• Mashup Score: 2
    Events - 3 year(s) ago

    One of the best ways to connect with other families and people with Williams syndrome, who can provide lifelong friendship and support, is to attend an event. The WSA, with the help of volunteers across the country, hosts a wide variety of events, including educational events, family picnics, walks, fundraising events, and more.

    Source: Williams Syndrome Association
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Next @TheWSA Dual Diagnosis (#WilliamsSyndrome and #Autism) support groups: September 16 at 8pm ET for parents/caregivers of ages 4-18; September 22 at 7pm ET for parents/caregivers of adults. Learn more and register here: https://t.co/0l88TT86xq

  • Mashup Score: 1
    2021 Walks - 3 year(s) ago

    During the month of May, families impacted by Williams syndrome in the US, and around the world gathered to celebrate their children, relatives, and friends with Williams syndrome, increase awareness of this unique genetic condition, and raise the critical funding necessary to provide programs and resources that will create brighter futures. ​

    Source: Williams Syndrome Association
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Join @TheWSA for #Walk4Williams events in 2021! There are a few in-person events scheduled for August into the fall, and their national virtual event is Wednesday, August 28. To learn more, support, and participate: https://t.co/CKDbNlhWUa

  • Mashup Score: 1
    Awareness Month - 3 year(s) ago

    It is only through awareness that we can attract the research interest and funding support that is needed to solve the many unanswered questions we all have. May is “officially” Williams syndrome awareness month, but we work to raise awareness of Williams syndrome 365 days each year…and you can help.

    Source: Williams Syndrome Association
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      For their 2021 awareness month, the @TheWSA is debunking the typical myths about #WilliamsSyndrome, highlighting challenges many individuals and families face, and will provide stories, facts, photos, and videos. Follow them on social media to learn more! https://t.co/56oOp030WQ