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Mashup Score: 2‘It’s a vote for hope’: first gene therapy for muscular dystrophy nears approval, but will it work? - 11 month(s) ago
The FDA’s decision, expected this month, follows several setbacks and delays and will pose difficult choices for the families of children with Duchenne muscular dystrophy.
Source: www.nature.comCategories: Genetics, Latest HeadlinesTweet
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Mashup Score: 5Cells, Not DNA, Are The Master Architects Of Life | NOEMA - 11 month(s) ago
Far from being a blueprint for an organism, genes are mere tools used by life’s true expert builders: cells.
Source: NOEMACategories: Genetics, Latest HeadlinesTweet-
A shift in our understanding of how we are made and who we are is underway: Genes, rather than determining every detail of biology, are integrated into the activity of cells. https://t.co/pKQgA8RSgS
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Mashup Score: 0Rich Horgan spearheaded a gene therapy for his brother. The trial ended in tragedy, but the work continues for more patients - 11 month(s) ago
Rich Horgan’s quest to create a custom gene therapy for his brother, Terry, ended in tragedy. But Horgan doesn’t believe it’s the end of the story. Terry, a 27-year-old patient with Duchenne muscular dystrophy, died last October just eight days after receiving the therapy in a clinical trial in which
Source: Endpoints NewsCategories: Genetics, Latest HeadlinesTweet-
After his brother Terry Horgan’s death, Rich Horgan intends to continue developing custom gene therapies that could benefit other people with rare diseases. https://t.co/0ckYu3dK25
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Mashup Score: 1
The Parliamentary Assembly of the Council of Europe this week dived in to deeply rooted discrimination and rights issues, discussing core values on which the Co
Source: The European Times NewsCategories: Genetics, Latest HeadlinesTweet-
The concept of ‘unsound mind’ has its roots in eugenic thinking and has supported discrimination against people w/ disabilities. Marius Turda argues, “it is therefore highly problematic to continue to use this expression in the Convention on Human Rights.” https://t.co/uGvVOg0xXi
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Mashup Score: 1What Can Feminists Make of the Eugenicist History of Abortion? - 11 month(s) ago
How free is the choice to have an abortion when disability is imagined to mean the end of potential?
Source: Minnesota Women's PressCategories: Genetics, Latest HeadlinesTweet-
Rather than using the history of abortion and eugenics to restrict abortion, we should interrogate the lingering ties between abortion and eugenics and ask ourselves: How can reproductive justice also be disability justice? https://t.co/YIkqTTi27R
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Mashup Score: 2Sought Out by Science, and Then Forgotten - 11 month(s) ago
Four decades ago, medical researchers reached out to ailing families in Colombia for insights into Huntington’s disease. Scientists are just now following up, hoping it’s not too late.
Source: www.nytimes.comCategories: Genetics, Latest HeadlinesTweet-
40 years ago, medical researchers contacted ailing families in Colombia that hold clues to genetic modifiers of, and potential treatments for, Huntington’s disease. Yet they remain cut off from experimental treatments, genetic counseling, and medical care. https://t.co/Zhn38c9pY2
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Mashup Score: 2
Researchers are inching closer to creating human eggs and sperm in the lab that carry a full complement of anyone’s DNA. It could revolutionize fertility treatment and raises huge ethical questions.
Source: NPRCategories: Genetics, Latest HeadlinesTweet-
Commenting on in-vitro gametogenesis (making human eggs and sperm in the lab from any cell in a person's body), Michele Goodwin said, "So many ethical questions are yet to be unpacked." https://t.co/pIiBE7C5bF
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Mashup Score: 4Why oppose heritable genome editing? - 11 month(s) ago
Hear from scholars and activists on why they oppose heritable genome editing. Find image descriptions for the video here: https://www.geneticsandsociety.org/…
Source: YouTubeCategories: Genetics, Latest HeadlinesTweet-
Why oppose heritable genome editing? “It upholds white supremacy and ableism. It will wipe out and devalue people like me.” –– Alice Wong, Founder & Director, Disability Visibility Project @SFdirewolf https://t.co/xcSjHuXInw https://t.co/nqoqR10Irz
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Mashup Score: 0Scientists Unveil a More Diverse Human Genome - 11 month(s) ago
The “pangenome,” which collated genetic sequences from 47 people of diverse ethnic backgrounds, could greatly expand the reach of personalized medicine.
Source: www.nytimes.comCategories: Genetics, Latest HeadlinesTweet-
A new, more accurate, and inclusive edition of our genetic code could help improve personalized medicine for people from a wider range of racial + ethnic backgrounds. The project raises questions about control over genomic data from marginalized groups. https://t.co/0YQAegeGkZ
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Mashup Score: 1
Françoise Baylis shares the 5 best books on genetic engineering and designer babies. Have you read The Mutant Project?
Source: ShepherdCategories: Genetics, Latest HeadlinesTweet-
What are the best books on genetic engineering (including CRISPR) and ‘designer babies’? Find recommended reading from @FrancoiseBaylis here: https://t.co/oTKd70xUSu
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Later this month, the FDA will decide whether to grant a fast-track approval to the first gene therapy for Duchenne muscular dystrophy, which would allow the drug to reach the market before large clinical trials have been completed. https://t.co/FaClwcNb82