A live video conversation with FDA Commissioner Stephen Hahn
Please join us for a live video conversation with FDA Commissioner Stephen Hahn to discuss the critical role of health care practitioners during the COVID-19 Pandemic.
Please join us for a live video conversation with FDA Commissioner Stephen Hahn to discuss the critical role of health care practitioners during the COVID-19 Pandemic.
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
The Living Rare, Living Stronger NORD Patient and Family Forum will be a truly patient first event. Through it all, we will maintain our objectives:…
We offer free flights for patients who otherwise couldn’t get to the medical care they need. Children or adults can fly and get the care…
The Living Rare, Living Stronger NORD Patient and Family Forum will be a truly patient first event. Through it all, we will maintain our objectives:…
HomePages Pittsburgh, Pennsylvania | June 28-29, 2024 2024 FOD/OAA Family Forum Registration on Eventbrite – Click Here Wyndham Hotel Reservations – Click Here Scholarship Request…
Welcome to The Canadian MPS Registry website! This website has information about the patient registry and how to join.
Welcome to The Canadian PKU Registry website! This website has in formation on the patient registry and how to join. At this time, to be…
QUINCY, MA, May 1, 2024—The National Organization for Rare Disorders (NORD) announced today that Pamela K. Gavin has been named CEO effective immediately. She
The Living Rare, Living Stronger NORD Patient and Family Forum will be a truly patient first event. Through it all, we will maintain our objectives:…
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…