• Mashup Score: 1
    Ask the Expert: Legacy and Science: Understanding Brain Donation for Neurodegenerative Diseases (webinar) - CurePSP - 10 month(s) ago

    When: July 20, 2023 @ 1:30 pm – 2:30 pm Brain donation is key to advancing the understanding, treatments and cure of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple systems atrophy (MSA). It is an incredibly powerful gift. CurePSP offers a brain donation … Read More

    Source: CurePSP
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Join @CurePSP on July 20 for a free webinar on understanding #BrainDonation for neurodegenerative diseases! Dr. Gabor Kovacs & Diane Crompton will explain how brain tissue is used in research and share personal experiences of the process. Sign up to watch: https://t.co/OYaZLbQE8t

  • Mashup Score: 2
    Ask the Expert: Legacy and Science: Understanding Brain Donation for Neurodegenerative Diseases (webinar) - CurePSP - 10 month(s) ago

    When: July 20, 2023 @ 1:30 pm – 2:30 pm Brain donation is key to advancing the understanding, treatments and cure of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple systems atrophy (MSA). It is an incredibly powerful gift. CurePSP offers a brain donation … Read More

    Source: CurePSP
    Categories: Latest Headlines, Rare Disease
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    • Profile photo of RareDiseases
      RareDiseases

      Join @CurePSP on July 20 for a free webinar on understanding #BrainDonation for neurodegenerative diseases! Dr. Gabor Kovacs & Diane Crompton will explain how brain tissue is used in research and share personal experiences of the process. Sign up to watch: https://t.co/OYaZLbQE8t

  • Mashup Score: 0
    Ask the Expert: The What, the Why & the Management of Urinary Symptoms for PSP, CBD and MSA (webinar) - CurePSP - 11 month(s) ago

    When: June 20, 2023 @ 2:00 pm – 3:00 pm While urinary symptoms are common with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA), they often go under-reported and can be difficult for people who are diagnosed, and their family care … Read More

    Source: CurePSP
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Join @CurePSP on 6/20 for a free Ask the Expert webinar on "The What, the Why and the Management of #PSP, #CBD & #MSA." Dr. Kristy Borawski, a urologist, will be discussing urinary symptoms and behavioral and surgical treatment options. Register to watch: https://t.co/RoYHaRXZx0

  • Mashup Score: 0
    Ask the Expert: Managing Swallowing Changes in PSP, CBD, & MSA - CurePSP - 2 year(s) ago

    When: June 27, 2022 @ 6:00 pm – 7:00 pm Where: Virtual Event Join CurePSP for Ask the Expert on Managing Swallowing Changes in PSP, CBD, & MSA! Swallowing dysfunction, also known as dysphagia, is a common complaint in patients with PSP, MSA and CBD at some point … Read More

    Source: CurePSP
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Tune in tonight at 6pm ET for @CurePSP's Ask the Expert Webinar with Julie Hicks, a speech-language pathologist from Stanford. She'll be discussing how to manage swallowing changes in #PSP, #CBD, and #MSA. Register here: https://t.co/BNu9ZpIXeC

  • Mashup Score: 1
    "Train Keeps A Rolling": The Jeff Golub Film Debut to Benefit CurePSP Event - CurePSP - 3 year(s) ago

    When: October 6, 2021 @ 6:00 pm – 9:30 pm Where: City Winery New York, 25 11th Ave, New York, NY 10011, USA Join CurePSP for the Jeff Golub Film Debut in Benefit of CurePSP! This hybrid (in-person and online) film debut and cocktail reception for “Train Keeps a Rolling” honors the life of the world-renowned guitarist Jeff … Read More

    Source: CurePSP
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Join @CurePSP for “Train Keeps A Rolling”: The Jeff Golub Film Debut hybrid event on October 6! Get your tickets here https://t.co/Tsgbi09VoV

  • Mashup Score: 2
    Hope as Big as Texas - CurePSP - 3 year(s) ago

    When: July 14, 2021 @ 7:00 pm – 9:15 pm Where: Virtual Event July 14, 2021 @ 7:00 pm – 9:15 pm CT (8:00 pm – 10:15 pm ET) Hope as Big as Texas is big fun with a mission and heart even bigger than the State of Texas! Our … Read More

    Source: CurePSP
    Categories: Latest Headlines, Rare Disease
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    • Profile photo of RareDiseases
      RareDiseases

      Join @CurePSP on 07/14 at 8pm ET for Hope as Big as Texas, a virtual event to raise awareness and support for families with in-home #RespiteCare provided through grants from the Cherie Levien Quality of Life Fund! Tickets are $20-$105. Sign up today! https://t.co/6I5V1UnfVr

  • Mashup Score: 0
    CurePSP Virtual Spring Family Conference - CurePSP - 3 year(s) ago

    When: May 21, 2021 @ 11:00 am – May 22, 2021 @ 3:00 pm Where: Virtual Event Save the Date for the CurePSP Virtual Spring Family Conference! Among its various educational activities, CurePSP organizes family conferences across the country, providing people with the opportunity to learn more about PSP, CBD, and MSA … Read More

    Source: CurePSP
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Join @CurePSP on May 21-22 for their Virtual Spring Family Conference! You will not only learn valuable skills but find comfort in a community that understands the journey you are on. To register, visit: https://t.co/TcLQQAHUtX.

  • Mashup Score: 0
    CurePSP Virtual Spring Family Conference - CurePSP - 3 year(s) ago

    When: May 21, 2021 @ 11:00 am – May 22, 2021 @ 3:00 pm Where: Virtual Event Save the Date for the CurePSP Virtual Spring Family Conference! Among its various educational activities, CurePSP organizes family conferences across the country, providing people with the opportunity to learn more about PSP, CBD, and MSA … Read More

    Source: CurePSP
    Categories: Latest Headlines, Rare Disease
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    • Profile photo of RareDiseases
      RareDiseases

      Join @CurePSP on May 21-22 for their Virtual Spring Family Conference! You will not only learn valuable skills but find comfort in a community that understands the journey you are on. To register, visit: https://t.co/TcLQQAHUtX.

  • Mashup Score: 0
    CurePSP Virtual Spring Family Conference - CurePSP - 3 year(s) ago

    When: May 21, 2021 @ 11:00 am – May 22, 2021 @ 2:00 pm Where: Virtual Event Save the Date for the CurePSP Virtual Spring Family Conference! Among its various educational activities, CurePSP organizes family conferences across the country, providing people with the opportunity to learn more about PSP, CBD, and MSA … Read More

    Source: CurePSP
    Categories: Latest Headlines, Rare Disease
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    • Profile photo of RareDiseases
      RareDiseases

      Join @CurePSP on May 21-22 for their Virtual Spring Family Conference! You will not only learn valuable skills but find comfort in a community that understands the journey you are on. To register, visit: https://t.co/TcLQQAHUtX.

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