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Mashup Score: 2Running for Rare - 11 month(s) ago
Running for Rare Full Menu Through Running for Rare, NORD’s signature charity running program, runners join together with community partners to raise awareness for rare diseases while fundraising. This special team is made up of passionate and committed individuals seeking to make a meaningful difference for the rare disease community. The funds…
Source: Rare Action NetworkCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0Running for Rare… Anywhere! | Running for Rare - 1 year(s) ago
Running for Rare Full Menu Through the satellite program, runners from anywhere across the globe are invited to join NORD’s Charity Running Team in any race of their choosing – marathon, 5K, wheelchair race, cycling, walking, climbing, or even an Iron Man, all while raising funds for rare diseases. Runners can choose to participate in an event solo or create…
Source: Rare Action NetworkCategories: Latest Headlines, Rare DiseaseTweet-
Have a resolution to get moving & want to make it more meaningful? Join a walk, run, wheelchair race, & fundraise for NORD through the Running for Rare…Anywhere program. Apply & NORD staff will help you start moving to support those with #RareDiseases. https://t.co/HCZrE3865a https://t.co/L8X6MYmOCn
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Mashup Score: 5Rare Action Network - 3 year(s) ago
The Rare Action Network®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations with tools, training and resources to become effective advocates for rare diseases through national and state based initiatives across the United States. We stand for equitable access to timely diagnosis, treatment […]
Source: Rare Action NetworkCategories: Latest Headlines, Rare DiseaseTweet-
Do you want to become an #advocate for the #RareDisease community, but don't know where to start? Join NORD's @RareAction Network to connect with like-minded individuals to create positive change across the US. Get involved by signing up on our website: https://t.co/vsDHmaLuim https://t.co/oRGKzRTwiI
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Mashup Score: 4Rare Action Network - 3 year(s) ago
The Rare Action Network®, powered by the National Organization for Rare Disorders (NORD), serves to connect and empower a unified network of individuals and organizations with tools, training and resources to become effective advocates for rare diseases through national and state based initiatives across the United States. We stand for equitable access to timely diagnosis, treatment […]
Source: Rare Action NetworkCategories: Latest Headlines, Rare DiseaseTweet-
Do you want to become an #advocate for the #RareDisease community, but don't know where to start? Join NORD's @RareAction Network to connect with like-minded individuals to create positive change across the US. Get involved by signing up on our website: https://t.co/vsDHmaLuim https://t.co/nvG2EV5HYj
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Mashup Score: 0Join Rare Action | Rare Action Network - 3 year(s) ago
Members of the Rare Action Network® are part of 30+ million person community working towards improving the lives of patients with rare diseases. This expansive network enables you to: Connect with other patients, caregivers, and stakeholders, within your state and region through calls, webinars, and in-person meetings Participate in regional and […]
Source: Rare Action NetworkCategories: Latest Headlines, Rare DiseaseTweet-
Are you a member of NORD's @RareAction Network? RAN is the nation's leading advocacy network working to improve the lives of Americans living with #raredisease. Sign up to join the #RareAction Network on our website: https://t.co/jjbhhDVpTn https://t.co/ZPoCh2RmkJ
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Mashup Score: 9Join Rare Action | Rare Action Network - 3 year(s) ago
Members of the Rare Action Network® are part of 30+ million person community working towards improving the lives of patients with rare diseases. This expansive network enables you to: Connect with other patients, caregivers, and stakeholders, within your state and region through calls, webinars, and in-person meetings Participate in regional and […]
Source: Rare Action NetworkCategories: Latest Headlines, Rare DiseaseTweet-
Are you a member of NORD's @RareAction Network? RAN is the nation's leading advocacy network working to improve the lives of Americans living with #raredisease. Sign up to join the #RareAction Network on our website: https://t.co/jjbhhDVpTn https://t.co/iNs1xg4CxA
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Mashup Score: 3Join Rare Action | Rare Action Network - 3 year(s) ago
Members of the Rare Action Network® are part of 30+ million person community working towards improving the lives of patients with rare diseases. This expansive network enables you to: Connect with other patients, caregivers, and stakeholders, within your state and region through calls, webinars, and in-person meetings Participate in regional and […]
Source: Rare Action NetworkCategories: Latest Headlines, Rare DiseaseTweet-
Are you a member of NORD's @RareAction Network? RAN is the nation's leading advocacy network working to improve the lives of Americans living with #raredisease. Sign up to join the #RareAction Network on our website: https://t.co/jjbhhDVpTn https://t.co/M0hvft3aRK
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Mashup Score: 5Join Rare Action | Rare Action Network - 3 year(s) ago
Members of the Rare Action Network® are part of 30+ million person community working towards improving the lives of patients with rare diseases. This expansive network enables you to: Connect with other patients, caregivers, and stakeholders, within your state and region through calls, webinars, and in-person meetings Participate in regional and […]
Source: Rare Action NetworkCategories: Latest Headlines, Rare DiseaseTweet-
Are you a member of NORD's @RareAction Network? RAN is the nation's leading advocacy network working to improve the lives of Americans living with #raredisease. Sign up to join the #RareAction Network on our website: https://t.co/jjbhhDVpTn https://t.co/mq75WrPLtl
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Mashup Score: 0Join Rare Action | Rare Action Network - 3 year(s) ago
Members of the Rare Action Network® are part of 30+ million person community working towards improving the lives of patients with rare diseases. This expansive network enables you to: Connect with other patients, caregivers, and stakeholders, within your state and region through calls, webinars, and in-person meetings Participate in regional and […]
Source: Rare Action NetworkCategories: Latest Headlines, Rare DiseaseTweet-
Are you a member of NORD's @RareAction Network? RAN is the nation's leading advocacy network working to improve the lives of Americans living with #raredisease. Sign up to join the #RareAction Network on our website: https://t.co/jjbhhDVpTn https://t.co/4uZuyNht9S
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Mashup Score: 1Running for Rare - 4 year(s) ago
Alone we are rare. Together we are strong.(R)
Source: Rare Action NetworkCategories: Latest Headlines, Rare DiseaseTweet-
Interested in learning more about #NORD's signature charity running program-#Running4Rare? Runners are paired with rare community members to raise awareness for #rarediseases while fundraising to support #undiagnosed patients. More: https://t.co/NETGqZnqYB https://t.co/noslfdI6rI
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Feeling inspired by #GlobalRunningDay? Join #Running4Rare! Run with us in one of our signature marathons or race on your own. Either way, building friendships and a family-like atmosphere is what takes us to the finish line every year! To join us, visit https://t.co/P6mk3uhWiu https://t.co/0liHA2dSDo