• Mashup Score: 3
    Regulations.gov - 7 month(s) ago

    Comment Icon Comments Received18 This count refers to the total comment/submissions received on this document, as of 11:59 PM yesterday. For a detailed description on how the displayed comment count is derived, please see the note on the FAQ page. Note: Comments are made on individual documents within the docket. To review other comments, please click on “Browse…

    Source: www.regulations.gov
    Categories: Hem/Oncs, Latest Headlines
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      DarcyBurbage

      RT @NurseChicas: https://t.co/WA00WGiiTm Let’s make a comment about the importance of heat protection standards for workers. Let’s use our…

  • Mashup Score: 0
    Regulations.gov - 7 month(s) ago

    Docket No. FDA–2023–N–2608 for “Cellular, Tissue, and Gene Therapies Advisory Committee; Notice of Meeting; Establishment of a Public Docket; Request for Comments.Advisory Committee Members,Thank for taking time out of your busy lives to advise FDA-CBER on the application for NurOwn. My name is Kevin Robinson. I am 62 years old and a person with ALS (pALS). I was diagnosed with bulbar onset in…

    Source: www.regulations.gov
    Categories: Latest Headlines, Rare Disease
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    • Profile photo of alsadvocacy
      alsadvocacy

      Some observations you don't see everywhere these days... https://t.co/elUSBkwB7O

  • Mashup Score: 0
    Regulations.gov - 8 month(s) ago

    Comment Dear FDA,Thank you for opening this site for public comment. As you know ALS is a very heterogenous and rare disease. Therefore, finding a drug or a treatment strategy that would yield positive results on a broad population is very challenging. Yet, patients are waiting for effective solutions, solutions that would help them overcome the very…

    Source: www.regulations.gov
    Categories: Latest Headlines, Rare Disease
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    • Profile photo of alsadvocacy
      alsadvocacy

      Imo it's worth reading this one very carefully... And then we need to think. Is approval the only path forward? Might there be other paths forward that would actually provide better access and better science than approval? https://t.co/9XuGq12Ptv

  • Mashup Score: 0
    Regulations.gov - 9 month(s) ago

    An official website of the United States Government. What is your comment about? Attach Files You can attach up to 20 files, but each file cannot exceed 10MB. Valid file types include: bmp, docx, gif, jpg, jpeg, pdf, png, pptx, rtf, sgml, tif, tiff, txt, wpd, xlsx, xml. Drop files here or   …

    Source: www.regulations.gov
    Categories: Hem/Onc News and Journals, Latest Headlines
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    • Profile photo of ASTCT
      ASTCT

      ASTCT encourages you to submit your own comments or a letter on the CY 2024 Medicare Physician Fee Schedule (MPFS) Proposed Rule, as it may be beneficial for @CMSGov to hear from multiple commenters: https://t.co/PeG9lVuV3V https://t.co/zgTn587GJH

  • Mashup Score: 0
    Regulations.gov - 9 month(s) ago

    An official website of the United States Government. Attach Files You can attach up to 20 files, but each file cannot exceed 10MB. Valid file types include: bmp, docx, gif, jpg, jpeg, pdf, png, pptx, rtf, sgml, tif, tiff, txt, wpd, xlsx, xml. Drop files here or   Browse… Email Address …

    Source: www.regulations.gov
    Categories: Healthcare Professionals, Latest Headlines
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    • Profile photo of ePatientDave
      ePatientDave

      Here's a screen grab of the comment I just posted here on proposed improvements to the @FTC Health Breach rule. You should say something too, at https://t.co/8aFlXYenp5 @BraveBosom @GraceCordovano @BoltyBoy https://t.co/kdiSN671MD

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