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    BCM Registry : Home - 2 year(s) ago

    Purpose The Purpose of the Registry is to collect data over time from patients with BCM from all over the world. The Registry aims to increase knowledge about: Clinical features of BCM; Natural course of BCM; Long-term outcomes of BCM; And…

    Source: www.bcmregistry.org
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      The @BCM_Families Registry is an online patient registry dedicated to #BlueConeMonochromacy (BCM) that collects and analyzes patients’ personal and clinical data. If you have received a genetic diagnosis of #BCM, join the #BCM Registry! More: https://t.co/YUpYEhs38J #Cure4BCM