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Mashup Score: 1Store - NORD (National Organization for Rare Disorders) - 1 year(s) ago
Copyright ©2021 NORD – National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical…
Categories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0Patient Assistance Programs, Medication Specific Assistance Programs - NORD (National Organization for Rare Disorders) - 1 year(s) ago
Information about NORD Patient Assistance Programs and Medication Specific Assistance Programs.
Categories: Latest Headlines, Rare DiseaseTweet-
One of NORD's new Patient Assistance Programs, The Hemophilia Emergency Relief Program, is designed to provide limited assistance to eligible individuals in such circumstances. For more information, email Hemophilia@rarediseases.org. More NORD PAPs: https://t.co/78S6AcaYky https://t.co/iYuUYJDcSr
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Mashup Score: 35 Ways Rare Disease Advocates Made a Difference in 2022 - NORD (National Organization for Rare Disorders) - 1 year(s) ago
The year 2022 marked several significant policy victories for people living with rare diseases, thanks to the tireless dedication of NORD Rare Action Network advocates who worked to ensure lawmakers Read more >
Categories: Latest Headlines, Rare DiseaseTweet-
2022 marked significant policy victories for people living with #RareDiseases, thanks to the dedication of NORD Rare Action Network advocates who worked to ensure lawmakers heard their voices. Read on for highlights: https://t.co/UlSJz5g2Nq
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Mashup Score: 2Rare Disease Day - Share Your Story - NORD (National Organization for Rare Disorders) - 1 year(s) ago
NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.Alone we are rare.Together we are…
Categories: Latest Headlines, Rare DiseaseTweet-
Do you or a loved one have a #RareDisease diagnosis? Share your story with NORD today for the opportunity to be featured in our upcoming campaign for #RareDiseaseDay, which is February 28: https://t.co/laAKCtUP8w https://t.co/V6722txQNO
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Mashup Score: 5My Anniversary Wish for the Rare Disease Community - NORD (National Organization for Rare Disorders) - 1 year(s) ago
Dear Friends, Happy anniversary to us, the rare disease community. Forty years ago today marked a turning point for people living with rare diseases and their families. The Orphan Drug Read more >
Categories: Latest Headlines, Rare DiseaseTweet-
On today's 40th anniversary of the #OrphanDrugAct, NORD is calling on all community members to come together, just as we did 40 years ago, to accelerate the next era of progress. We have the power to shape the future. Together, let's #ReimagineRare: https://t.co/9e8XYeNnfA https://t.co/2KWERG3a6s
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Mashup Score: 4The Orphan Drug Act Turns 40: NORD Celebrates Its Impact on Rare Diseases - NORD (National Organization for Rare Disorders) - 1 year(s) ago
Individuals suffering with rare diseases had very few therapeutic options 40 years ago. But that began to change with the stroke of a pen by then-President Ronald Reagan in January Read more >
Categories: Latest Headlines, Rare DiseaseTweet-
40 years ago the #OrphanDrugAct passed, incentivizing drug companies to put more resources towards research, development & distribution of #RareDisease therapeutics. We celebrate NORD’s own founders & those continuing to advance rare disease advocacy https://t.co/N60yHOq6rU https://t.co/fdHNZyHWKP
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Mashup Score: 1Patient Assistance Programs, Medication Specific Assistance Programs - NORD (National Organization for Rare Disorders) - 1 year(s) ago
Information about NORD Patient Assistance Programs and Medication Specific Assistance Programs.
Categories: Latest Headlines, Rare DiseaseTweet-
NORD's Neurofibromatosis 1 (NF1) PAP offers eligible individuals diagnosed with NF1 support to pay for out-of-pocket healthcare costs directly related to the care & treatment of NF1. For more information, email NF1@rarediseases.org. See more NORD PAPs: https://t.co/78S6AcaYky https://t.co/PSpCUr4mDV
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Mashup Score: 1Rare Disease Day - Submit an Event - NORD (National Organization for Rare Disorders) - 1 year(s) ago
Are you hosting an event this year for Rare Disease Day? Submit it for publication on this website here in order to reach more people and show the impact of everyone’s efforts across the U.S.!Events submitted must be in the United States and can include, but are not limited to: a company’s lunch-and-learn for its employees, a patient organization’s community awareness event, a research symposium,…
Categories: Latest Headlines, Rare DiseaseTweet-
You can host your own event for #RareDiseaseDay! Invite friends & family to join you in supporting the #RareDisease community on February 28. Check out our website for inspiration in the planning of your event & to submit your date for our calendar: https://t.co/PB3ITv5Jg2 https://t.co/DqBIqoeIoH
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Mashup Score: 0Neurology Reviews and NORD Publish Rare Neurological Disease Special Report - NORD (National Organization for Rare Disorders) - 1 year(s) ago
NORD and the editors of Neurology Reviews have once again collaborated to produce a Rare Neurological Disease Special Report to share the latest information with healthcare professionals on topics related Read more >
Categories: Latest Headlines, Rare DiseaseTweet-
NORD & the editors of Neurology Reviews have collaborated to produce a Rare Neurological Disease Special Report, which shares the latest information with healthcare professionals on topics related to #RareDisease diagnosis & treatment. More: https://t.co/pANN4lAbnI
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Mashup Score: 1A Husband’s View on How Motivated Moms Have a Hidden Extra Gear - NORD (National Organization for Rare Disorders) - 1 year(s) ago
By Brian J. Lane Sunday morning. I slept in. It’s 8:30 or maybe 9:30, who the heck knows? It’s a Sunday after all. I roll over and wipe some drool Read more >
Categories: Latest Headlines, Rare DiseaseTweet-
In today's #CommunityStory, Brian shares his view of his wife Aprill's "hidden extra gear" as she parents a child with a #RareDisease diagnosis, serves as a nonprofit Board member & founder, & takes on all of her other roles. Read more on our blog: https://t.co/2ViL8KMqvk https://t.co/wXiMjTj7dT
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Join NORD in preparing to #ShowYourStripes for #RareDiseaseDay on February 28, 2023, with a new item from NORD’s Rare Disease Day store! https://t.co/jDpwOARDlw https://t.co/QetnmfMAYh