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Mashup Score: 3Living Rare Living Stronger featuring the Rare Impact Awards - Living Rare Living Stronger - 1 year(s) ago
The Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards will be a truly patient-centric event. Through it all, we will maintain our objectives: networking, education, inspiration, hope and fun! In 2021, the Rare Impact Awards will return as part of the program and all attendees and their guests are invited to participate.
Source: Living Rare Living StrongerCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0Living Rare Living Stronger featuring the Rare Impact Awards - Living Rare Living Stronger - 1 year(s) ago
The Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards will be a truly patient-centric event. Through it all, we will maintain our objectives: networking, education, inspiration, hope and fun! In 2021, the Rare Impact Awards will return as part of the program and all attendees and their guests are invited to participate.
Source: Living Rare Living StrongerCategories: Latest Headlines, Rare DiseaseTweet-
SAVE THE DATE! NORD’s #RareImpactAwards & #LivingRareForum are on May 4 & May 6, 2023 in Washington, DC. These events bring people together to learn, connect, & honor strides made in the rare community. Lookout for registration opening at https://t.co/9gS7bfYNI5. https://t.co/WDyddAopVh
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Mashup Score: 6
On June 29, 2022, NORD hosted the Living Rare, Living Stronger Patient and Family Forum live in Cleveland, Ohio and simultaneously to the rare disease community virtually across the globe. During the engrossing sessions and inspiring stories, expert speakers were asked questions on key rare disease topics and resources. Due to such an engaged live Read more >
Categories: Latest Headlines, Rare DiseaseTweet-
Do you have more questions after NORD's 2022 #LivingRareForum or about #RareDiseases in general? Check out NORD's newest blog post featuring frequently asked questions from the event. Read more here: https://t.co/ZgoDX8WonE https://t.co/nlKJvI3DE5
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Mashup Score: 3
NORD’s patient centric conference showcased inspiring individuals, expert resources and presentations, and a festive celebration at the Rock and Roll Hall of Fame Cleveland, OH, June 29, 2022 – This week, the National Organization for Rare Disorders (NORD®) hosted the Living Rare, Living Stronger NORD Patient and Family Forum, NORD’s annual family focused conference. 300 Read more >
Categories: Latest Headlines, Rare DiseaseTweet-
ICYMI: NORD’s 2022 #LivingRareForum concluded with the #RareImpact Awards, a celebration of the outstanding individuals and industry innovators benefiting the #raredisease community. https://t.co/8p0ilf9kqg https://t.co/SLUHRwSCcW
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Mashup Score: 1NORD Rare Disease Centers of Excellence - NORD (National Organization for Rare Disorders) - 2 year(s) ago
OverviewThe NORD Rare Disease Centers of Excellence (CoE) Program brings together teams of clinical experts in a nationwide network of cutting-edge facilities, with the goal to provide standards of specialized care and disease management for people living with rare disease and their families.Offering a transformative approach to care, the program addresses an unmet need for collaboration across…
Categories: Latest Headlines, Rare DiseaseTweet-
We are proud to have @edward_neilan (@RareDiseases) speak about NORD's Centers of Excellence initiative which launched in November last year. Find a center or learn more on NORD's website: https://t.co/g5XJoEsdPC #LivingRareForum #RareDiseases
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Mashup Score: 0Living Rare Living Stronger featuring the Rare Impact Awards - Living Rare Living Stronger - 2 year(s) ago
The Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards will be a truly patient-centric event. Through it all, we will maintain our objectives: networking, education, inspiration, hope and fun! In 2021, the Rare Impact Awards will return as part of the program and all attendees and their guests are invited to participate.
Source: Living Rare Living StrongerCategories: Latest Headlines, Rare DiseaseTweet-
The #LivingRareForum is almost over, but the program will be available on-demand for seven days after the conference concludes. Register here: https://t.co/VaaIZ5A6qJ
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Mashup Score: 1What is Hao-Fountain Syndrome - 2 year(s) agoSource: www.usp7.orgCategories: Latest Headlines, PediatricsTweet
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Learning about Hao-Fountain Syndrome @FoundationUSP7 at @RareDiseases #LivingRareForum https://t.co/BT6FPdY6UB https://t.co/GNXIRua4ea
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Mashup Score: 0Living Rare Living Stronger featuring the Rare Impact Awards - Living Rare Living Stronger - 2 year(s) ago
The Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards will be a truly patient-centric event. Through it all, we will maintain our objectives: networking, education, inspiration, hope and fun! In 2021, the Rare Impact Awards will return as part of the program and all attendees and their guests are invited to participate.
Source: Living Rare Living StrongerCategories: Latest Headlines, Rare DiseaseTweet-
Want to follow the #LivingRareForum online today? You can still register to watch the event live or on-demand: https://t.co/VaaIZ5A6qJ
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Mashup Score: 0Registration Type - The NORD Living Rare Forum! - 2 year(s) ago
The NORD Living Rare Forum!.
Source: nord.cventevents.comCategories: Latest Headlines, Rare DiseaseTweet-
Get ready to rock with singer-songwriter @artalexakis of @EverclearBand! Registration to the #LivingRareForum includes a ticket to the #RareImpact Awards, which will be hosted at the @rockhall. Register now to experience this event in-person or virtually: https://t.co/J6BVMilgPK https://t.co/iHoJbDuv6F
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Mashup Score: 2Registration Type - The NORD Living Rare Forum! - 2 year(s) ago
The NORD Living Rare Forum!.
Source: nord.cventevents.comCategories: Latest Headlines, Rare DiseaseTweet-
Get ready to rock with singer-songwriter @artalexakis of @EverclearBand! Registration to the #LivingRareForum includes a ticket to the #RareImpact Awards, which will be hosted at the @rockhall. Register now to experience this event in-person or virtually: https://t.co/J6BVMilgPK https://t.co/mGJvcMhM4R
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SAVE THE DATE! NORD’s #RareImpactAwards & #LivingRareForum are on May 4 & May 6, 2023, in Washington, DC. These events bring people together to learn, connect, & honor strides made in the #RareDisease community. Lookout for registration opening soon at https://t.co/9gS7bfYNI5. https://t.co/1kSfaATk5s