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Mashup Score: 2Growing stronger every day with his specialized care team - 10 day(s) ago
Shortly after Ernesto’s premature birth, nurses discovered he had cerebral palsy, a condition that affects movement, muscles, and posture. When Ernesto was six months old, his mother, Dalia, brought him to Gillette Children’s Cerebral Palsy Institute, one of the world’s top innovators in clinical care and research for patients like Ernesto. Here, he r eceived an Infant and Toddler Development Evaluation to determine the best comprehensive treatment plan for his unique needs. As experts formed his treatment
Source: madepossible.orgCategories: General Medicine News, PediatricsTweet
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Mashup Score: 1
Physicians at Stanford Medicine developed an innovative way to provide pediatric kidney transplants without immune-suppressing drugs. This two-transplant combination is called a dual immune/solid organ transplant (DISOT) and has been used to treat patients with rare immune diseases. This new transplant method ensures that recipients do not experience immune rejection of their transplanted organ, helping facilitate successful transplants for 8 -year-old Kruz and his 7-year-old sister Paizlee. Both
Source: madepossible.orgCategories: General Medicine News, PediatricsTweet
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Mashup Score: 5Cameron receives the world’s smallest pacemaker - 19 day(s) ago
When pregnant mom, Shakiara, learned that her lupus placed her unborn child at a higher risk of congenital complete heart block, she began to receive weekly fetal checks with her care team. Her baby, Cameron, presented well until 21 weeks, when the exam indicated signs of heart block and within hours, Shakiara was seen in the Fetal Heart Program at Children’s Hospital of Philadelphia (CHOP). In most cases, children born with heart block will eventually require a pacemaker. In addition to heart block,
Source: madepossible.orgCategories: General Medicine News, PediatricsTweet-
Just a few weeks after he was born, Cameron received the world’s smallest pacemaker from @ChildrensPhila to alleviate his heart block and set him up for a healthy future. Today, Cameron is home and on the road to recovery. For more #MomentsMadePossible: https://t.co/vsjOEiJLvG https://t.co/jWHrdeSxiU
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Mashup Score: 2Leo’s remarkable recovery - 24 day(s) ago
Because of a rare condition called Ebstein’s anomaly, Leo was born with a malfunctioning heart. His mother, Jessica, spent the first few weeks of his life consulting with physicians across the country, with some telling her there was no solution. Refusing to accept this answer Jessica kept searching, and soon arrived at Le Bonheur Children’s Hospital with 7-week-old Leo. Here, a cardiologist discovered a rare issue on top of his Ebstein’s anomaly. In most cases, the right side of the heart doesn’t
Source: madepossible.orgCategories: General Medicine News, PediatricsTweet
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Mashup Score: 2Family travels cross-country for life-changing care - 26 day(s) ago
Ester and her husband Samuel were eagerly waiting to discover their baby’s gender when the ultrasound revealed that their baby boy had spina bifida, a condition that prevents the spine from developing correctly. The couple was connected with Timothy M. Crombleholme, MD, Fetal Surgeon at Connecticut Children’s who could perform an in-utero surgery to help correct the condition and give their son a better chance at a healthier life. Ester decided she wanted to proceed, so she, Samuel, and their daughter
Source: madepossible.orgCategories: General Medicine News, PediatricsTweet-
When an ultrasound revealed Thaddeus had spina bifida, his parents traveled across the country to @ctchildrens for care that gave him a chance at a healthier life. Thaddeus is now home in Oregon, enjoying all of life’s moments. More #MomentsMadePossible: https://t.co/eL6MkmKkmB https://t.co/AuNMJONdtO
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Mashup Score: 1Miracle twins with rare heart defects go home healthy - 1 month(s) ago
From a young age, Tracey knew her very rare congenital heart condition would prevent her from safely giving birth. However, she aspired to be a mother, and through in vitro fertilization (IVF) treatment, a gestational surrogate was able to carry her twins. The twins were at high risk of developing heart defects because of Tracey’s condition, and a 12-week ultrasound revealed that both twins, Riley and Emery, would be born with congenital heart defects. Immediately after they were born, the twins were
Source: madepossible.orgCategories: General Medicine News, PediatricsTweet
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Mashup Score: 4A school’s mental health program helps Christian face grief - 1 month(s) ago
Christian had just turned two when his mother tragically passed away from years of battling with drug addiction. His grandmother, Donna, immediately became his guardian and felt helpless watching him struggle to process his grief, which led to trouble eating and even speaking. Once Christian started first grade, he began having traumatic flashbacks of his mother’s death and was having trouble managing those intense emotions. Donna knew Christian needed mental health counseling, but the high cost, months
Source: madepossible.orgCategories: General Medicine News, PediatricsTweet-
Christian struggled to cope with intense emotions after losing his mother, but @Nemours’ school-based health center allowed him to talk to a therapist down the hall from his classroom, making the care he needed accessible. For more #MomentsMadePossible: https://t.co/4StzEPGiqJ https://t.co/IR1bCPQ8i4
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Mashup Score: 7Thriving with Cleft Lip and Palate Thanks to MUSC - 2 month(s) ago
Caitlin’s pregnancy with Jack was going well until a 20-week ultrasound revealed cleft lip and palate. After learning that this condition can cause problems with feeding and speaking, among other complications, Caitlin and her husband Patrick were scared for what the future might hold. Thankfully, they found a doctor at MUSC Shawn Jenkins Children’s Hospital who walked them through all the surgeries, speech therapy, and other treatments Jack would need. But as Caitlin neared her due date, she was diagnosed
Source: madepossible.orgCategories: General Medicine News, PediatricsTweet
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Mashup Score: 1Pediatric nursing team brings relief to Regan - 2 month(s) ago
By the time Regan was six years old, he had already undergone four open heart surgeries and one heart transplant. Because of these surgeries, Regan now has to get blood drawn for lab tests regularly. But with his numerous medications and all the blood draws he’s had over the years; his veins can be tricky to access. The draw station he was frequenting experienced staff transitions, and the newer nurses, unfamiliar with Regan’s complexities, often accidentally poked him and wore out his veins trying to
Source: madepossible.orgCategories: General Medicine News, PediatricsTweet
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Mashup Score: 3
After working with medically fragile infants as an emergency room tech, Bree McCarty was quickly inspired to become a foster parent for children with unique health needs. She and her husband, Tim, began fostering 4-month-old Carlos. While they didn’t have much information about Carlos’ complex medical needs, Mary Bridge Children’s neonatal follow-up clinic discovered he had hydrocephalus and was missing part of his brain. Carlos underwent multiple surgeries, including surgery to relieve the pressure on
Source: madepossible.orgCategories: General Medicine News, PediatricsTweet-
With Carlos’s medically complex conditions, @Mary_Bridge’s neonatal follow-up clinic provided the specialized & routine treatment he needed to thrive. Today, Carlos is a bubbly 5-year-old, always making those around him laugh. More: #MomentsMadePossible: https://t.co/hsOHITqeQs https://t.co/pgdYF8ln24
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With Ernesto’s routine physical therapy for cerebral palsy at @GilletteChildrn’s, he’s growing stronger every. Today, he’s an eager boy and is often found zooming around on his gait trainer in the hospital’s therapy gym! For more #MomentsMadePossible: https://t.co/8B5TtG756u https://t.co/dbf2AMQyRO