NORD Breakthrough Summit 2021
NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.
NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.
The Living Rare, Living Stronger NORD Patient and Family Forum will be a truly patient first event. Through it all, we will maintain our objectives:…
HomePages Pittsburgh, Pennsylvania | June 28-29, 2024 2024 FOD/OAA Family Forum Registration on Eventbrite – Click Here Wyndham Hotel Reservations – Click Here Scholarship Request…
Welcome to The Canadian MPS Registry website! This website has information about the patient registry and how to join.
Welcome to The Canadian PKU Registry website! This website has in formation on the patient registry and how to join. At this time, to be…
QUINCY, MA, May 1, 2024—The National Organization for Rare Disorders (NORD) announced today that Pamela K. Gavin has been named CEO effective immediately. She
The Living Rare, Living Stronger NORD Patient and Family Forum will be a truly patient first event. Through it all, we will maintain our objectives:…
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
Check out the Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards agenda.