Agenda – NORD Rare Summit
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Receive updates on the NORD Summit’s agenda, speakers, registration, and more by opting into our mailing list. Name(Required) First …
Welcome to The Canadian MPS Registry website! This website has information about the patient registry and how to join.
Welcome to The Canadian PKU Registry website! This website has in formation on the patient registry and how to join. At this time, to be…
QUINCY, MA, May 1, 2024—The National Organization for Rare Disorders (NORD) announced today that Pamela K. Gavin has been named CEO effective immediately. She
The Living Rare, Living Stronger NORD Patient and Family Forum will be a truly patient first event. Through it all, we will maintain our objectives:…
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
Check out the Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards agenda.
SACRAMENTO, CA, April 24, 2024—Today, California is one step closer to establishing a Rare Disease Advisory Council (RDAC) to help the 1-in-10 Californians