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Mashup Score: 5
My friend Dorothy (a pseudonym) is in her mid-40s. She loves parties and sharing good food with family and friends. She likes watching musicals and films, going to the ballet and the pantomime, to the pub and to church as well as expressing herself creatively. Whatever she is doing, she enjoys looking stylish and receiving compliments about her appearance. It has not been possible for Dorothy to have a thorough dental examination in her adult life, nor blood pressure checks, women’s health checks or any other preventative health checks. Why? Because she has a severe intellectual disability, and there are few services that provide the adjustments she would need to access preventative healthcare. It is also not possible for her to share her story because she has few clear words, and so I, a friend and former member of her care team, have worked with members of her family to write on her behalf. Dorothy is very wary of unfamiliar situations and people and often finds transitions hard. She
Source: ebm.bmj.comCategories: General Medicine News, PayerTweet
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Mashup Score: 5
My friend Dorothy (a pseudonym) is in her mid-40s. She loves parties and sharing good food with family and friends. She likes watching musicals and films, going to the ballet and the pantomime, to the pub and to church as well as expressing herself creatively. Whatever she is doing, she enjoys looking stylish and receiving compliments about her appearance. It has not been possible for Dorothy to have a thorough dental examination in her adult life, nor blood pressure checks, women’s health checks or any other preventative health checks. Why? Because she has a severe intellectual disability, and there are few services that provide the adjustments she would need to access preventative healthcare. It is also not possible for her to share her story because she has few clear words, and so I, a friend and former member of her care team, have worked with members of her family to write on her behalf. Dorothy is very wary of unfamiliar situations and people and often finds transitions hard. She
Source: ebm.bmj.comCategories: General Medicine News, PayerTweet
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Mashup Score: 5
My friend Dorothy (a pseudonym) is in her mid-40s. She loves parties and sharing good food with family and friends. She likes watching musicals and films, going to the ballet and the pantomime, to the pub and to church as well as expressing herself creatively. Whatever she is doing, she enjoys looking stylish and receiving compliments about her appearance. It has not been possible for Dorothy to have a thorough dental examination in her adult life, nor blood pressure checks, women’s health checks or any other preventative health checks. Why? Because she has a severe intellectual disability, and there are few services that provide the adjustments she would need to access preventative healthcare. It is also not possible for her to share her story because she has few clear words, and so I, a friend and former member of her care team, have worked with members of her family to write on her behalf. Dorothy is very wary of unfamiliar situations and people and often finds transitions hard. She
Source: ebm.bmj.comCategories: General Medicine News, PayerTweet
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Mashup Score: 4
My friend Dorothy (a pseudonym) is in her mid-40s. She loves parties and sharing good food with family and friends. She likes watching musicals and films, going to the ballet and the pantomime, to the pub and to church as well as expressing herself creatively. Whatever she is doing, she enjoys looking stylish and receiving compliments about her appearance. It has not been possible for Dorothy to have a thorough dental examination in her adult life, nor blood pressure checks, women’s health checks or any other preventative health checks. Why? Because she has a severe intellectual disability, and there are few services that provide the adjustments she would need to access preventative healthcare. It is also not possible for her to share her story because she has few clear words, and so I, a friend and former member of her care team, have worked with members of her family to write on her behalf. Dorothy is very wary of unfamiliar situations and people and often finds transitions hard. She
Source: ebm.bmj.comCategories: General Medicine News, PayerTweet
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Mashup Score: 6Talk to me, but rather: talk to each other - 4 month(s) ago
During a yearly routine check-up for my alopecia in a hospital on the other side of the country, a small cancerous mass was discovered on my scalp. The dermatologist assured me it was not an immediate concern, but that it should be removed for investigation within a couple weeks nonetheless, along with an assessment of all the freckles and moles on my body. Since there was no rush, I asked her if it could be removed at my local clinic. This was no problem. She would send a referral to my general practitioner that same day. Within 2 weeks, I would be called to schedule an appointment. Three weeks later, I was still waiting for that call. Although I was not particularly concerned about the mass, it was always in the back of my head since it was discovered. An afterthought ever-so-slowly growing, like the mass itself. My husband was quite concerned from the get-go though, and he urged me to inquire with my practitioner’s office about the referral. The doctor’s assistant on the other side
Source: ebm.bmj.comCategories: General Medicine News, PayerTweet
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Mashup Score: 6Talk to me, but rather: talk to each other - 4 month(s) ago
