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Mashup Score: 1CTG Labs - NCBI - 7 month(s) ago
Hide glossary Study record managers: refer to the Data Element Definitions if submitting registration or results information.
Source: clinicaltrials.govCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 4Student Awareness & Fundraising - 7 month(s) ago
Creating rare disease fundraising ideas and awareness for student organizations
Source: rarediseases.orgCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0Emerging Technologies and Innovation in Manufacturing Regenerative Medicine Therapies: A Workshop - 7 month(s) ago
Register for this event from the National Academies of Sciences, Engineering, and Medicine.
Source: events.nationalacademies.orgCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 1FDA, CTTI Convening Virtual Public Workshop to Discuss FDA Emergency Recommendations to Mitigate Clinical Study Disruptions - CTTI - 7 month(s) ago
The Food and Drug Administration (FDA), in collaboration with the Clinical Trials Transformation Initiative (CTTI), is convening a virtual public meeting on Oct. 18 and 19, 2023 to discuss recommendations provided by the FDA during the COVID-19 public health emergency (PHE) to mitigate disruption of clinical studies, including recommendations detailed in the guidance entitled “Conduct […]
Source: ctti-clinicaltrials.orgCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 3Cartoons from the October 16, 2023, Issue - 7 month(s) ago
Funny drawings from this week’s magazine.
Source: www.newyorker.comCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0John Whigham Obituary - Overland Park, KS - 7 month(s) ago
Celebrate the life of John Whigham, leave a kind word or memory and get funeral service information care of McGilley & Hoge.
Source: www.dignitymemorial.comCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 1NOT-OD-24-007: NIH Operates Under a Continuing Resolution - 7 month(s) ago
NIH Funding Opportunities and Notices in the NIH Guide for Grants and Contracts: NIH Operates Under a Continuing Resolution NOT-OD-24-007. NIH
Source: grants.nih.govCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0NORD Breakthrough Summit | Rare Disease Conference - 7 month(s) ago
NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.
Source: nordsummit.orgCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0PAP-a-palooza 2023 Interest Form - 7 month(s) ago
On Saturday, October 14th we’ll be hosting an in-person PAP event in Los Angeles, CA at UCLA. Please secure your spot and stay in touch for future communications by filling out this interest form. We welcome all PAP patients, family members, caregivers, and clinicians to join us for this event. We’ll discuss the latest on PAP research and treatment, connect with one another, and much more! Plus, we would like to hold additional events around the educational sessions this year, giving us more time to connect with one another. While we don’t have a time officially selected for the event yet, our Education Days typically start in the late morning to early afternoon, include a meal, and last for 4-5 hours in total. We will be offering travel reimbursement for those who need it to attend. Please fill out an interest form for each person who would like to attend. We’re excited to connect with our community and share helpful information together. Stay tuned for more, and we look forward to se
Source: docs.google.comCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0Platelet Disorder Support Association - for People with ITP - Video Insights - Personal Stories for Strength - 7 month(s) ago
It’s been said that stories help conquer fear. At PDSA, we’re committed to telling personal stories from ITP patients, their families and those who treat them to increase knowledge, ease anxiety and p…
Source: pdsa.orgCategories: Latest Headlines, Rare DiseaseTweet
An interesting new tool for finding trials that are actually trials and not just pay-to-play stabs in the dark. With something like this (plus my dream of having https://t.co/2V5OzxVe12 mark listings that are pay-to-play), it would really help people find legit research. https://t.co/NHo8K99lVs