• Mashup Score: 0
    Ask Your Members of Congress to Cosponsor the PASTEUR Act - 10 month(s) ago

    People living with cystic fibrosis face a heightened, life-long risk of infections, and many battle difficult-to-treat infections for which there are no effective antibiotics available. This is not just a problem for people with CF. Each year, 2.8 million Americans acquire serious infections caused by antibiotic resistant bacteria, resulting in 35,000 annual deaths. A robust pipeline of…

    Source: Cystic Fibrosis Foundation
    Categories: General Medicine News, Latest Headlines
    Tweet Tweets with this article
    • Profile photo of pewhealth
      pewhealth

      “It’s time for Congress to take action to bring desperately needed #antibiotics into the hands of patients who need them most,” @CF_Foundation says. Urge your member of Congress to support the #PASTEURAct. https://t.co/Zn2K79dB7v

  • Mashup Score: 0
    Testing for CF - 2 year(s) ago

    Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.

    Source: Cystic Fibrosis Foundation
    Categories: General Medicine News, Latest Headlines
    Tweet Tweets with this article
    • Profile photo of medlineplus
      medlineplus

      Almost all babies get #NewbornScreening at 1-2 days old. For most, the results come back normal. If a result isn’t normal, it doesn’t mean your baby has the condition. They'll need a diagnostic test, to be sure. See how this works for cystic fibrosis: https://t.co/NFvZMi0zvT https://t.co/DMFdHveXYQ

  • Mashup Score: 2
    Testing for CF - 2 year(s) ago

    Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.

    Source: Cystic Fibrosis Foundation
    Categories: General Medicine News, Latest Headlines
    Tweet Tweets with this article
    • Profile photo of medlineplus
      medlineplus

      Almost all babies get #NewbornScreening at 1-2 days old. For most, the results come back normal. If a result isn’t normal, it doesn’t mean your baby has the condition. They'll need a diagnostic test, to be sure. See how this works for cystic fibrosis: https://t.co/xVBTGJUZbt https://t.co/p3jvROv4XI

  • Mashup Score: 33
    Understanding Changes in Life Expectancy - 2 year(s) ago

    People with cystic fibrosis continue to live longer and healthier lives, and the Patient Registry data support this general trend. To understand what this means for our community, however, it is important to understand how these numbers are calculated and what they represent.

    Source: Cystic Fibrosis Foundation
    Categories: Critical Care, Latest Headlines
    Tweet Tweets with this article
    • Profile photo of gbosslet
      gbosslet

      Science is amazing Cystic Fibrosis life expectancy has increased by 44% since the late 90s And this predates the CFTR modulators, which are miracle drugs #PCCM From https://t.co/vpQnc2H01V https://t.co/eyxBfarQtl