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Mashup Score: 1When I Realized Disability Pride Month Is for Me - 10 month(s) ago
“I deserve to be as self-sufficient as everyone else.”
Source: The MightyCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 2When You Have a Rare Disease, You Find Out Who Your Friends Are - 11 month(s) ago
“There are no words to express my appreciation for my family and friends who have stood by me.”
Source: The MightyCategories: Latest Headlines, Rare DiseaseTweet-
"There are no words to express my appreciation for my family and friends who have stood by me." In this article from @TheMightySite, Angelica shares her journey receiving #PKU treatment and the effects it had on the relationships in her life. #PKUStrong https://t.co/skGdr0tvJB
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Mashup Score: 1The Challenges of Being an LGBT+ Spoonie - 11 month(s) ago
“Many queer spoonie folks may even face discrimination from within the LGBT+ community.”
Source: The MightyCategories: Latest Headlines, Rare DiseaseTweet-
"Not a single one of us is 'just' a #spoonie. We are mothers, fathers, husbands, wives, sisters and brothers... We are also queer." In honor of #PrideMonth, check out this piece on @TheMightySite on difficulties faced by #LGBTQ spoonies: https://t.co/GhOCl0fO8U
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Mashup Score: 013 Things ER Staff Should Know About People With Rare Diseases - 12 month(s) ago
“Please don’t assume you know more than me.”
Source: The MightyCategories: Latest Headlines, Rare DiseaseTweet-
"Many people with rare diseases do everything they can to avoid going to the ER. If they’re there, it must be an emergency." What do you wish #EmergencyRoom staff knew about #RareDiseases? We found this list from Erin in @TheMightySite to be spot on. https://t.co/JVstMH8O5j
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Mashup Score: 0Accepting the Truth as a Neurodivergent Zebra - 1 year(s) ago
“It’s my way of processing the reality that I live with both chronic mental and physical disorders through humor and encouragement.”
Source: The MightyCategories: Latest Headlines, RheumatologyTweet-
For all you #Zebras, #Spoonies, and #neurodivergents – this is a must-read! Thank you Shaina for your courage to share something so personal; you are allowing others the opportunity to do the same and not feel alone. https://t.co/b84ulbrEPS #mentalhealth #youarenotalone https://t.co/89t9qS3fym
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Mashup Score: 2
“I did not get accurately diagnosed until the age of 54 with a condition one is born with.”
Source: The MightyCategories: Latest Headlines, RheumatologyTweet-
Many of us living with EDS have so frequently been told we “look fine” and there is nothing to do to help us." -Ellen Lenox Smith The Mighty Read more of this article below: https://t.co/NK7Petlya5 #eds #ehlersdanlossyndrome https://t.co/oZcNpKza20
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Mashup Score: 0Tips on Controlling Inflammation to Help Improve Chronic Pain - 2 year(s) ago
“I gained back control and improved my quality of my life.”
Source: The MightyCategories: Latest Headlines, RheumatologyTweet-
"So many living with medical conditions do not understand that controlling inflammation in the body can help with your overall well-being." -Ellen Lenox Smith, co-director medical cannabis advocacy @US_Pain @TheMightySite #PainWarrior https://t.co/d4nMFtd3vP
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Mashup Score: 4
“We are real, we are trying to learn how to cope, and we sure would like to have others respect this and show compassion instead of doubting us.”
Source: The MightyCategories: Latest Headlines, RheumatologyTweet-
Ellen Lenox Smith, Co-Director of Medical Cannabis Advocacy, writes about finding motivation when living with a chronic illness in this article featured in The Mighty. Read it here https://t.co/A7IUzIh1h5 #painawareness #chronicpain #painsupport https://t.co/ifsESgxbPz
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Mashup Score: 1The Frustration of Living With the Lifelong Consequences of Medical Professionals' Mistakes - 2 year(s) ago
“Another person’s mistake, my lifelong consequences.”
Source: The MightyCategories: Latest Headlines, RheumatologyTweet-
Self-advocacy and/or having a trusted patient advocate is critically important in managing your healthcare as Ellen Lenox Smith, U.S. Pain's Co-director of Medical Cannabis Advocacy, writes in this piece. https://t.co/U6c79DbOoi #painawareness #chronicpain #patientadvocate
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Mashup Score: 4AskMe: We Asked an Expert All of Your Questions About Migraine - 3 year(s) ago
Here are the answers to your burning migraine questions.
Source: The MightyCategories: Latest Headlines, Pain ManagementTweet-
@amfmigraine teamed up with @TheMightySite to bring you more doctor-verified information about migraine. @ThomasBerkMD of AMF’s editorial board answered our community’s recent questions about migraine. Read about migraine location, vertigo and more: https://t.co/7KG82HWzop https://t.co/IwPd9vjHJW
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"That frustration turned into an outpouring of love and a sense of belonging. Pride for who I am and those I am around. I am not a burden, but rather a loved, whole human who deserves connection." Read more on #DisabilityPrideMonth in @TheMightySite: https://t.co/1Ow51zu7h4