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Mashup Score: 4Rare Disease Cures Accelerator-Data and Analytics Platform 2021 Virtual Workshop Registration - 3 year(s) ago
State/Province Country Time Zone
Source: onlinexperiences.comCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 7Rare Disease Cures Accelerator-Data and Analytics Platform 2021 Virtual Workshop Registration - 3 year(s) ago
State/Province Country Time Zone
Source: onlinexperiences.comCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0
Patients and caregivers should be included as equal partners in the drug development process, particularly for rare conditions where limitations on what we know about a disease may exist. Rare disease nonprofit organizations can drive research and data collection efforts that may be leveraged to guide researchers toward meaningful outcomes and patient-centric clinical trial designs. Join us to…
Source: Zoom VideoCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 8
Patients and caregivers should be included as equal partners in the drug development process, particularly for rare conditions where limitations on what we know about a disease may exist. Rare disease nonprofit organizations can drive research and data collection efforts that may be leveraged to guide researchers toward meaningful outcomes and patient-centric clinical trial designs. Join us to…
Source: Zoom VideoCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 3
Patients and caregivers should be included as equal partners in the drug development process, particularly for rare conditions where limitations on what we know about a disease may exist. Rare disease nonprofit organizations can drive research and data collection efforts that may be leveraged to guide researchers toward meaningful outcomes and patient-centric clinical trial designs. Join us to…
Source: Zoom VideoCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0
Patients and caregivers should be included as equal partners in the drug development process, particularly for rare conditions where limitations on what we know about a disease may exist. Rare disease nonprofit organizations can drive research and data collection efforts that may be leveraged to guide researchers toward meaningful outcomes and patient-centric clinical trial designs. Join us to…
Source: Zoom VideoCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 2
Patients and caregivers should be included as equal partners in the drug development process, particularly for rare conditions where limitations on what we know about a disease may exist. Rare disease nonprofit organizations can drive research and data collection efforts that may be leveraged to guide researchers toward meaningful outcomes and patient-centric clinical trial designs. Join us to…
Source: Zoom VideoCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 8
Patients and caregivers should be included as equal partners in the drug development process, particularly for rare conditions where limitations on what we know about a disease may exist. Rare disease nonprofit organizations can drive research and data collection efforts that may be leveraged to guide researchers toward meaningful outcomes and patient-centric clinical trial designs. Join us to…
Source: Zoom VideoCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 2
The Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP) initiative will allow patient organizations to leverage the data they have collected to accelerate understanding of disease progression, clinical outcome measures and biomarkers for rare diseases. It will increase the efficiency of data analysis, and hopefully expedite treatments for rare diseases individually and…
Categories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0
Natural history studies provide health care professionals and researchers with first-hand information about people living with rare diseases and give insight into how rare diseases present, progress over time and impact patients. Data sharing supports patients by helping the community understand their disease better, which helps improve clinical care and can accelerate the development of new…
Categories: Latest Headlines, Rare DiseaseTweet
Register for the #RDCADAP 2021 Virtual Workshop (9/14/21 - 10am ET)! RDCA-DAP is an @US_FDA-funded initiative w/ the goal of accelerating therapy development across #RareDiseases. Sign-up: https://t.co/XohU2xikOJ Join us as we introduce & demo the platform for the 1st time! https://t.co/MhLuuZsSrU