• Mashup Score: 7
    National Organization for Rare Disorders | NORD - 7 month(s) ago

    NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases

    Source: rarediseases.org
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      The 2023 #NORDSummit has officially concluded! Thank you to our moderators, panelists, attendees, and sponsors for another successful #RareDiseases & #OrphanProducts Breakthrough Summit. Check out https://t.co/RptPreG5v1 for more events and opportunities! https://t.co/HMOKesuPaX

  • Mashup Score: 0
    Lipid Profiles in Children - 7 month(s) ago

    Dr. Mary McGowan, CMO of the Family Heart Foundation explains when it is recommended that children be screened with a lipid profile. 

    Source: CheckRare.com
    Categories: Hem/Onc News and Journals, Latest Headlines
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      CheckRare

      Mary McGowan, MD, chief medical officer of the Family Heart Foundation, explains when it is recommended that children be screened with a lipid profile #checkrare #rarediseases https://t.co/tO8QOCGnBV

  • Mashup Score: 0
    NORD Breakthrough Summit | Rare Disease Conference - 7 month(s) ago

    NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.

    Source: nordsummit.org
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      More #NORDSummit sessions happening next week - on #pediatric treatment development and promising new technologies for #RareDiseases. It's not too late to join us in Washington, DC or virtually on October 16-17! Register now: https://t.co/atVC9JhurQ https://t.co/8FyTbtynlM

  • Mashup Score: 0
    Tatton Brown Rahman Syndrome - 7 month(s) ago

    Jill Kiernan, the executive director of the TBRS Community, a patient advocacy group, explains Tatton Brown Rahman Syndrome.

    Source: CheckRare.com
    Categories: Latest Headlines, Rare Disease
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      CheckRare

      Jill Kiernan explains Tatton Brown Rahman Syndrome #TBRS #checkrare #rarediseases #tattonbrownrahmansyndrome @TBRSCommunity https://t.co/xsLb0kvLDU

  • Mashup Score: 0
    Phish Finder and the Undiagnosed Patient - 7 month(s) ago

    Dr. Kim Moran discusses how UCB is using phish finder programs to help clinicians find undiagnosed patients.

    Source: CheckRare.com
    Categories: Latest Headlines, Rare Disease
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      CheckRare

      Kim Moran, PhD, MBA, Head of US Rare Diseases at UCB, discusses the use of phish finder programs to find undiagnosed patients #checkrare #rarediseases @rarediseasesnet @NIH https://t.co/1REnvNmqVg

  • Mashup Score: 0
    Sarcoidosis Explained - 7 month(s) ago

    Frank Rivera of Stronger Than Sarcoidosis, Sarcoidosis of Long Island, and a patient himself, discusses this rare immunologic condition.

    Source: CheckRare.com
    Categories: Hem/Onc News and Journals, Latest Headlines
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      CheckRare

      Frank Rivera of Stronger Than Sarcoidosis and Sarcoidosis of Long Island, two patient advocacy groups focused on raising awareness and research, discusses the rare disease #checkrare #rarediseases #sarcoidosis @SarcoidosisUK @rarediseasesnet https://t.co/2NGJEUKTL5

  • Mashup Score: 0
    PAH Research Highlights: CHEST 2022 - 7 month(s) ago

    Jean Elwing, MD, of the University of Cincinnati College of Medicine provides an overview of the latest clinical research about PAH presented at CHEST 2022.

    Source: CheckRare.com
    Categories: Hem/Onc News and Journals, Latest Headlines
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      CheckRare

      #PAH is a rare, progressive disorder characterized by high blood pressure in the pulmonary arteries. Dr. Jean Elwing of @UCincyMedicine provides an overview of the latest clinical research presented at CHEST 2022. @LDRTC_USA https://t.co/JSw7jnCl2a #rarediseases #CME https://t.co/c1IQbCtF5V

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