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Mashup Score: 0Running for Rare - 4 year(s) ago
Alone we are rare. Together we are strong.(R)
Source: Rare Action NetworkCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 4Running for Rare - 4 year(s) ago
Alone we are rare. Together we are strong.(R)
Source: Rare Action NetworkCategories: Latest Headlines, Rare DiseaseTweet-
Interested in learning more about #NORD's signature charity running program-#Running4Rare? Runners are paired with rare community members to raise awareness for #rarediseases while fundraising to support #undiagnosed patients. More: https://t.co/NETGqZnqYB https://t.co/3Ge0JfF5X2
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Mashup Score: 3Running for Rare - 4 year(s) ago
Alone we are rare. Together we are strong.(R)
Source: Rare Action NetworkCategories: Latest Headlines, Rare DiseaseTweet-
Interested in learning more about #NORD's signature charity running program-#Running4Rare? Runners are paired with rare community members to raise awareness for #rarediseases while fundraising to support #undiagnosed patients. More: https://t.co/NETGqZnqYB https://t.co/YfcVvy5Xqn
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Mashup Score: 2Running for Rare - 4 year(s) ago
Alone we are rare. Together we are strong.(R)
Source: Rare Action NetworkCategories: Latest Headlines, Rare DiseaseTweet-
Interested in learning more about #NORD's signature charity running program-#Running4Rare? Runners are paired with rare community members to raise awareness for #rarediseases while fundraising to support #undiagnosed patients. More: https://t.co/NETGqZnqYB https://t.co/gsRondULka
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Mashup Score: 2Home Page - Undiagnosed Rare Disease Registry - 4 year(s) ago
Undiagnosed Rare Disease Registry registry powered by NORD platform.
Source: undiagnosed.iamrare.orgCategories: Latest Headlines, Rare DiseaseTweet-
Drive #undiagnosed research forward! Enroll in the #NORD Undiagnosed Rare Disease Registry: https://t.co/dbQIciAnD5 #medicalmystery
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Mashup Score: 1Head of the Herd: Emile Najm, KAT6A Foundation - NORD (National Organization for Rare Disorders) - 4 year(s) ago
At the head of the herd is… Emile Najm, Chief Executive Officer, KAT6A Foundation Emile most frequently checks his… Facebook account Emile advocates for those living with… A rare syndrome resulting from a mutation in the KAT6A gene. Emile is located in… West Nyack, New York How Emile got here… Emile Najm’s son was diagnosed with Read more >
Categories: Latest Headlines, Rare DiseaseTweet-
New blog entry - #HeadOfTheHerd w/ Emile Najm, Chief Executive Officer, @KAT6Afoundation! Emile remains hopeful by setting up & working on meaningful goals to cure the #KAT6A #syndrome. The hardest years were those when my son was #undiagnosed. Read more: https://t.co/NIg4hgKkRl https://t.co/X2Lk8j58pS
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Mashup Score: 0Home Page - Undiagnosed Rare Disease Registry - 4 year(s) ago
Undiagnosed Rare Disease Registry registry powered by NORD platform.
Source: undiagnosed.iamrare.orgCategories: Latest Headlines, Rare DiseaseTweet-
NORD (@rarediseases) is empowering families with #undiagnosed medical conditions to move research forward with the Undiagnosed #RareDisease Registry. Learn more https://t.co/dbQIciAnD5
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Interested in learning more about #NORD's signature charity running program-#Running4Rare? Runners are paired with rare community members to raise awareness for #rarediseases while fundraising to support #undiagnosed patients. More: https://t.co/NETGqZnqYB https://t.co/ly465BEmoQ