Upcoming Program Sessions – IWMF Live Events
View the latest program sessions on the International Waldenstrom’s Macroglobulinemia Foundation’s Live Events platform.
View the latest program sessions on the International Waldenstrom’s Macroglobulinemia Foundation’s Live Events platform.
SACRAMENTO, CA, April 24, 2024—Today, California is one step closer to establishing a Rare Disease Advisory Council (RDAC) to help the 1-in-10 Californians
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
About 85% of rare disorders are genetic. Watch this video, produced by the National Organization for Rare Disorders, to understand the what, when, why, and…
Ilona Williams joined Lydia Dubose of SRNA to discuss her journey with neuromyelitis optica spectrum disorder (NMOSD).
The Living Rare, Living Stronger NORD Patient and Family Forum will be a truly patient first event. Through it all, we will maintain our objectives:…
Before becoming a NORD Running for Rare coach, I was a runner for over 30 years chasing my own goals, and a coach for 10 years…
Each year, UMDF’s Mitochondrial Medicine Conference brings together the best minds in mitochondrial medicine and the patients we serve. With over 700 attendees representing almost…
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
To preview an abridged version of the conference program, please see a link to the program in the “Quick Links” sidebar to the left. Save…