During a yearly routine check-up for my alopecia in a hospital on the other side of the country, a small cancerous mass was discovered on my scalp. The dermatologist assured me it was not an immediate concern, but that it should be removed for investigation within a couple weeks nonetheless, along with an assessment of all the freckles and moles on my body. Since there was no rush, I asked her if it could be removed at my local clinic. This was no problem. She would send a referral to my general practitioner that same day. Within 2 weeks, I would be called to schedule an appointment. Three weeks later, I was still waiting for that call. Although I was not particularly concerned about the mass, it was always in the back of my head since it was discovered. An afterthought ever-so-slowly growing, like the mass itself. My husband was quite concerned from the get-go though, and he urged me to inquire with my practitioner’s office about the referral. The doctor’s assistant on the other side
Source: ebm.bmj.comCategories: General Medicine News, PayerTweet
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Mashup Score: 6Talk to me, but rather: talk to each other - 4 month(s) ago
During a yearly routine check-up for my alopecia in a hospital on the other side of the country, a small cancerous mass was discovered on my scalp. The dermatologist assured me it was not an immediate concern, but that it should be removed for investigation within a couple weeks nonetheless, along with an assessment of all the freckles and moles on my body. Since there was no rush, I asked her if it could be removed at my local clinic. This was no problem. She would send a referral to my general practitioner that same day. Within 2 weeks, I would be called to schedule an appointment. Three weeks later, I was still waiting for that call. Although I was not particularly concerned about the mass, it was always in the back of my head since it was discovered. An afterthought ever-so-slowly growing, like the mass itself. My husband was quite concerned from the get-go though, and he urged me to inquire with my practitioner’s office about the referral. The doctor’s assistant on the other side
Source: ebm.bmj.comCategories: General Medicine News, PayerTweet
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Mashup Score: 6Talk to me, but rather: talk to each other - 4 month(s) ago
During a yearly routine check-up for my alopecia in a hospital on the other side of the country, a small cancerous mass was discovered on my scalp. The dermatologist assured me it was not an immediate concern, but that it should be removed for investigation within a couple weeks nonetheless, along with an assessment of all the freckles and moles on my body. Since there was no rush, I asked her if it could be removed at my local clinic. This was no problem. She would send a referral to my general practitioner that same day. Within 2 weeks, I would be called to schedule an appointment. Three weeks later, I was still waiting for that call. Although I was not particularly concerned about the mass, it was always in the back of my head since it was discovered. An afterthought ever-so-slowly growing, like the mass itself. My husband was quite concerned from the get-go though, and he urged me to inquire with my practitioner’s office about the referral. The doctor’s assistant on the other side
Source: ebm.bmj.comCategories: General Medicine News, PayerTweet
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Mashup Score: 7How caring for my child with cancer changed my approach to clinical care and research - 5 month(s) ago
I am a clinical psychologist who specialises in helping children with medical illnesses and their families. I am also a mother of twin girls. And in April 2020 my 3-year-old daughter was diagnosed with two different types of cancer. In less than 24 hours I went from being Dr McCarthy, providing psychological services to children in our paediatric hospital, to the mom of a patient with very complex cancer. If you had asked me 3 years ago and if I had a good understanding of what paediatric oncology families go through during treatment, I probably would have answered yes. After living through cancer with my daughter, I now know that I was wrong. There were huge gaps in my knowledge about what it is like to be a parent caregiver and to navigate our healthcare system. What I have learnt about the unseen work of caregivers has changed my work as a clinician and researcher. As a parent caregiver, I quickly learnt how overwhelming around-the-clock care can be. After my daughter’s bone marrow
Source: ebm.bmj.comCategories: General Medicine News, PayerTweet
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Mashup Score: 7How caring for my child with cancer changed my approach to clinical care and research - 6 month(s) ago
I am a clinical psychologist who specialises in helping children with medical illnesses and their families. I am also a mother of twin girls. And in April 2020 my 3-year-old daughter was diagnosed with two different types of cancer. In less than 24 hours I went from being Dr McCarthy, providing psychological services to children in our paediatric hospital, to the mom of a patient with very complex cancer. If you had asked me 3 years ago and if I had a good understanding of what paediatric oncology families go through during treatment, I probably would have answered yes. After living through cancer with my daughter, I now know that I was wrong. There were huge gaps in my knowledge about what it is like to be a parent caregiver and to navigate our healthcare system. What I have learnt about the unseen work of caregivers has changed my work as a clinician and researcher. As a parent caregiver, I quickly learnt how overwhelming around-the-clock care can be. After my daughter’s bone marrow
Source: ebm.bmj.comCategories: General Medicine News, PayerTweet
"Even for a routine dental check-up, Dorothy needs specialist dentistry and requires sedation. We face similar challenges for all of Dorothy’s health issues." #PatientVoices #FreeAccess Link: https://t.co/a3c92fQiEa