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Mashup Score: 15MOGAD Together - 10 month(s) ago
Learn more about MOG antibody disease, connect with others in the rare neuroimmune disorders community, and raise awareness for MOGAD! No matter where you are in the world, we invite you to join us.
Source: wearesrna.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 5Quality of Life Family Camp - 10 month(s) ago
An accessible, medically-safe, family camp for children diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, and TM, and their family members. The camp provides a chance for children with rare neuroimmune disorders and their family members to experience the joys of camp and connect with others who experience the same symptoms and conditions.
Source: wearesrna.orgCategories: General Medicine News, Rare DiseaseTweet-
.@wearesrna SRNA's Quality of Life Family Camp will take place in San Antonio, TX, June 30-July 4! Camp is a fantastic experience for children impacted by rare neuroimmune disorders (ADEM, AFM, #MOGAD, #NMOSD, ON, and TM) and their families. Learn more: https://t.co/lB9VIlcCuD.
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Mashup Score: 1NMOSD Together - 10 month(s) ago
Learn more about Neuromyelitis Optica Spectrum Disorder, connect with others in the rare neuroimmune disorders community, and raise awareness for NMOSD! No matter where you are in the world, we invite you to join us.
Source: wearesrna.orgCategories: General Medicine News, Rare DiseaseTweet-
Learn about Neuromyelitis Optica Spectrum Disorder (#NMOSD), connect with others in the rare neuroimmune disorders community, and raise awareness with @wearesrna! No matter where you are in the world, we invite you to join us: https://t.co/ISQWhSifwT
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Mashup Score: 2A Conversation about Grief and Loss with Lisa McDaniel - 11 month(s) ago
Lisa McDaniel joined Krissy Dilger of SRNA to share about her family’s experience with neuromyelitis optica spectrum disorder (NMOSD).
Source: wearesrna.orgCategories: General Medicine News, Rare DiseaseTweet-
In the second episode of a special @wearesrna "Ask the Expert" podcast series on #grief and #loss, Lisa McDaniel of the @guthyjacksonfdn shares about her family’s experience with #NMOSD. Listen to the full episode with Lisa today at https://t.co/zudOWKj1Ju.
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Mashup Score: 5A Conversation about Grief and Loss with Chris Lopardi - 11 month(s) ago
Chris Lopardi joined Krissy Dilger of SRNA to share about his family’s experience with acute disseminated encephalomyelitis (ADEM).
Source: wearesrna.orgCategories: General Medicine News, Rare DiseaseTweet-
In this first podcast episode of a special series on #grief and #loss, Chris Lopardi of the Miles for Mason Memorial Foundation joined Krissy Dilger of @wearesrna to share about his family’s experience with #ADEM. Listen today: https://t.co/VVU1y0kfBM
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Mashup Score: 1Neurosarcoidosis and Rare Neuroimmune Disorders - 1 year(s) ago
In this “Ask the Expert” episode, SRNA interviewed Dr. Giovanna Manzano about neurosarcoidosis and rare neuroimmune disorders.
Source: wearesrna.orgCategories: General Medicine News, Rare DiseaseTweet-
Krissy Dilger recently interviewed Dr. Giovanna Manzano about #neurosarcoidosis and rare neuroimmune disorders for an episode of the @wearesrna "Ask the Expert" podcast. Listen to it here: https://t.co/GLEnPwxSfP
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Mashup Score: 1Acute Treatments and Rare Neuroimmune Disorders - 1 year(s) ago
SRNA was joined by Drs. John Chen and Elias Sotirchos for a podcast episode titled “Acute Treatments and Rare Neuroimmune Disorders.”
Source: wearesrna.orgCategories: General Medicine News, Rare DiseaseTweet-
Krissy Dilger of @wearesrna was recently joined by Drs. John J. Chen and Elias S. Sotirchos for an “Ask the Expert” podcast episode titled, “Acute Treatments and Rare Neuroimmune Disorders.” Listen to it here: https://t.co/bBnxi1Gv0l
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Mashup Score: 0Dr. Anderson's Fellowship Research - 1 year(s) ago
GG deFiebre was joined by Dr. Monique Anderson for an Ask the Expert podcast to discuss Dr. Anderson’s research on transverse myelitis.
Source: wearesrna.orgCategories: General Medicine News, Rare DiseaseTweet-
GG deFiebre of @wearesrna was joined by Dr. Monique Anderson for an episode of “Ask the Expert: Research Edition" to discuss her research on #TransverseMyelitis. Listen to the podcast and find the transcript here: https://t.co/iHcVVpmnRK
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Mashup Score: 0Social Determinants of Health in Rare Neuroimmune Disorders - 1 year(s) ago
Dr. Elizabeth Wilson joined SRNA for an Ask the Expert podcast on “Social Determinants of Health and Rare Neuroimmune Disorders.”
Source: wearesrna.orgCategories: General Medicine News, Rare DiseaseTweet-
Krissy Dilger of @wearesrna was recently joined by Dr. Elizabeth Wilson for an Ask the Expert podcast on "Social Determinants of Health and Rare #Neuroimmune Disorders." You can view the podcast and transcript here: https://t.co/9dqzIrdncN
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Mashup Score: 02023 RNDS Español - 1 year(s) ago
Un evento educativo para personas con enfermedades neuroimmunes poco frecuentes, así como sus familias, cuidadores y profesionales médicos.
Source: wearesrna.orgCategories: General Medicine News, Rare DiseaseTweet-
¡Únase a @wearesrna el 2 de diciembre en su simposio español sobre trastornos neuroinmunes raros de 2023! Conoce más e inscríbete hoy en https://t.co/vuBWXCpQFC.
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Learn about MOG Antibody Disease (#MOGAD), connect with others in the rare neuroimmune disorders community, and raise awareness with @wearesrna! No matter where you are in the world, we invite you to join us. Learn more and sign up: https://t.co/fZ8FnV1Iaw