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Mashup Score: 2Every 90, 85, 80, 75 Minutes - 20 day(s) ago
“Every 90 Minutes” has been a tagline that organizations have used for over a decade to describe how often someone dies from ALS in the US. …
Source: als-advocacy.blogspot.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 2This Was Simply Wrong On So Many Levels -- Neuraltus NP001 - 26 day(s) ago
This is the story of a couple of my friends and an investigational drug for ALS — Neuraltus’ NP001. It contains many pieces of ALS his…
Source: als-advocacy.blogspot.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 0This Is What I Had To Say At The FDA Today - 2 month(s) ago
Thank you for the opportunity to speak directly to the FDA today. To have so many different stakeholders in the room together hearing dire…
Source: als-advocacy.blogspot.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 1Let's Stop Shooting Our Cause In The Foot - 4 month(s) ago
Years ago a really smart person came up with the tagline, “Every 90 minutes someone is diagnosed with ALS. Every 90 minutes someone else die…
Source: als-advocacy.blogspot.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 2Every 90, 85, 80, 75 Minutes - 4 month(s) ago
“Every 90 Minutes” has been a tagline that organizations have used for over a decade to describe how often someone dies from ALS in the US. …
Source: als-advocacy.blogspot.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 1Holding Hope Hostage - 7 month(s) ago
Hope. It’s so important to families dealing with ALS. It’s what keeps many of them going. You hope for a better day tomorrow. You hope …
Source: als-advocacy.blogspot.comCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0People With ALS Deserve Access AND Proof of Efficacy - 7 month(s) ago
Dear Advisory Committee Advisors, FDA Staff, and, yes, Brainstorm Cell Therapeutics Management, As you know from hundreds of other comments,…
Source: als-advocacy.blogspot.comCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 2Holding Hope Hostage - 7 month(s) ago
Hope. It’s so important to families dealing with ALS. It’s what keeps many of them going. You hope for a better day tomorrow. You hope …
Source: als-advocacy.blogspot.comCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0People With ALS Deserve Access AND Proof of Efficacy - 7 month(s) ago
Dear Advisory Committee Advisors, FDA Staff, and, yes, Brainstorm Cell Therapeutics Management, As you know from hundreds of other comments,…
Source: als-advocacy.blogspot.comCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0People With ALS Deserve Access AND Proof of Efficacy - 8 month(s) ago
Dear Advisory Committee Advisors, FDA Staff, and, yes, Brainstorm Cell Therapeutics Management, As you know from hundreds of other comments,…
Source: als-advocacy.blogspot.comCategories: Latest Headlines, Rare DiseaseTweet
A trip down memory lane... Every 90 minutes in the US is (and has been for a long time) wrong. https://t.co/JJ2Ge83wY4 Every time an organization quotes every 90 minutes, it challenges its credibility on a lot of things.