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Mashup Score: 1Millions have the same 'bendy body' disease as my daughter. Why isn't the medical profession paying more attention? | CNN - 1 year(s) ago
Hypermobile Ehlers-Danlos syndrome is a connective tissue disorder. When Sarah Lazarus’ daughter was diagnosed with it, she discovered that the majority of cases are going undiagnosed for decades.
Source: CNNCategories: Latest Headlines, RheumatologyTweet
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Mashup Score: 2U.S. Pain Foundation - serving patients with chronic pain - 1 year(s) ago
U.S. Pain Foundation is a 501 (c)3 non-profit organization dedicated to serving those who live with pain conditions and their care providers. We are here to help individuals find resources and inspiration.
Source: U.S. Pain FoundationCategories: Latest Headlines, RheumatologyTweet-
If you live with daily pain, there are support and resources available. You are not alone. Visit https://t.co/rTNKDFcrCf for more information. #together #chronicpain #knowpain #lifewithpain #painmanagement #mentalhealth #chronicillness #nevergiveup #pain #disability https://t.co/q4LCEU8Ded
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Mashup Score: 0
Why having a hard-to-diagnose illness is an edge experience.
Source: www.nytimes.comCategories: Hem/Oncs, Latest HeadlinesTweet-
"Sometimes there’s no escape from becoming your own doctor." With conditions that don’t fit into normal patterns, you — as patient or caregiver — have to choose between competing medical theories and explanations, @DouthatNYT https://t.co/tujRnwXoew? #chronicillness #hcsm
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Mashup Score: 0
Learn about the six traditional forms of Spondyloarthritis include: Ankylosing Spondyloarthritis, Enteropathic arthritis (EnA) Psoriatic arthritis (PsA) Reactive arthritis/Reiter’s syndrome (ReA) Juvenile spondylitis (JSpA) Undifferentiated Spondyloarthritis.
Categories: Latest Headlines, RheumatologyTweet-
Did you know an #AS diagnosis can be delayed up to 9 years? Learn more at https://t.co/w9ahA17n4k #WorldArthritisDay #SpA #JSpA #AS #chronicillness https://t.co/gjO9g2Y8ez
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Mashup Score: 2Battling Our Demons: The Emotional Impact Of Spondyloarthritis - Spondylitis Association of America - Ankylosing Spondylitis - 2 year(s) ago
It is normal to feel depressed or discouraged after being diagnosed with a chronic illness, and oftentimes people struggle with feelings of loss…
Categories: Latest Headlines, RheumatologyTweet-
Stress can negatively impact a person’s emotional well-being. To help reduce emotional stress, it’s important to speak to your healthcare provider. Connect with us. https://t.co/FfgdiVOdyc #WorldMentalHealthDay #chronicillness #spondylitis https://t.co/6xdqdXM1ve
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Mashup Score: 3How to stay motivated while living with a Chronic Illness: By Andrew Roe - Spondylitis Association of America - Ankylosing Spondylitis - 2 year(s) ago
Life can present unforeseen challenges that we must adapt and adjust to maintain a balanced life.
Categories: Latest Headlines, RheumatologyTweet-
How do you stay motivated while managing chronic pain? By keeping your challenges in perspective, & refusing to allow the diagnosis to define you. To learn more visit https://t.co/cHiD5CpdB1 #motivation #motivationmonday #chronicillness #painawarenessmonth #JSpA #SpA #axSpA https://t.co/7v6UZs8ogb
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Mashup Score: 0Family Education Event Registration - Minnesota - 2 year(s) ago
LOCATION: SeaQuest Aquarium TIME: Saturday, September 17 —- 11:00 – 5:00 pm (Registration starts @10:30 am / Aquarium closes @ 5:00 pm) Address: 1595 Highway 36 West, Suite 578, Roseville, MN 55113 Contact: Darlene Shelton – Phone: (573-820-2819) Email: darlene@dannysdose.com
Source: Google DocsCategories: Latest Headlines, Rare DiseaseTweet-
Join @Dannys_dose on 9/17 for a FREE day of fun in Minnesota while learning the important EMERGENCY "Steps to Protection" to be prepared for any occurrence you or your loved ones living with a #RareDisease or #ChronicIllness might face! Register here: https://t.co/vl0moUvLwl
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Mashup Score: 0
Spoon theory can help patients with cancer learn to measure and conserve their energy.
Source: Oncology Nursing NewsCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
Understanding Spoon Theory Is Essential for Oncology Nurses, says Debi Fischer, MSW, BSN, BA, LCSW, RN #oncology #nursing #spoontheory #chronicillness #cancer https://t.co/eNYiJczt7o
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Mashup Score: 1We can wish... Three days without chronic disease - 2 year(s) ago
Imagine working at a job that doesn’t allow you to take a rest. There is no vacation when you’re chronically ill.
Source: CreakyJointsCategories: Latest Headlines, RheumatologyTweet-
RT @globetrotteri: An article for @CreakyJoints called "We can wish… Three days without #ChronicIllness" - https://t.co/NYbHb2YWBe This ar…
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Mashup Score: 3INADEQUATE ASSESSMENT OF PAIN: WHERE A 1-10 PAIN SCALE FALLS SHORT - INvisible Project - 2 year(s) ago
Abbreviated assessments of pain can lead to incomplete treatment, particularly when factors affecting underserved populations aren’t considered
Source: INvisible ProjectCategories: Latest Headlines, RheumatologyTweet-
"To distill the whole experience of pain down to a single number and to determine who gets treated based on the number” leads to inadequate and inequitable treatment plans." To read more of this article, click the link: https://t.co/YOYWRi3xWW #chronicillness #livingwithpain https://t.co/fMaNqPmu4g
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"Millions have the same ‘bendy body’ disease as my daughter. Why isn’t the medical profession paying more attention?" -CNN Read more: https://t.co/vWOTdMD1MP #EDS #edsawareness #hyperflexibility #bendybodydisease #chronicillness #chronicpain https://t.co/lQMRFUeZyS