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Mashup Score: 10
Trends in Out-of-Pocket Spending and Laws
Source: rarediseases.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 0Coats Disease - 1 month(s) ago
Elsevier Healthcare Hub | Rare Diseases | Coats Disease
Source: elsevier.healthCategories: General Medicine News, General HCPsTweet
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Mashup Score: 3
Although individual rare diseases may affect only a fraction of the population, collectively, more than 7,000 rare diseases impact 300 million people around the world. Sadly, some patients…
Source: almanac.acehp.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 6Rare Disease Day: Moderna Gets Back to Its Roots - 1 month(s) ago
Even before its RNA vaccine for COVID-19 made Moderna famous, the company’s founders had a vision for treating rare diseases.
Source: www.genengnews.comCategories: General Medicine News, Future of MedicineTweet-
Rare Disease Day: Moderna Gets Back to Its Roots After being diverted by the SARS-CoV-2 pandemic to develop and manufacture COVID-19 vaccines, the mRNA therapeutics company has refocused on advancing #raredisease treatments through the clinic. Learn more: https://t.co/j42OaokwXG https://t.co/Cm26DDs1qW
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Mashup Score: 0
Elsevier Healthcare Hub | Rare Diseases | Chopra-Amiel-Gordon Syndrome
Source: elsevier.healthCategories: General Medicine News, General HCPsTweet
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Mashup Score: 9Working at Alexion - 2 month(s) ago
Browse available job openings at Alexion
Source: careers.alexion.comCategories: General Medicine News, PayerTweet
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Mashup Score: 32Rare disease care in Europe – Gaping unmet needs - 3 month(s) ago
In Europe, which provides its citizens with the highest level of social protection in the world, the needs of rare disease patients remain fundamental…
Source: www.sciencedirect.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 10
A brother and sister diagnosed with the same rare disease had very different outcomes because of a simple test. News4’s Shawn Yancy spoke with a Virginia mother who’s using her voice to raise awareness and give hope to others.
Source: www.nbcwashington.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 0
The FDA approval of pozelimab (Veopoz) makes it the first and only treatment indicated for children and adults with CHAPLE disease.
Source: www.hcplive.comCategories: General Medicine News, General NewsTweet
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Mashup Score: 3Rare Disease Day brings attention to a puzzle lacking pieces | Emory University | Atlanta GA - 3 month(s) ago
Five-year-old Scarlett Alonzo has arginase deficiency, a rare metabolic disorder. Read her story and how she was part of a study testing an enzyme replacement therapy.
Source: news.emory.eduCategories: General Medicine News, Rare DiseaseTweet
New medications can improve and extend the lives of #RareDisease patients, but only if we can afford them. Some states protect patients from high costs better than others. How does your state do? Learn in NORD's State Report Card: https://t.co/QhtmZGZcYQ https://t.co/3cEBLiUoX0