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Mashup Score: 6Rare Impact Awards - NORD's Rare Impact Awards - 6 day(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: rareimpact.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 6Rare Impact Awards - NORD's Rare Impact Awards - 7 day(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: rareimpact.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 13Vermont Rare Disease Advocates Celebrate Passage of New Law Bringing Step Therapy Reform - National Organization for Rare Disorders - 7 day(s) ago
NORD and its Rare Action Network Advocates commend Vermont’s elected officials for prioritizing the needs of 1 in 10 Vermonters living with rare diseases; new
Source: rarediseases.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 6Rare Impact Awards - NORD's Rare Impact Awards - 7 day(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: rareimpact.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 1
This year’s conference will celebrate the 25th anniversary of the founding of the KDA. As always, the conference will provide a venue for patients, families, doctors and researchers to meet and share information on Kennedy’s Disease, living with it, and research toward a cure. Wh ile in-person attendance is highly encouraged, we know it’s not possible for everyone. So we are also offering a virtual option for those who want to view the live stream of conference presentations. Conference will be held at
Source: kennedysdisease.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 4#duradash - 8 day(s) ago
Raise awareness & raise funds for spinal CSF leak education and research via the Spinal CSF Leak Foundation! #becauseyourduramaters
Source: duradash.causevox.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 3
May 21, 2024 — The National Organization for Rare Disorders (NORD), in partnership with the Tyler James Abizeid Foundation and the MMIHS Foundation, announces
Source: rarediseases.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 6Rare Impact Awards - NORD's Rare Impact Awards - 9 day(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: rareimpact.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 9Protecting Patients in State-Regulated Insurance - National Organization for Rare Disorders - 10 day(s) ago
Short-Term, Limited-Duration Health Plans
Source: rarediseases.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 6Rare Impact Awards - NORD's Rare Impact Awards - 11 day(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: rareimpact.orgCategories: General Medicine News, Rare DiseaseTweet
We're thrilled to announce the 2024 NORD #RareImpactAwards Honorees! These stars have each made incredible advancements on behalf of the #RareDisease community, and we look forward to celebrating them this June in Los Angeles! Meet the Honorees: https://t.co/84e8JD60eq https://t.co/PcN32KT8D7