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Mashup Score: 0Patient Involvement in the Governance of the German Human Genome-Phenome Archive (GHGA): Patients' perspectives and recommendations for implementation - 10 month(s) ago
This White Paper summarizes the findings from a participatory study that was conducted with patients in Germany from the cancer and rare diseases communities to explore their perspectives on patient involvement in the governance of genomic data archives in general and of the German Human Genome-Phenome Archive (GHGA) specifically. It also describes a concept for implementing meaningful patient…
Source: ZenodoCategories: Latest Headlines, Oncologists1Tweet
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Mashup Score: 0DOC 2023_Interview Herrmann_V1_0 - 10 month(s) ago
This is “DOC 2023_Interview Herrmann_V1_0” by Johann Lange on Vimeo, the home for high quality videos and the people who love them.
Source: VimeoCategories: Latest Headlines, Oncologists1Tweet-
Über die Chancen und Grenzen des Einsatzes von KI in der Medizin. Unser Mitarbeiter Markus Herrmann wurde hierzu im Rahmen der Digital Oncology Conference 2023 des CCC-N und der @EKFStiftung interviewt. #KI #medicalethics https://t.co/7tqC5kiiyy
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Mashup Score: 0DATABLIC - NCT Nationales Centrum für Tumorerkrankungen Heidelberg - 11 month(s) ago
Das Nationale Centrum für Tumorerkrankungen (NCT) Heidelberg vereinigt Patientenversorgung, Krebsforschung und Krebsprävention unter einem Dach, um alle für den Kampf gegen Krebs relevanten Aspekte zu berücksichtigen.
Source: www.nct-heidelberg.deCategories: Latest Headlines, Oncologists1Tweet-
@BMBF_Bund More information on DATABLIC: https://t.co/BIf5WLaPFY
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Mashup Score: 0NEW_LIVES - NCT Nationales Centrum für Tumorerkrankungen Heidelberg - 11 month(s) ago
Das Nationale Centrum für Tumorerkrankungen (NCT) Heidelberg vereinigt Patientenversorgung, Krebsforschung und Krebsprävention unter einem Dach, um alle für den Kampf gegen Krebs relevanten Aspekte zu berücksichtigen.
Source: www.nct-heidelberg.deCategories: Latest Headlines, Oncologists1Tweet-
@BMBF_Bund More information on NEW_LIVES: https://t.co/w5DKHNeCeU
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Mashup Score: 0Livestream: Data for Health Conference 2023 - 11 month(s) ago
Alle Informationen zur “Data for Health Conference 2023” mit Bundesgesundheitsminister Prof. Karl Lauterbach. Die Konferenz läuft vom 20. – 21. Juni 2023 in Berlin.
Categories: Latest Headlines, Oncologists1Tweet-
About the Importance of the use of health data for research and transatlantic access to health data: Here you can watch the recording of the Data for Health Conference #DFH23 @BMG_Bund with Eva Winkler in Panel 4. https://t.co/kLPKly2PRb
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Mashup Score: 0Livestream: Data for Health Conference 2023 - 11 month(s) ago
Alle Informationen zur “Data for Health Conference 2023” mit Bundesgesundheitsminister Prof. Karl Lauterbach. Die Konferenz läuft vom 20. – 21. Juni 2023 in Berlin.
Categories: Latest Headlines, Oncologists1Tweet-
About the Importance of the use of health data for research and transatlantic access to health data: Here you can watch the recording of the Data for Health Conference #DFH23 @BMBF_Bund with Eva Winkler in Panel 4. https://t.co/kLPKly2PRb
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Mashup Score: 0Patient data for commercial companies? An ethical framework for sharing patients’ data with for-profit companies for research - 11 month(s) ago
Background Research using data from medical care promises to advance medical science and improve healthcare. Academia is not the only sector that expects such research to be of great benefit. The research-based health industry is also interested in so-called ‘real-world’ health data to develop new drugs, medical technologies or data-based health applications. While access to medical data is…
Source: Journal of Medical EthicsCategories: Latest Headlines, Oncologists1Tweet-
Sharing patient data from public health care system with private companies? In a recently published paper, we argue that there are good reasons to grant for-profit companies access to patient data for research if certain requirements are met. https://t.co/ozS0Q9w3zo
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Mashup Score: 0Patient data for companies: Patient privacy, private profits and the public good - Journal of Medical Ethics blog - 11 month(s) ago
By Adrian Thorogood and Eva Winkler. Our paper tackles a question that policymakers and public healthcare systems are wrestling with around the world: should for-profit companies be given access to medical data derived from patients for research? In public healthcare systems, medical data is generated as part of the routine care of patients, and through […]Read More…
Source: Journal of Medical Ethics blogCategories: Latest Headlines, Oncologists1Tweet-
See also our blog post: https://t.co/OtZXa2Uti7
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Mashup Score: 0Patient data for commercial companies? An ethical framework for sharing patients’ data with for-profit companies for research - 11 month(s) ago
Background Research using data from medical care promises to advance medical science and improve healthcare. Academia is not the only sector that expects such research to be of great benefit. The research-based health industry is also interested in so-called ‘real-world’ health data to develop new drugs, medical technologies or data-based health applications. While access to medical data is…
Source: Journal of Medical EthicsCategories: Latest Headlines, Oncologists1Tweet-
Sharing patient data from public health care system with private companies? In a recently published paper, we argue that there are good reasons to grant for-profit companies access to patient data for research if certain requirements are met. https://t.co/ozS0Q9w3zo
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Mashup Score: 0Patient data for companies: Patient privacy, private profits and the public good - Journal of Medical Ethics blog - 11 month(s) ago
By Adrian Thorogood and Eva Winkler. Our paper tackles a question that policymakers and public healthcare systems are wrestling with around the world: should for-profit companies be given access to medical data derived from patients for research? In public healthcare systems, medical data is generated as part of the routine care of patients, and through […]Read More…
Source: Journal of Medical Ethics blogCategories: Latest Headlines, Oncologists1Tweet-
See also our blog post: https://t.co/OtZXa2Uti7
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In #DeliberativeForums with German cancer and RD patients, we developed a concept for implementing #PatientInvolvement in governance of @GHGA_DE (German node of @EGAarchive), which can be adopted by other #omicsdata infrastructures! Out now @ZENODO_ORG: https://t.co/yUI23JvQY1 https://t.co/DYWL89RhoR