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Mashup Score: 0Consent to open label extension studies: some ethical issues - 11 month(s) ago
A frequent feature of pharmaceutical research is the open label extension study, in which patients participating in double blind placebo controlled trials of new medications are invited, on completion of the initial trial, to take the study drug for some further period. Patients are openly given the active substance at this stage, regardless of their assignment in the initial trial. Investigators…
Source: Journal of Medical EthicsCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 1
Jeff Nisker describes his personal experience of a diagnosis of advanced prostate cancer and the kindnesses he received from friendly doctors. He claims that this narrative account supports the promotion of Prostate Specific Antigen (PSA) screening for asymptomatic men and impugns statisticians, mistakenly thinking that their opposition to PSA screening derives from concerns about financial cost….
Source: Journal of Medical EthicsCategories: Hem/Oncs, Latest HeadlinesTweet-
Is one narrative enough? Analytical tools should match the problems they address https://t.co/TeOhTXlohK via @NathanHodson & @susan_bewley
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Mashup Score: 9University-age vaccine mandates: reply to Lam and Nichols - 11 month(s) ago
We thank Leo Lam and Taylor Nichols for their response1 to our paper ‘COVID-19 vaccine boosters for young adults: a risk–benefit assessment and ethical analysis of mandate policies at universities’.2 In our paper, we demonstrate that the risk–benefit calculus to mandate boosters for young adults aged 18–29 is a net risk intervention. The authors assert that we have made three inappropriate…
Source: Journal of Medical EthicsCategories: Infectious Disease, Latest HeadlinesTweet-
Finally, not unrelated, here is our (now open access) recently-written rebuttal about why college covid booster mandates are & always were unethical. w/@KrugAlli @sdbaral @ID_ethics @s_keshavjee @TrudoLemmens @VPrasadMDMPH @MartyMakary & @KevinBardosh https://t.co/TOjpykt9We https://t.co/Lf6F20U0aK
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Mashup Score: 0Patient data for commercial companies? An ethical framework for sharing patients’ data with for-profit companies for research - 11 month(s) ago
Background Research using data from medical care promises to advance medical science and improve healthcare. Academia is not the only sector that expects such research to be of great benefit. The research-based health industry is also interested in so-called ‘real-world’ health data to develop new drugs, medical technologies or data-based health applications. While access to medical data is…
Source: Journal of Medical EthicsCategories: Latest Headlines, Oncologists1Tweet-
Sharing patient data from public health care system with private companies? In a recently published paper, we argue that there are good reasons to grant for-profit companies access to patient data for research if certain requirements are met. https://t.co/ozS0Q9w3zo
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Mashup Score: 0Patient data for commercial companies? An ethical framework for sharing patients’ data with for-profit companies for research - 11 month(s) ago
Background Research using data from medical care promises to advance medical science and improve healthcare. Academia is not the only sector that expects such research to be of great benefit. The research-based health industry is also interested in so-called ‘real-world’ health data to develop new drugs, medical technologies or data-based health applications. While access to medical data is…
Source: Journal of Medical EthicsCategories: Latest Headlines, Oncologists1Tweet-
Sharing patient data from public health care system with private companies? In a recently published paper, we argue that there are good reasons to grant for-profit companies access to patient data for research if certain requirements are met. https://t.co/ozS0Q9w3zo
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Mashup Score: 0Patient data for commercial companies? An ethical framework for sharing patients’ data with for-profit companies for research - 11 month(s) ago
Background Research using data from medical care promises to advance medical science and improve healthcare. Academia is not the only sector that expects such research to be of great benefit. The research-based health industry is also interested in so-called ‘real-world’ health data to develop new drugs, medical technologies or data-based health applications. While access to medical data is…
Source: Journal of Medical EthicsCategories: Latest Headlines, Oncologists1Tweet-
Sharing patient data from public health care system with private companies? In a recently published paper, we argue that there are good reasons to grant for-profit companies access to patient data for research if certain requirements are met. https://t.co/ozS0Q9w3zo
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Mashup Score: 3University-age vaccine mandates: reply to Lam and Nichols - 11 month(s) ago
We thank Leo Lam and Taylor Nichols for their response1 to our paper ‘COVID-19 vaccine boosters for young adults: a risk–benefit assessment and ethical analysis of mandate policies at universities’.2 In our paper, we demonstrate that the risk–benefit calculus to mandate boosters for young adults aged 18–29 is a net risk intervention. The authors assert that we have made three inappropriate…
Source: Journal of Medical EthicsCategories: Infectious Disease, Latest HeadlinesTweet-
If I am trash, it's not bc of the 38 quid people are being charged to read our publication, none of which is going to our research group! @bmj_jme wanted to charge us >$3800 for open access but we did not receive any funding for this publication. I'm sorry https://t.co/SWmSLCj0rD https://t.co/odWX19IEJ6 https://t.co/VmlEVBSDsg
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Mashup Score: 2Gillick competence: an inadequate guide to the ethics of involving adolescents in decision-making - 12 month(s) ago
Developmentally, adolescence sits in transition between childhood and adulthood. Involving adolescents in their medical decision-making prompts important and complex ethical questions. Originating in the UK, the concept of Gillick competence is a dominant framework for navigating adolescent medical decision-making from legal, ethical and clinical perspectives and is commonly treated as…
Source: Journal of Medical EthicsCategories: Hem/Oncs, Latest HeadlinesTweet-
Gillick competence: an inadequate guide to the ethics of involving adolescents in decision-making https://t.co/PehL5mIRy6 via @UniMelb researchers
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Mashup Score: 2
Background There is a growing concern about artificial intelligence (AI) applications in healthcare that can disadvantage already under-represented and marginalised groups (eg, based on gender or race). Objectives Our objectives are to canvas the range of strategies stakeholders endorse in attempting to mitigate algorithmic bias, and to consider the ethical question of responsibility for…
Source: Journal of Medical EthicsCategories: Future of Medicine, Latest HeadlinesTweet-
Practical, epistemic and normative implications of algorithmic bias in healthcare artificial intelligence: a qualitative study of multidisciplinary expert perspectives | Journal of Medical Ethics #AI #digitalhealth #medicine #LLMs https://t.co/4RewuIDjuB
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Mashup Score: 3
When a minor research participant reaches the age of majority or the level of maturity necessary to be granted legal decision-making capacity, reconsent can be required for ongoing participation in research or use of health information and banked biological materials. Despite potential logistical concerns with implementation and ethical questions about the trade-offs between maximising respect…
Source: Journal of Medical EthicsCategories: Healthcare Professionals, Latest HeadlinesTweet-
"...reconsent of paediatric participants upon obtaining capacity should be explicit and informed in Canada, and should not be presumed from continued participation alone." Our new paper: Reconsenting paediatric research participants https://t.co/D7udTdcdXh with @BlakeMMurdoch
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