Score: 0Daniel’s Story: A Mother’s Perspective on TM - 2 year(s) ago
I will never forget the day Daniel’s life turned upside down. On the morning of the 27th of December, 2020, Daniel played a game of chess with me and his brother before going to his room. Ten minutes later, we heard him screaming. I went up to find him in agony and pain. Within an hour, Daniel lost his ability to stand or walk. It was the perfect storm.
Source: SRNACategories: Healthcare Professionals, Latest HeadlinesTweet-
Daniel’s Story: A Mother’s Perspective on Transverse Myelitis https://t.co/69xlcASISD via @DrBalsamAhmad
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Mashup Score: 3TM Awareness Virtual Event - 2 year(s) ago
Join us for a special virtual event in recognition of Transverse Myelitis (TM) Awareness Month, along with our friends at the TM Society. Connect with others and hear from experts about the latest in TM research, treatments, and more.
Source: SRNACategories: Latest Headlines, Rare DiseaseTweet-
Please join @WeAreSRNA for a special virtual event in recognition of #TransverseMyelitis (TM) Awareness Month on 6/11. Connect with others and hear from experts about the latest in TM research, treatments, and more! Register here: https://t.co/J6tJi7Yb3E #ThisisTM #WeAreSRNA
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Mashup Score: 0Online Support Group Meeting - 2 year(s) ago
Please join us for a support group meeting on April 29. We will learn about adaptive sports, with two guest speakers: SRNA community member Lincoln Jamison and Ability360’s Gus Lazear.
Source: SRNACategories: Latest Headlines, Rare DiseaseTweet-
Join @WeAreSRNA for an online support group meeting on 4/29 hosted by the Arizona support group leaders! They will be learning about adaptive sports w/ two guest speakers: SRNA community member, Lincoln Jamison and Ability360's Gus Lazear. Register here: https://t.co/2XvXGdMFwF
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Mashup Score: 3MOGAD Awareness Virtual Event - 2 year(s) ago
Join us for a special virtual event in recognition of MOGAD Awareness Month, in partnership with The MOG Project, The Sumaira Foundation for NMO, and The Guthy-Jackson Charitable Foundation.
Source: SRNACategories: Latest Headlines, Rare DiseaseTweet-
.@Wearesrna invites you to participate in an #MOGAD Awareness Month with @TheMOGProject, @TheSumairaFDN, @Guthyjacksonfdn, physicians from @MayoClinic, and the wider MOGAD community! Register today for the MOGAD Awareness Virtual Event on 4/9 here: https://t.co/dRrdzu8b2d
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Mashup Score: 1Pediatric NMOSD, Part II: Treatment & Symptom Management - 2 year(s) ago
Drs. Jayne Ness and Silvia Tenembaum joined Rebecca Whitney for an ABCs of NMOSD podcast, “Pediatric NMOSD – Part II, Treatment and Symptom Management.”
Source: SRNACategories: Latest Headlines, Rare DiseaseTweet-
Drs. Jayne Ness & Silvia Tenembaum joined Rebecca Whitney of @Wearesrna for the ABCs of NMOSD podcast, “Pediatric NMOSD Part II, Treatment & Symptom Management.” Listen to the podcast and find the transcript here: https://t.co/dBeWTB8FTK #NMOSD #StrongerTogether
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Mashup Score: 0The Future of Diagnosing Transverse Myelitis - 2 year(s) ago
Dr. GG deFiebre was joined by Drs. Kyle Blackburn, Stacey Clardy, Eoin P. Flanagan, Benjamin Greenberg, Michael Levy, and Carlos Pardo-Villamizar.
Source: SRNACategories: Latest Headlines, Rare DiseaseTweet-
Dr. GG deFiebre of @WeAreSRNA recently hosted an Ask the Expert podcast on "The Future of Diagnosing Transverse Myelitis." Listen to the podcast and find the transcript here: https://t.co/DUA8sDsmVD #StrongerTogether #TM
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Mashup Score: 1
GG deFiebre of SRNA was joined by Drs. Jonathan Galli, Michael Sweeney, and Justin Abbatemarco for an Ask the Expert: Research Edition podcast.
Source: SRNACategories: Latest Headlines, Rare DiseaseTweet-
GG deFiebre of @WeAreSRNA was recently joined by Drs. Galli, Sweeney, & Abbatemarco for an Ask the Expert: Research Edition Podcast on the “Study of Transverse Myelitis in Veterans Health Administration Records.” Listen here: https://t.co/QIMYDvPGQo #StrongerTogether
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Mashup Score: 0
SRNA presents an Ask the Expert podcast on “Avoiding a Misdiagnosis: Understanding the Differences between MOGAD, MS, and NMOSD.”
Source: SRNACategories: Latest Headlines, Rare DiseaseTweet-
GG deFiebre, PhD of @WeAreSRNA was joined by Drs. Geoffrey Eubank and Michael Levy for an Ask the Expert podcast on “Avoiding a #Misdiagnosis: Understanding the Differences between MOGAD, MS, and NMOSD.” Find the podcast transcript here: https://t.co/YR7d2aH5OM #StrongerTogether
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Ben Harris recently joined Dr. GG deFiebre of @WeAreSRNA for a Community Spotlight edition episode of the "Ask the Expert" podcast series to discuss his recent diagnosis of #TransverseMyelitis as a result of the neuroinvasive #WestNileVirus. Learn More: https://t.co/aivom8WBPn