The Surreal Reality of Being Undiagnosed: Lori’s Story in Honor of Undiagnosed Day – National Organization for Rare Disorders
By Lori W.
By Lori W.
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NIH-led findings point to a biomarker for rare disorders associated with the gene PNPLA6.
Molecular MRD after induction chemotherapy identifies patients with NPM1 AML who benefit from allogeneic transplant in first remission.Patients achieving M
A new medication is offering some ALS patients more hope than ever. It’s actually slowing the disease down in some people like Jessica Morris.
Fundraise smarter not harder. Raise more money effortlessly. With just a few clicks, you can get started quickly. Products can be purchased online and sent…
The Global Paroxysmal Nocturnal Hemoglobinuria (PNH) Patient Registry registry powered by NORD platform.
The mission of the Smith-Magenis Research Foundation is to support research to improve the knowledge and understanding of Smith-Magenis Syndrome (SMS) so that viable therapeutic…
Roger A. Levy, MD, Senior Global Medical Director, GSK Specialty Medicine, discusses Lupus nephritis, a rare kidney disorder.
Wiley will announce that it will shutter 19 more journals, some tainted by fraud.
ELSTON, SHERRIE LYNN, was called home on October 9, 2005. She was 34 years old and had fought a long battle with ALS (Lou Gehrig’s…