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Mashup Score: 3Live Stream - Rare Impact Awards - NORD's Rare Impact Awards - 12 month(s) ago
Event Overview The National Organization for Rare Disorders (NORD) is proud to welcome you to the 2023 Rare Impact Awards and our 40th Anniversary Celebration. This evening we will be honoring individuals and industry innovators doing remarkable work for the rare disease patient community. Join our host will be Emmy-award winning journalist, Chief White House Correspondent for NBC News and…
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0Live Stream - Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
Event Overview The National Organization for Rare Disorders (NORD) is proud to welcome you to the 2023 Rare Impact Awards and our 40th Anniversary Celebration. This evening we will be honoring individuals and industry innovators doing remarkable work for the rare disease patient community. Join our host will be Emmy-award winning journalist, Chief White House Correspondent for NBC News and…
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
Our 2023 #RareImpactAwards and 40th Anniversary celebration are tomorrow, May 4! And you don't need to be in Washington, DC to tune in. Join our livestream TOMORROW at 7:00pm ET! Join here: https://t.co/Dfj4DcJrOa #RareDiseases #RareDisease https://t.co/xYjHLPCkfg
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Mashup Score: 0Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
The 2023 #LivingRareForum is 1 week away! If you live in the DMV, come join us in person! Otherwise, this event can be attended virtually from home. Connect with other members of the #RareDisease community to share stories, knowledge and joy. Register now: https://t.co/5toKlR24K7 https://t.co/Wnguk0FU6o
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Mashup Score: 2Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
Dressing to the nines to honor #RareDisease innovators at the National Portrait Gallery? Yes, please! In 9 days, slip into your best formal attire and join us in Washington, DC to celebrate NORD's 40th anniversary and #RareImpactAwards honorees. Tickets: https://t.co/5toKlR24K7 https://t.co/8kcP2VTXYh
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Mashup Score: 1Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
Introducing #RareImpactAwards honoree, Shannon Killebrew! A #RareDisease patient and advocate, she founded Shannon's Hope for House Calls and Home Medical Care, a national advocacy group for homebound patients. The Awards are on May 4! Get your ticket: https://t.co/gdSDtcXO9d https://t.co/BFmPAjHJoZ
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Mashup Score: 0Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
Introducing NORD #RareImpactAwards honoree, @sanofi for Xenpozyme™! Xenpozyme™ was approved for patients with acid sphingomyelinase deficiency (#ASMD). Join NORD on May 4 to celebrate our 40th Anniversary the achievements of the #RareDisease community: https://t.co/gdSDtcXO9d https://t.co/TOkh2L8BBJ
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Mashup Score: 0Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
Introducing a 2023 #RareImpactAwards honoree, @Novartis for Vijoice®, the first FDA-approved treatment for #PIK3CA-Related Overgrowth Spectrum (PROS) disorders! Get your tickets to join us in DC at NORD's Rare Impact Awards & 40th Anniversary celebration: https://t.co/gdSDtcXO9d https://t.co/RazhTEC9Jd
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Mashup Score: 1Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
Introducing NORD #RareImpactAwards honoree, Jaime @HerreraBeutler! Beutler used her platform in Congress and now as a private citizen to advocate for funding to support #RareDisease research and treatments. Get your tickets to the Awards today: https://t.co/gdSDtcXO9d https://t.co/YjIBpV6Wf3
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Mashup Score: 5Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
Introducing NORD #RareImpactAwards honoree, Phillip Maderia! Maderia founded NORD’s #RunningForRare program, which has raised $2M+ partnering with runners & the rare community for events like the #BostonMarathon coming up on 4/17. Get your ticket today: https://t.co/gdSDtcXO9d https://t.co/2omCxwGBzB
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Mashup Score: 1Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
Introducing #RareImpactAwards honorees, @CSL & @uniQure_NV, both of whom contributed to the first FDA-approved gene therapy for #HemophiliaB, Hemgenix® Come celebrate 40 years of #RareDisease progress! Get your ticket to NORD's Rare Impact Awards today: https://t.co/nrTgJrZlWv https://t.co/lkNYs13CsT
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We're getting ready to kick off the #RareImpactAwards, live from Washington, DC! Join this celebration of the #RareDisease community and NORD's 40th Anniversary by watching the livestream here, starting in just 30 minutes: https://t.co/Dfj4DcJrOa https://t.co/so3S2KH8y6