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Mashup Score: 0Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 2Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
Introducing #RareImpactAwards honorees, @bluebirdbio! FDA granted Accelerated Approval to SKYSONA, a gene therapy to slow progression of neurologic dysfunction in boys 4-17 with early, active cerebral #adrenoleukodystrophy (CALD). Learn about the Awards: https://t.co/nrTgJrZlWv https://t.co/mrvBcP45iu
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Mashup Score: 2Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
NORD's #RareImpactAwards and 40th Anniversary celebration are just one month away! Join us at the National Portrait Gallery in DC to celebrate four decades of advocacy, education, innovation, and progress. Tickets are going fast, so secure yours today: https://t.co/5toKlR24K7 https://t.co/DGVRu9HcyC
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Mashup Score: 0Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
Introducing NORD #RareImpactAwards honoree, Bernie Williams! Williams is known in the #RareDisease community as a voice, advocate, and champion for patients and families impacted by #IdiopathicPulmonaryFibrosis. Secure your ticket to the Awards today: https://t.co/gdSDtcXO9d https://t.co/mb38tBx4Vi
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Mashup Score: 1Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
We are thrilled to announce Emmy Award-winning @NBCNews journalist, @PeterAlexander will host NORD's 2023 Rare Impact Awards & 40th Anniversary Celebration on May 4 in Washington, DC. Come join us by securing your tickets at https://t.co/yuESVKoIty today! #RareImpactAwards https://t.co/zqgu1G5xr9
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Mashup Score: 1Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
Introducing another of NORD's #RareImpactAwards honorees, @AllianceToCure! The Alliance to Cure Cavernous Malformation raises awareness, drives research and provides support for those affected by #CavernousMalformation. Get your ticket to the Awards now: https://t.co/gdSDtcXO9d https://t.co/oQ1cgUikGG
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Mashup Score: 0Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
Introducing one of NORD's #RareImpactAwards honorees, Abbey S. Meyers! Meyers founded NORD in 1983 after she and other #RareDisease advocates prompted Congress to pass the landmark Orphan Drug Act. Secure your ticket to the Rare Impact Awards today: https://t.co/gdSDtcYlYL https://t.co/tXkk1HUpxY
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Mashup Score: 0Rare Impact Awards - NORD's Rare Impact Awards - 1 year(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
Join us on May 4 in Washington, DC as we reimagine the future of rare during NORD's 40th Anniversary Celebration & Rare Impact Awards. Celebrate NORD’s legacy and recognize the individuals making strides on behalf of people with #RareDiseases. Get tickets: https://t.co/gdSDtcXO9d https://t.co/xyMAA4YO5f
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We're thrilled to welcome @christiangsoul as one of our musical guests at the #RareImpactAwards to share his powerful vocals & inspirational story of overcoming blindness after gene therapy. Get Tickets: https://t.co/gdSDtcXO9d Check out Christian's music! https://t.co/eb0aUZ5ZM5