Rare Impact Awards – NORD’s Rare Impact Awards
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
The Living Rare, Living Stronger NORD Patient and Family Forum will be a truly patient first event. Through it all, we will maintain our objectives:…
HomePages Pittsburgh, Pennsylvania | June 28-29, 2024 2024 FOD/OAA Family Forum Registration on Eventbrite – Click Here Wyndham Hotel Reservations – Click Here Scholarship Request…
Experts are hopeful that objective biomarker measures for amyotrophic lateral sclerosis, such as the ones being developed by EverythingALS, will lead to more targeted, effective…
I didn’t know what an ALS advocate did. I wanted to help people living with and or impacted by this 100% fatal disease. Diagnosed with…
Incremental cost-effectiveness ratios were $126,000 and $281,000 per QALY for two simulation models from a societal perspective.
What the Derby 150 trophy will look like, has been swirling in the mind of Susanne Blackinton Juaire’s for the last 25 years.
‘There seems to be a current myth that university members are not responsible to the law, and that somehow the law is the enemy.’
CAMBRIDGE, Mass., May 2, 2024 /PRNewswire/ –Â NeuroSense Therapeutics Ltd. (Nasdaq:…
Help Dutch Bros support the Muscular Dystrophy Association (MDA) and their mission to end ALS! For every drink sold on Friday, May 17, 2024
A southeast Indiana man is getting ready to host a car show this weekend in honor of his grandfather.