-
Mashup Score: 2Sara | Leukemia and Lymphoma Society - 3 day(s) ago
Seeing Roses I sold my house ― the one that I’d raised my children in ― and moved to a non-descript rental until I found a new home for the new me, the me who was now an empty nester with newly diagnosed chronic lymphocytic leukemia (CLL). The surroundings were unfamiliar, and all I had to give me comfort and connect me to my former life was the stuff we once used together. I mindlessly fluffed the cushions on the couch that the kids and I snuggled on together to watch a movie while sharing a big bowl of popcorn. I was glad I kept this couch. I straightened the worn armchair where I sat and worked late into the night. It can go, I thought. I sat on the edge of the bed where I had pulled the covers up to my face and cried for hours when I got home after my bone marrow biopsy. I put a sticker on this that said “for yard sale.” I was dividing my life into distinct parts ― things I wanted to hold on to and things I wanted to let go of. I was “Marie Kondo-ing” my life, not just my belon
Source: lls.orgCategories: General Medicine News, Partners & KOLsTweet
-
Mashup Score: 2Nevaeh | Leukemia and Lymphoma Society - 3 day(s) ago
Nevaeh was diagnosed with acute myeloid leukemia (AML+MLLr)+CNS chloromas on February 2, 2022, at 12 months old. Nevaeh first showed symptoms of high fevers, no appetite, and little to no energy. After a trip to the ER, a few tests, and x-rays, I was told Nevaeh had COVID and pneumonia. She was discharged with instructions to go back if her symptoms worsened. The following morning, Nevaeh’s health was declining. I called 911, and she was rushed to the ER and admitted to the pediatric unit. More tests were done, and by the following morning, her pediatrician said we would meet with the oncologist by the end of the day because they had results of blast cells appearing in her blood. A few hours later, the oncologist walked in and gave us the worst news any parent could hear, “I’m sorry but your daughter has leukemia. Leukemia is cancer. Your daughter has cancer. At the rate her cancer is progressing, if she does not begin treatment now, she will not make it. She has chloromas forming in h
Source: lls.orgCategories: General Medicine News, Partners & KOLsTweet
-
Mashup Score: 16Liz | Leukemia and Lymphoma Society - 7 day(s) ago
I’ve been affiliated with The Leukemia & Lymphoma Society (LLS) for many years through the volunteer/fundraising opportunities available to my kids. Little did I know I’d be visiting your website for my own needs once my mom was diagnosed with acute myeloid leukemia (AML) in January 2023. I’m overwhelmed with the advances made by LLS and find your organization to be a tremendous resource filled with hope. I always click on your stories and decide I want to share mine because I feel like my story and that of my mom’s offers just that, HOPE! When the doctor told my mom she would need a bone marrow transplant to survive, they launched a worldwide donor search, and my sister and I both asked to be swabbed. (Our older sister has an autoimmune disease and therefore wasn’t eligible.) We knew the transplant team was looking for a fully matched HLA bone marrow donor and that we, at best, would be a half-match. But we were desperate to do our part. Not too long after, my mom received a call from
Source: lls.orgCategories: General Medicine News, Partners & KOLsTweet
-
Mashup Score: 36Liz | Leukemia and Lymphoma Society - 7 day(s) ago
I’ve been affiliated with The Leukemia & Lymphoma Society (LLS) for many years through the volunteer/fundraising opportunities available to my kids. Little did I know I’d be visiting your website for my own needs once my mom was diagnosed with acute myeloid leukemia (AML) in January 2023. I’m overwhelmed with the advances made by LLS and find your organization to be a tremendous resource filled with hope. I always click on your stories and decide I want to share mine because I feel like my story and that of my mom’s offers just that, HOPE! When the doctor told my mom she would need a bone marrow transplant to survive, they launched a worldwide donor search, and my sister and I both asked to be swabbed. (Our older sister has an autoimmune disease and therefore wasn’t eligible.) We knew the transplant team was looking for a fully matched HLA bone marrow donor and that we, at best, would be a half-match. But we were desperate to do our part. Not too long after, my mom received a call from
Source: lls.orgCategories: General Medicine News, Partners & KOLsTweet
-
Mashup Score: 4LLS | Why We Love Nurses (And You Should Too!) - 9 day(s) ago
We interview Sloane Cammock, CPNP, a nurse with LLS’s Clinical Trial Support Center, about why nurses are key to patients’ wellbeing.
Source: lls.orgCategories: General Medicine News, Partners & KOLsTweet
-
Mashup Score: 7LLS | Why We Love Nurses (And You Should Too!) - 9 day(s) ago
We interview Sloane Cammock, CPNP, a nurse with LLS’s Clinical Trial Support Center, about why nurses are key to patients’ wellbeing.
Source: lls.orgCategories: General Medicine News, Partners & KOLsTweet
-
Mashup Score: 1LLS | Medigap And Pre-Existing Conditions - 18 day(s) ago
By Esteban Zapiain, advocate and blood cancer s urvivor | April 30, 2024 All patients deserve access to quality, affordable health plans. Fortunately, most insurance cannot use patients’ pre-existing conditions against them. But these protections don’t exist for Medicare Supplement Insurance, known as Medigap. In fact, Medigap is one of the only types of health coverage that can charge patients more, or deny them coverage, due to their age or health status. LLS is advocating for policies that would
Source: lls.orgCategories: General Medicine News, Onc News and JournalsTweet
-
Mashup Score: 3Dare to Dream Project: Treating Kids with Blood Cancer | LLS - 25 day(s) ago
We’re daring to improve the quality of life for every child with blood cancer, daring to dream of them thriving. Find out more about the Leukemia and Lymphoma Society!
Source: lls.orgCategories: General Medicine News, Partners & KOLsTweet
-
Mashup Score: 7Amy | Leukemia and Lymphoma Society - 25 day(s) ago
In December 2015, our son, William, started complaining of leg/knee pain. William had always been an active boy, so we figured that he must have just hurt himself doing something physical. After a few days of the pain continuing, my husband thought that maybe it was “growing pains.” We continued to keep an eye on it but weren’t too concerned at this point. By the end of the week, I called our pediatrician for an appointment. William had an exam and bloodwork done. He was also given antibiotics. I got a phone call the next day and was told that William had a viral infection and that the muscle pain was secondary to the infection. If he wasn’t improving within two days, I was to call back. William hadn’t improved, so I called the pediatrician back. At this point, I was told that they wanted to run bloodwork on William again that day and also wanted him seen by an orthopedist. We stopped to have blood drawn on our way to the orthopedic office later that day. William had been in decent spi
Source: lls.orgCategories: General Medicine News, Partners & KOLsTweet
-
Mashup Score: 18Mabel | Leukemia and Lymphoma Society - 28 day(s) ago
My name is Mabel. I was diagnosed with acute myeloid leukemia (AML) in December 2018. I started aggressive treatment at Northside Hospital in Atlanta, GA. The Leukemia & Lymphoma Society (LLS) became my safety net emotionally and financially. Emotionally they were very present and readily available to answer any questions or concerns I had. Financially they helped me cover the costs of my private medical insurance premiums, co-pays, and co-insurance for medication, labs, and tests. I am forever thankful to the LLS because they are able to help people like me.
Source: lls.orgCategories: General Medicine News, Partners & KOLsTweet
Read Sara’s poem, “Seeing Roses” here 👉 https://t.co/UpqwLkS2aW