• Mashup Score: 3
    Rare Revolution - 2 year(s) ago

    Rare Revolution – Spring 2022

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    • NORD's Director of Research Programs, Aliza Fink, highlights NORD's approach to capture #PatientGeneratedInformation (PGD) in a way that has been designed by and for patients. Check out her article for @RareRevolutionM here: https://t.co/B91vuTgkjr https://t.co/NaBKbmgg8G

  • Mashup Score: 0
    Rare Revolution - 3 year(s) ago

    Rare Revolution – 01/08/2021

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    • Thrilled to have co-authored this timely article with @TheWoollard about the #COVID19 generation and transitional healthcare of young people with long-term conditions. Published in the latest edition of @RareRevolutionM. Take a look for yourself! https://t.co/BzCVlsMRpL https://t.co/UhmPIOwuj2