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Mashup Score: 5Holiday Care Packages 2024 - 2 month(s) ago
The holiday season is a particularly challenging time for rare disease patients, caregivers, and families who are constantly traveling away from home for medical appointments. To help brighten the days of our community members spending time in the hospital over the holidays, NORD is orga…
Source: donate.rarediseases.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 32024 Marine Corps Runs - 5 month(s) ago
This team of runners and community partners are supporting NORD’s mission to drive public policy, accelerate research and improve care for people living with rare diseases.
Source: donate.rarediseases.orgCategories: General Medicine News, Rare DiseaseTweet-
Run with purpose with NORD Running for Rare! Register to race any distance at the Marine Corps Marathon in DC on October 27: https://t.co/8rDp7Wt1PY https://t.co/0DROsIC7l6
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Mashup Score: 6Jenny Jones Fundraising for FAP - 7 month(s) ago
Jenny is a Rare Disease Advocate for Familial Adenomatous Polyposis (FAP) and Short Bowel Syndrome (SBS) and has lived her life with the intent to help others not have the same medical and mental health experiences she had as a child due to FAP. Jenny established Life’s a Polyp (www.LifesaPoly…
Source: donate.rarediseases.orgCategories: General Medicine News, Rare DiseaseTweet-
This week is #FAPAwarenessWeek for familial adenomatous polyposis. Unfortunately, just this week, community member @LifesaPolyp lost her mother to this disease. Join us in sharing condolences by donating in her honor: https://t.co/lM5NXRd8Vp #FamilialAdenomatousPolyposis https://t.co/HlX1hPOm1g
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Mashup Score: 62024 NORD Rare Impact Awards - 10 month(s) ago
The 2024 Rare Impact Awards will honor those individuals and organizations doing remarkable work on behalf of the rare disease community. The awards ceremony will take place at Universal Studios, Los Angeles, CA. https://donate.rarediseases.org/Rare_Impact_Awards_2024
Source: donate.rarediseases.orgCategories: General Medicine News, Rare DiseaseTweet-
Registration for the 2024 #RareImpactAwards is open! Join us on June 8 in Los Angeles as we honor the individuals, organizations, and companies making big advancements on behalf of our #RareDisease community. See you on the orange carpet!🧡🎥 Tickets: https://t.co/1LTvdu0YTB https://t.co/OPyYfjzH8s
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We're creating holiday care packages for #RareDisease patients in hospitals and we need your help! Donate $ or purchase items from our Connecticut, Massachusetts, or Washington, D.C. gift registries here: https://t.co/63q1CDAJ4K Care packages will be distributed at NORD Rare… https://t.co/KhhM4nPGne https://t.co/Wr1knLnLtD