-
Mashup Score: 0Abstract Submission - NORD Rare Summit - 11 month(s) ago
Main Point of ContactAll correspondence with NORD, including decision notification, will be through the main point of contact.Company/Organization Affiliation*Main Point of Contact’s Email*Main Point of Contact’s Phone Number*Abstract Author DetailsList all authors (up to 14) in the order they should appear. Please list each author’s last name followed by their first and middle initials,…
Source: NORD Rare SummitCategories: Latest Headlines, Rare DiseaseTweet
-
Mashup Score: 1Speaker Submissions - NORD Rare Summit - 1 year(s) ago
Please submit your application by March 10, 2023 NORD Rare Summit will be held October 16-17 2023 NORD is seeking expert speakers to present on the following topics: Innovation in Accelerating Diagnosis Closing the Gap Between Diagnosis and Clinical Care New Approaches to Patient Centric Clinical Trials The Use of Data in Effective Patient Focused Drug Development The Role of Advocacy in…
Source: NORD Rare SummitCategories: Latest Headlines, Rare DiseaseTweet-
The 2023 #NORDSummit is October 16-17 in Washington, DC, and our speaker submission portal is open through March 10! Don't miss your opportunity to share your perspectives on topics critical to the #RareDisease community. Submit your proposal today: https://t.co/WHuvvceoEj https://t.co/i6EyVFvc0d
-
-
Mashup Score: 0NORD Breakthrough Summit 2022 - 1 year(s) ago
NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.
Source: NORD Rare SummitCategories: Latest Headlines, Rare DiseaseTweet-
Join NORD & stakeholders in the #RareDisease community for the #NORDSummit October 16-17 in Washington, DC. Each year, 900+ participants gather to share updates on research & topics important to the community. Submit your speaker & abstract proposals now: https://t.co/atVC9JhurQ https://t.co/OYiGMLDTBJ
-
-
Mashup Score: 2Highlights from #NORDSummit Session: Mental Health and Rare Cancers - NORD (National Organization for Rare Disorders) - 1 year(s) ago
One of the most popular sessions at NORD’s 2022 Rare Disease and Orphan Products Breakthrough Summit was the session, “Mental Health and Rare Cancers.” Attendees had the opportunity to gain Read more >
Categories: Latest Headlines, Rare DiseaseTweet-
One of the most popular sessions at the 2022 #NORDSummit was, “Mental Health & #RareCancers.” This session allowed attendees the opportunity to gain insights on supporting patients & families struggling with mental health issues. Read more: https://t.co/AgBhbmtIeP https://t.co/pC4NBsZtra
-
-
Mashup Score: 0NORD Rare Disease Summit Gallery - NORD Rare Summit - 2 year(s) ago
About NORD NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services. …
Source: NORD Rare SummitCategories: Latest Headlines, Rare DiseaseTweet-
Reflecting back on this year's #NORDSummit! Check out more photos of our expert speakers and wonderful attendees on the event website: https://t.co/3k40qemSN3 https://t.co/F2em3eAnbg
-
-
Mashup Score: 2Bridging the Gap: Education, Awareness Key to Translating Medical Innovation to Community Health Care in Rare Diseases - 2 year(s) ago
With so many therapies on the horizon, the clinical and patient communities need to be adequately prepared to support them.
Source: CGTlive™Categories: Latest Headlines, Rare DiseaseTweet-
We are pleased to continue highlighting coverage of last month's #NORDSummit & the event's insightful speakers & sessions. Check out @CGT_Live's article on our session, "If We Build It, Will They Come?" More: https://t.co/78Jfn98Z5O https://t.co/etByYSzfL5
-
-
Mashup Score: 0
Data from NORD Breakthrough Summit 2022 support the need for exacerbation prevention among patients with bronchiectasis, a rare chronic condition.
Source: HCPLive®Categories: Latest Headlines, Rare DiseaseTweet-
Findings showed that patients with 2 or more #bronchiectasis exacerbations present at baseline had the greatest number of exacerbations 2 and 4 years later. #NORDSummit #RareDisease https://t.co/g8OdlYJpna
-
-
Mashup Score: 0
Screening for RUSP Conditions NBS programs are regulated and administered at the state level, which allows each program to be customized to fit the state’s specific needs. The federal government Read more >
Categories: Latest Headlines, Rare DiseaseTweet-
#NewbornScreening and #RareDiseases: An Update & Case Study" has concluded, thank you to our moderator and panelists for their insights! #NORDSummit For more NORD resources on this topic, visit our website: https://t.co/YZ40RLRBVn
-
-
Mashup Score: 0
NORD invites you to share your story. Join the individuals and families who have contributed their personal accounts of living with rare diseases. Alone we are rare. Together we are Read more >
Categories: Latest Headlines, Rare DiseaseTweet-
A takeaway from the #NORDSummit plenary, "#NewbornScreening and #RareDiseases: An Update and Case Study" is that sharing your story can influence industry decisions. NORD encourages you to share your story with us and the rare community: https://t.co/jq0v3nNq41
-
-
Mashup Score: 1NORD Breakthrough Summit 2022 - 2 year(s) ago
NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.
Source: NORD Rare SummitCategories: Latest Headlines, Rare DiseaseTweet-
@alsadvocacy If you're looking for a virtual option, you can register at https://t.co/vEDNBWIKqp and select virtual registration! Content will also be available on demand following the event. Hope you're enjoying the #NORDSummit so far!
-
Want to present your research at the 2023 #NORDSummit? Submit your poster abstract on topics including innovative #research, advancing medical education, patient community building and #healthequity! See the full guidelines and submit your research here: https://t.co/cEDta9pAGv https://t.co/Ge4nIwZqyU