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    KBG Syndrome Research - 1 year(s) ago

    KBG Syndrome Research

    Source: KBG Foundation
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      .@KBGFdn is launching its Seed Funding Program! It is the first funded program established by a patient-led organization for #KBG. Donations to the Foundation advance this revolutionary program! #Give4KBG #everylinkmatters More: https://t.co/CxQrGeYrBA

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    KBG BEOND Study - 1 year(s) ago

    KBG Foundation and BEOND study

    Source: KBG Foundation
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      .@KBGFdn and @CerebraNetwork are pleased to announce the BEOND Study is now open! Parents and caregivers of any #KBGsyndrome affected children aged 1-16 years or adults are encouraged to take part in this expansive behavior study. #BEONDKBG Learn more: https://t.co/dabod8SUHm