Rare Disease Day 2024 – Faces of Rare | NORD
Faces of Rare: Join our online community wall campaign. Share your story, connect with others facing rare challenges. Unite for awareness!
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Official SUFS Events
These are the state capitals and major cities (alphabetized by state) hosting official Stand Up for Science events. If your city is listed below, a…
Running for RareĀ® Events Schedule – Running for Rare
Put meaning behind your miles for the 1 in 10 Americans with rare diseases by joining team Running for RareĀ® in 2024 participating events.
Rare Disease Day 2024 – Share an Event | NORD
Connect through our Rare Disease Day Events page. Share and discover community events. Unite for awareness and support. Join us in making a difference!
RFK Jr. confirmed, elevating anti-vaccine activist to nationās top health post
The Senate held a final vote on whether to approve Robert F. Kennedy Jr. for Health and Human Services secretary after a three-month confirmation fight.
Motor neuron diseases took their voices. AI is bringing them back.
AI-generated voice clones are bringing back the voices of people with MND, allowing some to communicate, connect, and even perform comedy routines.
Five Steps to Take if Your Health-Insurance Claim Is Denied
Appeals are often successful. Hereās what patients can do.
Musk team kicks off federal layoffs as White House eyes big cuts
The Trump administrationās plan for shrinking the civilian workforce is coming into increasingly clear view.
Analysis of Respiratory Muscle Strength Training in Amyotrophic Lateral Sclerosis (ALS) Patients: A Systematic Review
Respiratory muscle weakness is a significant contributor to morbidity and mortality in amyotrophic lateral sclerosis (ALS) patients. Respiratory muscle strength training (RMST) has emerged as…