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Mashup Score: 1Clinical Trials - Child Neurology Foundation - 7 month(s) ago
Clinical Trials CNF believes Clinical Trials are essential to finding new treatments and offering hope to children with neurologic conditions. Families in our community told us they needed help understanding and finding clinical trials. Clinicians told us they needed resources to help families find and evaluate clinical trials. Our goal is to provide an educational hub with helpful and reliable…
Source: Child Neurology FoundationCategories: Latest Headlines, NeurologyTweet
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Mashup Score: 6Pediatric Epilepsy Research Foundation® Shields Research Grant - Child Neurology Foundation - 1 year(s) ago
2019 PERF™ Shields Research Grant Recipient Alexander Li Cohen, MD, PhD Boston Children’s Hospital Using clinical cohorts and functional connectivity to identify the neuroanatomical basis of atypical face processing in autism spectrum disorders Autism spectrum disorder (ASD) affects 1 in 59 children and is often associated with a heterogeneous mix of disabling and treatment resistant symptoms,…
Source: Child Neurology FoundationCategories: Hem/Oncs, Latest HeadlinesTweet-
RT @ChildNeuroSoc: One week left until applications are due! Don't miss out. PERF Shields: https://t.co/DQOqEgTU1I PERF Elterman: https…
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Mashup Score: 2Child Neurology Foundation - 1 year(s) ago
1 in 5 children will live with a neurologic condition. We are here so they never have to walk alone.
Source: Child Neurology FoundationCategories: Latest Headlines, NeurologyTweet-
Happy #WorldHealthDay! 💙 Our vision of health is a world in which all children affected by neurologic disorders reach their full potential. Today, we celebrate all of the efforts being made to help us achieve this. Learn more: https://t.co/8t8VB8TBu3 #NeuroTwitter #Neurology https://t.co/C0ceqAD6t7
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Mashup Score: 0Donate Online - Child Neurology Foundation - 1 year(s) ago
Your gift improves the lives of children and families living with neurologic conditions, by supporting CNF’s vision of a world where children and their families…
Source: Child Neurology FoundationCategories: Latest Headlines, NeurologyTweet-
Our mission is to serve as a #collaborative center of education, resources, and support for children with neurologic conditions and their families. This #RareDiseaseDay, please help us support our community of #NeuroHeros by donating: https://t.co/M7gfo2HrGi
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Mashup Score: 0Clinical Trials - Child Neurology Foundation - 1 year(s) ago
Clinical Trials CNF believes Clinical Trials are essential to finding new treatments and offering hope to children with neurologic conditions. Families in our community told us they needed help understanding and finding clinical trials. Clinicians told us they needed resources to help families find and evaluate clinical trials. Our goal is to provide an educational hub with helpful and reliable…
Source: Child Neurology FoundationCategories: Latest Headlines, NeurologyTweet-
We know that #clinicaltrials can lead to important breakthroughs in #research and treatment. But so many patients don't know where to start. You can be the guide that helps your patients through the questions they have about clinical trials. Learn more: https://t.co/mqmcUTLlf3
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Mashup Score: 1Duchenne Muscular Dystrophy - Child Neurology Foundation - 1 year(s) ago
Duchenne muscular dystrophy (DMD) is a genetic disease that causes muscles to become weaker and damaged over time. It is the most common muscular dystrophy affecting children.
Source: Child Neurology FoundationCategories: Latest Headlines, NeurologyTweet-
Today marks the last day of #DuchenneMuscularDystrophyAwarenessWeek, so we wanted to leave our community with some information about this condition. Learn a bit about this genetic disease below or read further at our #DisorderDirectory, here: https://t.co/IaKwXF4lec #Duchenne https://t.co/ua2HsX4v9S
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Mashup Score: 0Donate Online - Child Neurology Foundation - 1 year(s) ago
Your gift improves the lives of children and families living with neurologic conditions, by supporting CNF’s vision of a world where children and their families…
Source: Child Neurology FoundationCategories: Latest Headlines, NeurologyTweet-
This week is #NationalHeroWeek! Be a #NeuroHero and donate today! Your donation will do amazing things for the children and families in our community. Donate today: https://t.co/zm6uvueNiv #CNF #ChildNeurology https://t.co/xS9xCh8LAw
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Mashup Score: 0What CNF Families Need To Know About Medicaid Unwinding - Child Neurology Foundation - 1 year(s) ago
What CNF Families Need To Know About Medicaid Unwinding Although the COVID-19 public health emergency is ongoing, some protections are being removed. For our CNF…
Source: Child Neurology FoundationCategories: Latest Headlines, NeurologyTweet-
The continuous enrollment process for Medicaid is coming to an end. See our resource guide to help you understand the process and crucial next steps. Check it out here: https://t.co/mM19QVAcfV #Medicaid #Neurology #PatientInformation #PatientResources #NeuroTwitter https://t.co/YyFjDDNSkw
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Mashup Score: 0Lissencephaly - Child Neurology Foundation - 1 year(s) ago
Lissencephaly is a rare birth defect involving an abnormally smooth brain. Children with lissencephaly can develop severe physical and intellectual disabilities, difficulty feeding and/or seizures. There is no cure. However, there are many options that can help prevent complications from this disorder and improve quality of life.
Source: Child Neurology FoundationCategories: Latest Headlines, NeurologyTweet-
Did you know that January is #NationalBirthDefectsAwarenessMonth? In an effort to raise awareness, we are sharing information about the rare birth defect, lissencephaly. Be a #NeuroHero by sharing this information with your community: https://t.co/suaAogLpe1 #AcrossTheLifespan https://t.co/XD53P2LTc6
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Mashup Score: 0Epilepsy with Myoclonic-Atonic Seizures (Doose Syndrome) - Child Neurology Foundation - 1 year(s) ago
SUMMARY Epilepsy with myoclonic-atonic seizures (EMAS) is a rare form of childhood epilepsy. Seizures are caused by abnormal electrical firings in the brain. In epilepsy, seizures occur repeatedly. Childhood epilepsy begins between 1 month and 18 years of age. EMAS causes 1% to 2% of all cases of childhood epilepsy. In EMAS, myoclonic-atonic seizures are the most common type of seizure….
Source: Child Neurology FoundationCategories: Latest Headlines, NeurologyTweet-
Do you know about this rare form of childhood epilepsy? Check out our #DisorderDirectory and help educate and raise awareness about different #neurologic conditions that affect children and other community members here: https://t.co/hghGzFIU1s https://t.co/HNsa2i27xq
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Advocacy groups play crucial roles in the FDA approval process. Support clinical trials and regulatory advocacy. Learn more: https://t.co/06uaaOtTAP