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    Shortly after I was diagnosed with Systemic Juvenile Idiopathic Arthritis (SJIA) at age 11, my mother was told by our family’s health insurance plan that coverage for my treatment was denied because arthritis “was not on their list of approved childhood conditions.” From this point on, my childhood was marked by similar barriers to effective treatments – the consequences of which ultimately…

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    • Taking another extended Twitter hiatus. For consulting and advocacy-related inquiries, contact me via my website: https://t.co/BtUuK1KOox. Be well, all.

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    Event Page - 3 year(s) ago

    Add to Calendar 10/1/2021 11:00:00 AM 10/1/2021 4:00:00 PM Patient Advocacy Summit 2021 Virtual, This event is now virtual. MassBio’s Patient Advocacy Summit brings together the patient advocacy community to showcase best practices and cutting-edge examples of how life sciences…

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    • Join me this Friday, 10/1 at @MassBio’s annual Patient Advocacy Summit, where I’ll be participating in a panel on Access and Affordability. Learn more and register: https://t.co/Hpwj2nLEw2 #patientadvocacy https://t.co/GEbeB88ufF

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    Check out our new Advocacy Master Class designed to train patients, caregivers, and citizens in the art of healthcare advocacy. Patients and caregivers hold the power to create change in healthcare and create a better tomorrow for all patients and caregivers by raising their voice!

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    • I believe that patients & caregivers hold the power to move the needle in healthcare & create a better tomorrow by raising their voice. That is why I am thrilled to share that I am faculty for @PatientsRiseNow’s new Master Class! https://t.co/ltEYZOgdhP

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    Swinging the pendulum: lessons learned from the public discourse concerning hydroxychloroquine and COVID-19. Sattui et al. Expert Review of Clinical Immunology 2020 in press Lay Summary Contributed to by: Kristen J. Young, Akpabio Akpabio, Ariella Coler-Reilly, Herman Tam, Alice Lin, Carly Harrison, Emily Sirotich on behalf of the C19-GRA Lay Research Summaries Team Introduction:  The…

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    • RT @rheum_covid: Now available: Plain Language Summary of COVID-19 and Hydroxychloroquine https://t.co/v7unv2WWb2 Other Plain Language Su…

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    Action Center - 4 year(s) ago

    Take action today – use the resources here to learn who your elected officials are, what opportunities we have to advocate from the comfort of your own home, federal and state legislation, and more!

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    • RT @StevenSchultzAF: MA Advocates can take action on this important bill by visiting: https://t.co/z54FNCPsvB #steptherapy #S2843 #Advocate…