Every 90, 85, 80, 75 Minutes
“Every 90 Minutes” has been a tagline that organizations have used for over a decade to describe how often someone dies from ALS in the US. …
“Every 90 Minutes” has been a tagline that organizations have used for over a decade to describe how often someone dies from ALS in the US. …
May 21, 2024 — The National Organization for Rare Disorders (NORD), in partnership with the Tyler James Abizeid Foundation and the MMIHS Foundation, announces
Nature Reviews Neurology – In this Perspective, the authors propose a new classification system for amyotrophic lateral sclerosis and related neurodegenerative disorders that recognizes, in…
Plan ahead. Actively listen. And discuss how to move forward.
Nora Kenworthy has spent years studying the world of crowdfunding for health care — along with the way it ends up amplifying the inequities that…
The Elon Musk-backed startup has proposed solutions for a thread pullout problem experienced by its first participant, Noland Arbaugh.
Guidance for developing drugs to treat early Alzheimer@s disease should focus on factors such as cognitive changes and brain atrophy, according to comments submitted to…
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
Short-Term, Limited-Duration Health Plans
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
Gain insight and tools to support your rare teen’s mental health while nurturing your own personal well-being.