• Mashup Score: 5

    Thursday, December 9, 2021; 2:00pm ETThe National Organization for Rare Disorders (NORD®) is pleased to announce a collaboration with the Rare Disease Diversity Coalition (RDDC) on a three-part webinar series discussing the role that health care providers play in addressing health inequity in the rare disease community. The series will explore…

    Tweet Tweets with this article
    • New #webinar: "Health Equity and Rare Disorders” on Thursday, December 9 at 2pm ET. Join #NORD for a three-part #DEI webinar series discussing the role that #HealthCare providers play in addressing #HealthInequity in the #RareDisease community. Register: https://t.co/BZH1GttjxD https://t.co/dAyigQBskQ

  • Mashup Score: 3

    Thursday, December 9, 2021; 2:00pm ETThe National Organization for Rare Disorders (NORD®) is pleased to announce a collaboration with the Rare Disease Diversity Coalition (RDDC) on a three-part webinar series discussing the role that health care providers play in addressing health inequity in the rare disease community. The series will explore…

    Tweet Tweets with this article
    • New #webinar: "Health Equity and Rare Disorders” on Thursday, December 9 at 2pm ET. Join #NORD for a three-part #DEI webinar series discussing the role that #HealthCare providers play in addressing #HealthInequity in the #RareDisease community. Register: https://t.co/BZH1GttjxD https://t.co/FoepajXE2o

  • Mashup Score: 3

    Tuesday, November 30,2021; 2:00pm ET Patient-Focused Drug Development (PFDD) is a process that provides patients and caregivers impacted by a rare disease the opportunity to share their experience with those directly involved in the drug development process. The Rare Disease Cures Accelerator, a Data Analysis Platform (RDCA-DAP®), a collaboration between the National Organization for Rare…

    Tweet Tweets with this article
    • New #webinar: "Patient-Focused Drug Development (PFDD): How RDCA-DAP Can Help” on November 30 at 2:00pm ET. Learn how #RDCADAP can strengthen #PFDD efforts to support life-saving & life-changing outcomes. #NORD @CPathInstitute @FDA @KrabbeConnect Register: https://t.co/mYWhnRE1UD https://t.co/p1B2QWxam4

  • Mashup Score: 2

    Tuesday, November 30,2021; 2:00pm ET Patient-Focused Drug Development (PFDD) is a process that provides patients and caregivers impacted by a rare disease the opportunity to share their experience with those directly involved in the drug development process. The Rare Disease Cures Accelerator, a Data Analysis Platform (RDCA-DAP®), a collaboration between the National Organization for Rare…

    Tweet Tweets with this article
    • New #webinar: "Patient-Focused Drug Development (PFDD): How RDCA-DAP Can Help” on November 30 at 2:00pm ET. Learn how #RDCADAP can strengthen #PFDD efforts to support life-saving & life-changing outcomes. #NORD @CPathInstitute @FDA @KrabbeConnect Register: https://t.co/mYWhnRE1UD https://t.co/h9JjdhEDou

  • Mashup Score: 5

    Thursday, December 9, 2021; 2:00pm ETThe National Organization for Rare Disorders (NORD®) is pleased to announce a collaboration with the Rare Disease Diversity Coalition (RDDC) on a three-part webinar series discussing the role that health care providers play in addressing health inequity in the rare disease community. The series will explore…

    Tweet Tweets with this article
    • New #webinar: "Health Equity and Rare Disorders” on Thursday, December 9 at 2pm ET. Join #NORD for a three-part #DEI webinar series discussing the role that #HealthCare providers play in addressing #HealthInequity in the #RareDisease community. Register: https://t.co/BZH1GttjxD https://t.co/mbz8alG2LF

  • Mashup Score: 1

    Thursday, December 9, 2021; 2:00pm ETThe National Organization for Rare Disorders (NORD®) is pleased to announce a collaboration with the Rare Disease Diversity Coalition (RDDC) on a three-part webinar series discussing the role that health care providers play in addressing health inequity in the rare disease community. The series will explore…

    Tweet Tweets with this article
    • New #webinar: "Health Equity and Rare Disorders” on Thursday, December 9 at 2pm ET. Join #NORD for a three-part #DEI webinar series discussing the role that #HealthCare providers play in addressing #HealthInequity in the #RareDisease community. Register: https://t.co/BZH1GttjxD https://t.co/LZFcH9uTSL

  • Mashup Score: 5

    Tuesday, November 30,2021; 2:00pm ET Patient-Focused Drug Development (PFDD) is a process that provides patients and caregivers impacted by a rare disease the opportunity to share their experience with those directly involved in the drug development process. The Rare Disease Cures Accelerator, a Data Analysis Platform (RDCA-DAP®), a collaboration between the National Organization for Rare…

    Tweet Tweets with this article
    • New #webinar: "Patient-Focused Drug Development (PFDD): How RDCA-DAP Can Help” on November 30 at 2:00pm ET. Learn how #RDCADAP can strengthen #PFDD efforts to support life-saving & life-changing outcomes. #NORD @CPathInstitute @FDA @KrabbeConnect Register: https://t.co/mYWhnRE1UD https://t.co/Usc5hGyoh8

  • Mashup Score: 0

    Tuesday, November 30,2021; 2:00pm ET Patient-Focused Drug Development (PFDD) is a process that provides patients and caregivers impacted by a rare disease the opportunity to share their experience with those directly involved in the drug development process. The Rare Disease Cures Accelerator, a Data Analysis Platform (RDCA-DAP®), a collaboration between the National Organization for Rare…

    Tweet Tweets with this article
    • New #webinar: "Patient-Focused Drug Development (PFDD): How RDCA-DAP Can Help” on November 30 at 2:00pm ET. Learn how #RDCADAP can strengthen #PFDD efforts to support life-saving & life-changing outcomes. #NORD @CPathInstitute @FDA @KrabbeConnect Register: https://t.co/mYWhnRE1UD https://t.co/pe4zV5p9Nc

  • Mashup Score: 1

    Tuesday, November 30,2021; 2:00pm ET Patient-Focused Drug Development (PFDD) is a process that provides patients and caregivers impacted by a rare disease the opportunity to share their experience with those directly involved in the drug development process. The Rare Disease Cures Accelerator, a Data Analysis Platform (RDCA-DAP®), a collaboration between the National Organization for Rare…

    Tweet Tweets with this article
    • New #webinar: "Patient-Focused Drug Development (PFDD): How RDCA-DAP Can Help” on November 30 at 2:00pm ET. Learn how #RDCADAP can strengthen #PFDD efforts to support life-saving & life-changing outcomes. #NORD @CPathInstitute @FDA @KrabbeConnect Register: https://t.co/mYWhnRE1UD https://t.co/RWREmTUsEa

  • Mashup Score: 0

    Tuesday, November 16, 2021 2:30-4:00pm EDT The rare disease community must have a strong voice in our government, in every state across the country! Please join the National Organization for Rare Disorders (NORD®) for a virtual meeting on Project RDAC, an initiative designed to both optimize the efforts of states that have passed Rare Disease Advisory…

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    • You're Invited: Rare Disease Advisory Council (#RDAC) Stakeholders Meeting on November 16 at 2:30pm ET. The meeting will discuss coalition building, operationalizing new RDACs, and the important work being done by existing RDACs. #raredisease Register: https://t.co/tNg3w6zDZk https://t.co/EZwg3r4qQ3