There Are Elephants In The Room
A little over a week ago we got the wonderful news that a drug had been approved for ALS in the US. Since then we have had multiple news…
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On the Horizon: A Robot to Assist ALS Patients – SBU News
Interdisciplinary research team using AI, engineering, and knowledge of disease complications to create “CART” STONY BROOK, NY, April 25, 2024 – The debilitating disease of…
Letter by Letter, Steve Gleason Typed His Memoir With His Eyes (Gift Article)
The former N.F.L. player has been living with A.L.S. for more than a decade. Sharing “the most lacerating and vulnerable times” in “A Life Impossible”…
FDA’s biologics chief Peter Marks previews accelerated approval guidance
The FDA’s Center for Biologics Evaluation and Research is planning to release some crucial guidance soon for CRISPR and gene therapy developers on platform technologies,…
ALS Therapy Development Institute
We are the world’s foremost drug discovery lab focused solely on ALS -ALS TDI
Target ALS launches new data portal for research
A nonprofit medical research foundation has launched a data portal designed to help spur scientific breakthroughs for the disease amyotrophic lateral sclerosis (ALS).
Nanoparticles could help patients with MS, ALS, and Parkinson’s
Researchers say it’s possible for nanoparticles to go through the digestive system and deliver medicine directly to the brain tissue.
Pope Francis Receives in Audience Woman with Lateral Amyotrophic Sclerosis – ZENIT – English
“Mrs Zeza” expressed her firm conviction that her faith is stronger than any illness. Her testimony spread widely on the Vatican’s social networks, where her…
Affinia Therapeutics to Present Data on Novel Cardiotropic and BBB-Penetrant AAV Capsids and Preclinical Efficacy and Safety in Genetic Cardiomyopathies and Sporadic ALS at the American Society of Gene & Cell Therapy 2024 Annual Meeting
Affinia Therapeutics announced that new preclinical data on its novel AAV capsids for genetic cardiomyopathies and diseases of the central nervous system such as amyotrophic…
Rare diseases, ALS: approval from the Ministry of Justice to the right to non-verbal communication
The Ministry of Justice officially confirmed the conclusions of the National Council of Notaries on full support for the evolutionary interpretation of the notarial law…
Novel Drug Made of Gold Nanocrystals Appears Safe in Multiple Sclerosis
Small study suggested benefits for MS patients with chronic optic neuropathy