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Mashup Score: 0
Event Overview:It’s no secret that Phase 4 trials are incredibly time consuming, costly, and pose major challenges for sponsors and CROs alike. Whether it’s Long Term Follow Up (LTFU), Rollover, and Observational studies, or Registry and Consumer Health studies, sponsors often struggle to recruit and retain large numbers of participants. They also have difficulties addressing post-marketing…
Source: TalkpointCategories: Future of Medicine, Latest HeadlinesTweet
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Mashup Score: 0RDAC Stakeholders Meeting - 1 year(s) ago
Wednesday, November 16, 2022; 1:00pm ETProject Rare Disease Advisory Council aims to support each state to establish a strong rare disease advisory council (RDAC) and optimize the efforts of states that have RDACs in place to best meet the needs of their state’s rare disease community.Join NORD, members of existing Rare Disease Advisory Councils (RDACs) and rare disease advocates from around the…
Source: TalkpointCategories: Latest Headlines, Rare DiseaseTweet-
On Wednesday, November 16, Rare Disease Advisory Council (#RDAC) stakeholders will meet virtually to share the needs of their state's #RareDisease community. Register now and learn how you can make a difference in your state: https://t.co/P9jOHNfXyb https://t.co/8TgY4h4V4w
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Mashup Score: 0Drug Development for Rare Diseases: A Community Conversation - 2 year(s) ago
Wednesday, July 27, 2022; 1:00pm ET You are invited to a community conversation hosted by NORD® on the drug development process, special challenges with rare diseases, and how patients and patient organizations can get involved. Panelists will discuss the basic steps in drug development, the changing role of patient organizations, and current efforts to accelerate the development of safe,…
Source: TalkpointCategories: Latest Headlines, Rare DiseaseTweet-
Are you interested in exploring the steps in drug development & discovering opportunities to get involved? On July 27, join NORD & a panel of experts for the webinar, “Drug Development for Rare Diseases: A Community Conversation.” Register here: https://t.co/9XZW8vdzZQ https://t.co/dYrtCxUK8c
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Mashup Score: 2
Thursday, May 5, 2022; 2:00pm ETThis webinar, presented as a part of NORD’s RareLaunch™ program, will feature fellow rare nonprofit leaders and governance experts on the importance of a right-sized board as well as strategies for identifying and recruiting potential board members. At the end of this webinar, you will know how to answer the following…
Source: TalkpointCategories: Latest Headlines, Rare DiseaseTweet-
New webinar on May 5 at 2pm ET: All A-Board: How to Identify and Recruit Board Members for Your Rare Nonprofit. Register: https://t.co/1jXSEEWlpd Fellow rare #nonprofit leaders and #governance experts will share strategies for identifying and recruiting potential board members. https://t.co/HCP9OGJplW
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Mashup Score: 0
Thursday, May 5, 2022; 2:00pm ETThis webinar, presented as a part of NORD’s RareLaunch™ program, will feature fellow rare nonprofit leaders and governance experts on the importance of a right-sized board as well as strategies for identifying and recruiting potential board members. At the end of this webinar, you will know how to answer the following…
Source: TalkpointCategories: Latest Headlines, Rare DiseaseTweet-
New webinar on May 5 at 2pm ET: All A-Board: How to Identify and Recruit Board Members for Your Rare Nonprofit. Register: https://t.co/1jXSEEWlpd Fellow rare #nonprofit leaders and #governance experts will share strategies for identifying and recruiting potential board members. https://t.co/uCt0nAoj9A
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Mashup Score: 9Walk in our Shoes: The Experience of Rare Disease Patients - 2 year(s) ago
The National Organization for Rare Disorders (NORD®) is pleased to continue its collaboration with the Rare Disease Diversity Coalition (RDDC) on a three-part webinar series exploring equity in rare disease healthcare. Join us on April 28 for the final event in the series, a discussion with rare disease patients from underserved populations about their experiences living with rare disorders…
Source: TalkpointCategories: Latest Headlines, Rare DiseaseTweet-
New #webinar: "Walk in Our Shoes: The Experience of Rare Disease Patients” on April 28 at 2pm ET. Join #NORD for the final part of our #DEI webinar series exploring #equity in #RareDisease #healthcare. Register: https://t.co/7qcFle1tEo https://t.co/5tBe8EAw0h
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Mashup Score: 1Walk in our Shoes: The Experience of Rare Disease Patients - 2 year(s) ago
The National Organization for Rare Disorders (NORD®) is pleased to continue its collaboration with the Rare Disease Diversity Coalition (RDDC) on a three-part webinar series exploring equity in rare disease healthcare. Join us on April 28 for the final event in the series, a discussion with rare disease patients from underserved populations about their experiences living with rare disorders…
Source: TalkpointCategories: Latest Headlines, Rare DiseaseTweet-
New #webinar: "Walk in Our Shoes: The Experience of Rare Disease Patients” on April 28 at 2pm ET. Join #NORD for the final part of our #DEI webinar series exploring #equity in #RareDisease #healthcare. Register: https://t.co/7qcFldJSMQ https://t.co/cHyal8ZPJZ
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Mashup Score: 1
Thursday, May 5, 2022; 2:00pm ETThis webinar, presented as a part of NORD’s RareLaunch™ program, will feature fellow rare nonprofit leaders and governance experts on the importance of a right-sized board as well as strategies for identifying and recruiting potential board members. At the end of this webinar, you will know how to answer the following…
Source: TalkpointCategories: Latest Headlines, Rare DiseaseTweet-
New webinar on May 5 at 2pm ET: All A-Board: How to Identify and Recruit Board Members for Your Rare Nonprofit. Register: https://t.co/1jXSEEWlpd Fellow rare #nonprofit leaders and #governance experts will share strategies for identifying and recruiting potential board members. https://t.co/HrVtjPJmFk
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Mashup Score: 2
Thursday, May 5, 2022; 2:00pm ETThis webinar, presented as a part of NORD’s RareLaunch™ program, will feature fellow rare nonprofit leaders and governance experts on the importance of a right-sized board as well as strategies for identifying and recruiting potential board members. At the end of this webinar, you will know how to answer the following…
Source: TalkpointCategories: Latest Headlines, Rare DiseaseTweet-
New webinar on May 5 at 2pm ET: All A-Board: How to Identify and Recruit Board Members for Your Rare Nonprofit. Register: https://t.co/1jXSEEWlpd Fellow rare #nonprofit leaders and #governance experts will share strategies for identifying and recruiting potential board members. https://t.co/umPXUvbTAv
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Mashup Score: 1
Thursday, May 5, 2022; 2:00pm ETThis webinar, presented as a part of NORD’s RareLaunch™ program, will feature fellow rare nonprofit leaders and governance experts on the importance of a right-sized board as well as strategies for identifying and recruiting potential board members. At the end of this webinar, you will know how to answer the following…
Source: TalkpointCategories: Latest Headlines, Rare DiseaseTweet-
New webinar on May 5 at 2pm ET: All A-Board: How to Identify and Recruit Board Members for Your Rare Nonprofit. Register: https://t.co/1jXSEEWlpd Fellow rare #nonprofit leaders and #governance experts will share strategies for identifying and recruiting potential board members. https://t.co/wEgdoYnUU1
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WEBINAR: Join us for 'How to Supercharge Real World Evidence Generation in Phase IV Trials'. Experts from Medable, Pluto Health, & @SyneosHealth will talk through how to optimize digital trial solutions in Phase 4 & LTFU studies. Register now: https://t.co/dfNyUwnuMU https://t.co/zU5nd2Ajbt