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Mashup Score: 1Wolters Kluwer Health - 2 year(s) ago
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Source: lww.comCategories: Latest Headlines, RheumatologyTweet
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Mashup Score: 1Far From “Normal”: Brenda’s Rare Disease Story - NORD (National Organization for Rare Disorders) - 2 year(s) ago
I’m as “normal” as anyone else. I look completely “normal” (besides being in an orthopedic brace), I act completely “normal,” and my life is completely “normal”. I have been married for 40 years and have two adult children and three grandchildren. I have worked with my husband in his private optometry practice for 20 years and help with the daily care of our 11-year-old grandson. My life is full,…
Categories: Latest Headlines, Rare DiseaseTweet-
#RDDChat22 A7: “I found a team of doctors willing to think outside the box.” #Rare patient Brenda found that her care team relationship improved when her team began thinking outside the box. Read more on NORD's blog: https://t.co/BrxXZyT7MC
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Mashup Score: 3Rare cancers, what level of evidence is needed for drug approval - 2 year(s) ago
Achieving clarity in levels of clinical evidence required by regulatory bodies is still a major obstacle to expediting research in the field
Source: Daily ReporterCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
#ESMOSarcoma22: What is the current thinking on the level of evidence that is sufficient for drug approval in #rare cancers? @casali_pg explains what the research community can do to improve the current scenario 👉https://t.co/Xd4EoQjTVO @_rarecancer #scmsm https://t.co/CBIrLRM2Rw
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Mashup Score: 5Wolters Kluwer Health - 2 year(s) ago
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Source: lww.comCategories: Latest Headlines, RheumatologyTweet-
Groove Sign of Eosinophilic Fasciitis- #diagnosis of a #rare sclerosing #disorder https://t.co/BGbNkV6UZG #RareDisease #rheumatology #RheumTwitter #MedTwitter #autoimmune #inflammation #steroids https://t.co/f6uPiANqol
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Mashup Score: 2Wolters Kluwer Health - 2 year(s) ago
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Source: lww.comCategories: Latest Headlines, RheumatologyTweet-
Esophageal compression- a #rare cause of #weightloss in ankylosing spondylitis https://t.co/1bJ0WHoHrh #rheumatology #immunology #RareDisease #RheumTwitter #MedTwitter https://t.co/uuCWMr5yK0
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Mashup Score: 0Wolters Kluwer Health - 2 year(s) ago
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Source: lww.comCategories: Latest Headlines, RheumatologyTweet-
Osteomyelitis Variolosa -A problem inherited from the past, a diagnostic challenge in contemporary #medicine. https://t.co/5O2jLA6ucX #RheumTwitter #rheumatology #bones #bonedisease #rare #RareDisease #diagnosis #osteomyelitis #infection #medtwitter #Medical #clinical https://t.co/lL6JYEd2j0
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Mashup Score: 2Wolters Kluwer Health - 2 year(s) ago
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Source: lww.comCategories: Latest Headlines, RheumatologyTweet-
Ergotism Masquerading as Systemic #Vasculitis -A case of unforeseen #drug interaction in an #HIV patient. https://t.co/uZiNXyMAKm #rheumatology #immunology #AIDS #migraine #clinical #rare #RareDisease #immunotherapy #medtwitter #Medical #druginduced #AdverseReactions https://t.co/tyNbbkz1TS
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Mashup Score: 5Wolters Kluwer Health - 3 year(s) ago
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Source: lww.comCategories: Latest Headlines, RheumatologyTweet-
"Raccoon Sign"- a #rare form of #systemic amyloidosis with periorbital involvement https://t.co/gqzfJD4782 #immunology #rheumatology #amyloidosis #autoimmune #autoimmunedisease #MedTwitter #RheumTwitter https://t.co/s9NAtbgCqh
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Mashup Score: 4Wolters Kluwer Health - 3 year(s) ago
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Source: lww.comCategories: Latest Headlines, RheumatologyTweet-
Onycholysis—An Uncommon Finding in #Kawasaki Disease https://t.co/EkQo3NuKp1 #kawasakidisease #vasculitis #rare #symptom #clinical #Immunology #autoimmunedisease #rheumatology #RheumTwitter #MedTwitter #diagnosis https://t.co/sWo8XZjxAG
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Mashup Score: 9
Rare Cancer Day is an annual awareness day devoted to shining a light on rare cancers and the issues people living with them face. Spearheaded by the NORD Rare Cancer Coalition™, which is composed of 27 rare cancer-specific member organizations, Rare Cancer Day is observed on September 30 to highlight the challenges patients face and to unify individuals living with rare cancers for awareness and…
Categories: Latest Headlines, Rare DiseaseTweet-
#RareCancerDay is less than a week away! Find out how you can get involved and help NORD and the Rare Cancer Coalition raise awareness for #rare #cancer: https://t.co/yMtuGP4Hc3 https://t.co/etAzqaZTzG
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A #rare cause of Neck and Precordial #pain- Esophageal and Gastric involvement by #BehçetDisease https://t.co/kxMMHYb4l3 #rheumatology #immunology #vasculitis #autoimmune #RheumTwitter #MedTwitter https://t.co/h525areWuG